Hannah Davis Cat (Solidarit1) Tom Kindlon population studies in the US[4,5].” ipetitions.com/petition/empir…

A reanalysis of the oxaloacetate trial for #LongCovid and #MECFS As promised, I’m now sharing my findings. Here’s a summary of what’s wrong with this trial. (If you want to dive into the report I sent to the editor of the journal ➡️ drive.google.com/file/d/1wBJrMd…) 🧵 1/23

Shaney Wright It's a terrible attitude of neurologists, especially when there are highly indicative symptoms. That's the time when they should take a step back, look at the research, and recognize the limitations of what they can currently assess (and unfortunately the limitations of the help)

The comprehensive list of validated treatments for ME/CFS and #LongCovid. This has to change.

The DecodeME study is now open. You can take part now by visiting decodeme.org.uk/portal and signing up. You can read our full statement about today's launch here decodeme.org.uk/statement Thank you for your support. #pwme #decodeme #decodmestudy #MECFS

🚨I wrote about ME/CFS (chronic fatigue syndrome). The US has millions of people with it & maybe two dozen docs who specialize in it. This medical crisis needs urgent attention, esp. now COVID has hugely increased the number of long-haulers. 1/ theatlantic.com/health/archive…

Paul Garner Theories & claims must be supported by empirical evidence, in biology as well as psychology. The crisis in psychology is ongoing and cannot be neglected. Eminence Based Medicine causes polarisation. How do we overcome false claims based on anecdotal evidence from BPS campaigners?

Highlights Baroness Scott speaking at the Long Covid debate in the House of Lords 17 Nov 2022. Mentions similarities with ME, How ME has been ignored, the use of dangerous treatments, and how some Long Covid researchers are not using what has already been learnt from ME.

Pseudoscience in health care is an assault on public health.

Author whose scientific paper received some critical remarks and questions on PubSmear has no answer other than "First go and complete medical school!". I am afraid medical school does not necessarily make a good scientist. pubpeer.com/publications/1…

🚨In recent weeks NIH has made it clear the #LongCovid RECOVER initiative has very limited clinical trial funds — & with those funds are prioritizing useless & harmful therapies like CBT & exercise. We need to speak up — here's a letter to email NIH🧵bit.ly/3YGJYxy

How many #MECFS , #LongCovid, post-infectious disease patients, and their respective loved ones are active on Twitter? It would be great to get a rough estimate of how many folks we can mobilize. Please like and RT. Let's see if this works.

Cat (Solidarit1) For most I suspect they believe no other illnesses can exist except the ones they've been taught. They're taught anything different = made up. Medicine always believes it's reached the pinnacle of knowledge, whatever century. +/- too much effort to figure out & no incentives.

Quando l'indifferenza ed il non essere creduti nemmeno da famiglia e MEDICI sono l'ultima goccia che fa traboccare il vaso riempito dalla sofferenza fisica estrema, questa è la tragica ma comprensibile conseguenza. Ciao Mario FYI Long Covid Italia #LongCovid #MECFS

In patients with PEM (≠ DOMS), risks from exercise (largely) outweigh risks from exercise avoidance. "Primum non nocere", Adam. Sad that you do not (want to?) realize that.

Myalgic encephalomyelitis: Lives devastated - and sufferers told it's made up

Brain retraining programs in #MyalgicEncephalomyelitis, #Fibro, #ChronicPain, etc are a scam, directed at very vulnerable patients. They are sometimes named “neuroplasticity” or “cognitive” programs to make them sound more credible and harmless. #Pseudoscience 1/

Last week Dianna Cowern participated in an 11 hour livestream to raise money and awareness for #LongCovid. Dianna has suffered with long covid for 2 years - she is completely bedbound and totally unable to care for herself. This is her husband Kyle, writing on her behalf.

The lack of progress in solving #LongCovid continues to be a choice. A choice made by the institutions of medicine. PEM is one of the most disabling features of LC. It is the defining feature of ME/CFS. Solve PEM, you solve ME/CFS. Solve ME/CFS, you solve PEM.