Not only is Pippa (she/her) an Olivier Award winner but she’s gone and bought out a charity book! I’m happy to be a contributor & can’t wait to read the other letters in the book. Pre-order here> amazon.co.uk/Dear-Chronic-I… #DearChronicIllness

Love this. Kindness is the way forward in every sense! theguardian.com/money/2012/apr…

Please retweet. I have a foldawheel wheelchair and my powerpack charge plug has broken the company @CareCoMobility I’m in Kensington area of London if anyone has one and could help give me a full charge this would be a life saver as currently I’m pretty stuck ♥️🙏🏽

Oh my goodness me. This happened this week! I was given the HELLO! #HelloToKindness Award ❤️ It was such an incredible day and I was spoiled from start to finish.

On day two, we are welcoming graduands from @sheffunimdh and @facultyscience to the first ceremony of the day at 9.30am. Entrepreneur Faye will be receiving a Distinguished Sheffield Alumni Award. Congratulations to everyone #ShefUniGrad

Congratulations to Speech Therapy alumna Faye who received the Distinguished Alumni Award this morning. Faye is also known as the Chief Sender of Hugs for her business BearHugs #ShefUniGrad

You can read a profile all about Faye in this year's edition of Your University - youruniversity.group.shef.ac.uk/2019-2020/alum…

FUNDED RESPITE! I’ve been working hard this year and can now announce I can fund 5 disabled guests and 5 carers up to Calvert Kielder this September. Applications are only open for 1 week so please apply/RT/tag/etc! surveymonkey.co.uk/r/JKD3F2Q

Stupidly proud of Jared A. Carnie

“The Pain Management Team helps people who have pain that doesn’t go away” Better change yr website wording to “unless it’s complex in which case we ignore you” Gloucestershire Hospitals NHS Foundation Trust We’ve been begging 4 help for 6 months for life limiting #chronicpain but Pain Team won’t engage #harm

Let’s respond to the Pain Management Referral Service Criteria Gloucestershire Hospitals NHS Foundation Trust @GlosCCG “Person has persistent or complex pain (ie has lasted 3 months or more, and associated with significant distress and disability)” ✅ 5+ years of pain ✅ major distress, physical deterioration

Let’s respond to the Pain Management Referral Service Criteria Gloucestershire Hospitals NHS Foundation Trust @GlosCCG “Difficulties with pain medications which are ineffective, or escalating” ✅ yep - side effects often intolerable, especially when you are chronically ill

Let’s respond to the Pain Management Referral Service Criteria Gloucestershire Hospitals NHS Foundation Trust @GlosCCG “Appropriate investigations and treatment for any possible causes of the pain have been completed” ✅ yep -lots of diagnoses to choose from #lymedisease (you’ll love that one) #smallfibre #POTS

Let’s respond to the Pain Management Referral Service Criteria Gloucestershire Hospitals NHS Foundation Trust @GlosCCG “Patient needs help to manage the impact of their pain on their daily life” big ✅ We’ve been telling Pain Team for 6 months whilst daughter deteriorates by the day. Impact = 0 quality of life

Seems like daughter is too ill (bed bound) & in too much pain for the Pain Team & her illness is too complex for the Complex Care Team. Whatever happened to Care in the community Gloucestershire Hospitals NHS Foundation Trust @GlosCCG ? Those who don’t have tick-boxable illnesses are falling through the cracks

‘Women weren’t included in clinical trials until the 1990s. we make up 70% of chronic pain patients but 80% of pain medication is tested only on men.’ i will never stop yelling about this. doctors know less about us so they tell us it’s all in our head. theguardian.com/books/2019/sep…

The difficult second album. Coming soon. Pre-orders now live paperswans.co.uk/product/lyme/

.Jared A. Carnie and I would like a low-key, chilled wedding in Sheffield, Summer 2020. We’d love to use social enterprises as suppliers/venues Looking for suggestions/ recommendations/ hidden gems! #sheffieldissuper #socent #shopsocial #buysocial UnLtd Social Enterprise UK The School for Social Entrepreneurs

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