BINDproject (@eu_bind) 's Twitter Profile
BINDproject

@eu_bind

EU funded project to assess and address learning and behavioural challenges in Duchenne and Becker muscular dystrophy

ID: 1219241725799038976

linkhttps://bindproject.eu/ calendar_today20-01-2020 12:54:45

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251 Followers

352 Following

World Duchenne Organization (@worldduchenne) 's Twitter Profile Photo

๐ŸŒŸ Registrations for ๐——๐˜‚๐—ฐ๐—ต๐—ฒ๐—ป๐—ป๐—ฒ ๐—–๐—ฎ๐—ฟ๐—ฒ ๐—–๐—ผ๐—ป๐—ณ๐—ฒ๐—ฟ๐—ฒ๐—ป๐—ฐ๐—ฒ ๐Ÿฎ๐Ÿฌ๐Ÿฎ๐Ÿฐ are now open! This yearโ€™s theme emphasizes mastering foundational care strategies, even in countries where not all modern technologies are present. ๐Ÿ‘‡ Secure your spot now: worldduchenne.org/news/duchenne-โ€ฆ

BINDproject (@eu_bind) 's Twitter Profile Photo

Attention to brain involvement in Duchenne and Becker MD is crucial, and the BIND project is leading the way. Stay updated with the latest findings and research by subscribing to the newsletter. โœ๏ธ eepurl.com/g5c811

Attention to brain involvement in Duchenne and Becker MD is crucial, and the BIND project is leading the way.

Stay updated with the latest findings and research by subscribing to the newsletter. 

โœ๏ธ eepurl.com/g5c811
World Duchenne Awareness Day ๐ŸŽˆ (@duchenneday) 's Twitter Profile Photo

๐ŸŽˆ This year, World Duchenne Awareness Day will be focused on... Duchenne & Disability Rights We shine a spotlight on what it's like to live with Duchenne and fighting for disability rights everywhere in the world. โ†’ Follow our campaign and share the communication contents!

๐ŸŽˆ This year, World Duchenne Awareness Day will be focused on...

Duchenne & Disability Rights

We shine a spotlight on what it's like to live with Duchenne and fighting for disability rights everywhere in the world.

โ†’ Follow our campaign and share the communication contents!
BINDproject (@eu_bind) 's Twitter Profile Photo

๐Ÿ‡ช๐Ÿ‡ธ Today, BIND is presented at the Duchenne Parent Project Espaรฑa conference. In the session moderated by Dr Montolio del Olmo, De Miranda presents on the cognitive aspects in DMD/BMD. He is joined by Prof Mercuri, Dr Hendriksen and Prof Skuse. More info: bindproject.eu #congresodppe2024

๐Ÿ‡ช๐Ÿ‡ธ Today, BIND is presented at the <a href="/DPPSpain/">Duchenne Parent Project Espaรฑa</a> conference.

In the session moderated by Dr Montolio del Olmo, De Miranda presents on the cognitive aspects in DMD/BMD. He is joined by Prof Mercuri, Dr Hendriksen and Prof Skuse.

More info: bindproject.eu
#congresodppe2024
Action Duchenne (@actionduchenne) 's Twitter Profile Photo

Our next webinar will be on Wednesday 29th May at 5:30pm with Professor Francesco Muntoni and Anna Kolesnik and they'll discuss the BIND study. REGISTER: bit.ly/WebinarBIND #learningandbehaviour #duchenneandthebrain #learning #understanding #scienceeducation

Our next webinar will be on Wednesday 29th May at 5:30pm with Professor Francesco Muntoni and Anna Kolesnik and they'll discuss the BIND study. 
REGISTER:
bit.ly/WebinarBIND
#learningandbehaviour #duchenneandthebrain #learning #understanding #scienceeducation
World Duchenne Organization (@worldduchenne) 's Twitter Profile Photo

๐Ÿง  Understanding learning and behavioral challenges is key in Duchenne care. Dr. Jos Hendriksen will discuss screening methods at the upcoming Duchenne Care Conference, taking place May 27 & 28 online. ๐Ÿ“ฃ Secure your #DuchenneCare2024 spot now: worldduchenne.org/news/duchenne-โ€ฆ

๐Ÿง  Understanding learning and behavioral challenges is key in Duchenne care.

Dr. Jos Hendriksen will discuss screening methods at the upcoming Duchenne Care Conference, taking place May 27 &amp; 28 online. 

๐Ÿ“ฃ Secure your #DuchenneCare2024 spot now: worldduchenne.org/news/duchenne-โ€ฆ
BINDproject (@eu_bind) 's Twitter Profile Photo

Dr. Jos Hendriksen presented at the Duchenne Care Conference 2024. โœจHis talk presented the BIND screener: a quick, easy to complete and reliable tool for screening and identifying neurocognitive and neuropsychiatric problems. Results are published soon. bindproject.eu/bind-project-pโ€ฆ

BINDproject (@eu_bind) 's Twitter Profile Photo

Last Action Duchenne Spring Webinar, the BIND project was presented. Prof Muntoni, Dr. Hendriksen, Dr. Miranda and Dr. Kolesnik provided insights into learning and behavioural challenges associated with Duchenne & Becker. Thank you for the invitation! bindproject.eu/action-duchennโ€ฆ

BINDproject (@eu_bind) 's Twitter Profile Photo

Just out! In the latest BIND newsletter, we summarise the latest publications on brain comorbidity research in Duchenne and Becker MD. Each publication had a lay summary available. Read the full newsletter here ๐Ÿ‘‰ mailchi.mp/2b605bcaa3b0/bโ€ฆ

Just out! In the latest BIND newsletter, we summarise the latest publications on brain comorbidity research in Duchenne and Becker MD. Each publication had a lay summary available.  

Read the full newsletter here ๐Ÿ‘‰ mailchi.mp/2b605bcaa3b0/bโ€ฆ
BINDproject (@eu_bind) 's Twitter Profile Photo

At the Duchenne Parent Project Espaรฑa Annual Conference last May, representatives from the BIND consortium participated in a session titled โ€œCognitive Part in DMD/BMD: Project BIND.โ€ โ†’ A summary of what was presented and discussed is now available: bindproject.eu/bind-presentatโ€ฆ

BINDproject (@eu_bind) 's Twitter Profile Photo

You are invited to join the BIND Patient Community webinar 'Understanding the role of dystrophin in the brain' ๐Ÿ—“ Monday, September 23 ๐Ÿ•• 18:00 CEST ๐Ÿ“ Online via Zoom ๐Ÿ‘‰ Please register your interest here: bindproject.eu/bind-patient-wโ€ฆ

You are invited to join the BIND Patient Community webinar 'Understanding the role of dystrophin in the brain'

๐Ÿ—“ Monday, September 23
๐Ÿ•• 18:00 CEST
๐Ÿ“ Online via Zoom

๐Ÿ‘‰ Please register your interest here: bindproject.eu/bind-patient-wโ€ฆ
BINDproject (@eu_bind) 's Twitter Profile Photo

๐Ÿง  Dr. Hermien Kan used advanced MRI scans of the brain to see how DMD/BMD affect the structure and function of the brain. Join us next Monday September 23 at 18:00 CEST and learn about this & more insights from the BIND Project ๐Ÿ”— Register here: bindproject.eu/bind-patient-wโ€ฆ

๐Ÿง  Dr. Hermien Kan used advanced MRI scans of the brain to see how DMD/BMD affect the structure and function of the brain.

Join us next Monday September 23 at 18:00 CEST and learn about this &amp; more insights from the BIND Project

๐Ÿ”— Register here: bindproject.eu/bind-patient-wโ€ฆ
BINDproject (@eu_bind) 's Twitter Profile Photo

Next Monday, Dr. Amel Saoudi from CNRS ๐ŸŒ shares what we have learnt on dystrophin in the brain from mouse models. Join the BIND Patient Community Webinar to find out! ๐Ÿ—“๏ธ Monday September 23, 18:00 CEST bindproject.eu/bind-patient-wโ€ฆ

Next Monday, Dr. Amel Saoudi from <a href="/CNRS/">CNRS ๐ŸŒ</a> shares what we have learnt on dystrophin in the brain from mouse models. Join the BIND Patient Community Webinar to find out!

๐Ÿ—“๏ธ Monday September 23, 18:00 CEST
bindproject.eu/bind-patient-wโ€ฆ
BINDproject (@eu_bind) 's Twitter Profile Photo

Elizabeth Vroom explains why the World Duchenne Organization Organization is part of the BIND Project. At the BIND webinar tonight, she will share her experience and moderate the questions from participants. ๐Ÿ‘‰ Don't miss this opportunity! bindproject.eu/bind-patient-wโ€ฆ

Elizabeth Vroom explains why the <a href="/worldduchenne/">World Duchenne Organization</a> Organization is part of the BIND Project. 

At the BIND webinar tonight, she will share her experience and moderate the questions from participants.

๐Ÿ‘‰ Don't miss this opportunity! bindproject.eu/bind-patient-wโ€ฆ
BINDproject (@eu_bind) 's Twitter Profile Photo

โฐ Last change to register! Tonight at 18:00 CEST, Dr. Jos Hendriksen from Kempenhaeghe presents how to assess cognitive and behavioural challenges in Duchenne and Becker MD. ๐Ÿ‘‰ Register here: bindproject.eu/bind-patient-wโ€ฆ

โฐ Last change to register!

Tonight at 18:00 CEST, Dr. Jos Hendriksen from <a href="/Kempenhaeghe/">Kempenhaeghe</a> presents how to assess cognitive and behavioural challenges in Duchenne and Becker MD. 

๐Ÿ‘‰ Register here:
bindproject.eu/bind-patient-wโ€ฆ
BINDproject (@eu_bind) 's Twitter Profile Photo

Missed our posters at the World Muscle Society 2024? Check them out in the #WMS2024 virtual platform! Data on brain involvement in dystrophinopathies in Duchenne and Becker muscular dystrophy is presented BIND various partners. Happy to take questions!

Missed our posters at the World Muscle Society 2024? Check them out in the #WMS2024 virtual platform!

Data on brain involvement in dystrophinopathies in Duchenne and Becker muscular dystrophy is presented BIND various partners.

Happy to take questions!
BINDproject (@eu_bind) 's Twitter Profile Photo

We had an incredible experience at the 2023 Brain Innovation Days, and are looking forward to this year's #BIDays. The 2024 edition takes place 13-14 Novemberย 2024ย in Brussels, under the overarching theme 'Navigating the Brain Across a Lifetime' ๐Ÿ‘‰ braininnovationdays.eu

We had an incredible experience at the 2023 Brain Innovation Days, and are looking forward to this year's #BIDays.

The 2024 edition takes place 13-14 Novemberย 2024ย in Brussels, under the overarching theme 'Navigating the Brain Across a Lifetime'

๐Ÿ‘‰ braininnovationdays.eu
BINDproject (@eu_bind) 's Twitter Profile Photo

Last week, the BIND project was presented at the 8th EPNS Research Meeting by Dr. Jos Hendriksen, with remote input from Prof. Eugenio Mercuri. We are grateful for this opportunity to share ongoing research in brain related comorbidities in Duchenne and Becker MD.

Last week, the BIND project was presented at the 8th <a href="/EPNSnews/">EPNS</a> Research Meeting by Dr. Jos Hendriksen, with remote input from Prof. Eugenio Mercuri. 

We are grateful for this opportunity to share ongoing research in brain related comorbidities in Duchenne and Becker MD.