#pwME, Bridget O'Shea calling out those who are responsible for 'the greatest medical scandal of the century' doing what ever she could to let the world know what's happening to patients with #ME while she was able to Now she's also gone, yet another tragic early death from #ME

Thank you Karen Hargrave @karenlhargrave.🦋.social of #ThereForME for commenting so strongly on the DHSC Plan for #ME published in The Times today.

After 3+ years of waiting the Final Delivery Plan for ME is being released today. Our comment 👇

BBC Breakfast segment on the UK government's new #MECFS Delivery Plan (12 mins) Features Sarah Boothby and Dr Binita Kane, who warn the plan doesn't go far enough and won’t lead to immediate change for patients. youtu.be/GZbSrdtiA9k?si…

Sarah Boothby on the BBC Breakfast segment about the new delivery plan "The way Maeve was treated while she was in hospital was she was constantly being referred to psychiatric services because the conception has been that ME is a mental illness. It isn't a mental illness."

And here it finally is: gov.uk/government/pub…

Karen Hargrave - Karen Hargrave @karenlhargrave.🦋.social on BBC The World at One talking about her husband, James with severe #MECFS and the new government delivery plan which lacks any concrete tangible solutions, also includes a representative from BACME. youtu.be/R6AReGLoy4o?si…

My friend, Savannah, a 23yo woman with severe ME/CFS, is currently in a London hospital being denied the care she needs after being told to seek psychiatric help instead. Please help - sign the petition. change.org/SaveSavannah ME Association #MEAction Network World ME Alliance

To think that we waited so long for this plan. How the hell am I meant to reassure my daughter with #ME that she won't end up dying as her sister did if this is the best they can come up with after all this time.

I can point to tests that show the profound physiological nature of my child’s illness. So could the clinicians who tried to take her away from us. But still they tried, at great cost to my daughter, and our family. We are a pattern, not an anomaly. There is unthinkable

This write up from Channel 4 News is worth a look - more on Nick Benton’s story, who has done such an awesome job speaking out 💪

We’re a small team and we can’t do it all. That’s why building a coalition is part of our strategy. We think change for people with ME and Long Covid will be the result of a diverse coalition calling for action from many directions. Some of our allies so far 👇

Especially after yesterday, a MASSIVE shoutout to Adam for capturing so many of these moments! 🙏 Total public service to the ME community and we’re very, very grateful.

This would be a gamechanger. My daughter has lost 4 yrs of her childhood. A vague hope of a lottery-win of spontaneous recovery is all we have. The current plan changes nothing for those w/ severe ME. We need more than words. We need action. Ashley Dalton MP Wes Streeting

I am not okay If anyone comes in the comments justifying #starvation of babies - you are not welcome here. Check your humanity. A deliberate man made famine. A deliberate ethnic cleansing Please keep posting, keep sharing, keep talking, keep petitioning to your leaders and MPs

The BMJ The BMJ has not published a rapid resopnse from Maeve Boothby O'Neill's mum, Sarah, to its ME/CFS "hope" propaganda piece from members of the biopsychosocial ideological brigades. So I have posted it here: virology.ws/2025/07/23/tri…

davidtuller The BMJ Sarah's excellent response should be coming from the UK medical establishment, not a grieving parent. Shame on you The BMJ

The stigma is how mental health diagnose mental health disorders on those with ME and PEM. It is wrong for obvious reasons mainly because they give you the wrong treatment, which is not helpful Gigi is back in hospital and suffering as she did 6 years on again we have stigma

Dr Nigel Speight and his 15 year old grandson, Finn, have already raised 80% of their target to support Medical Aid for Palestinians Medical Aid for Palestinians. There is no greater cause in the world than this right now. Please support if you are able. #GazaGenocide

It's Dr Nigel Speight's birthday today. Please help him smash his fundraising target for Medical Aid for Palestinians justgiving.com/page/arthur-ni… #PwME #GazaGenocide‌