What are the best practices for managing #orthopaedic surgery in people with #achondroplasia, and how can we optimise care post-surgery? Join the next #EAF workshop on 29th October, at 14:00 CET and help us discuss this vital subject! 🎟️ow.ly/RrMe50Tv7aP

Cardiometabolic risk in children and adolescents with obesity: a position paper of the Italian Society for Pediatric Endocrinology and Diabetology | Italian Journal of Pediatrics | #OpenAccess ijponline.biomedcentral.com/articles/10.11…

📣 Research Opportunity reminder Remember if you're a young person living with adrenal insufficiency then you can complete this survey. It will help inform new resources for young people with adrenal insufficiency. 👉️ Find out more: pituitary.org.uk/research-study…

Pain Intervention for Osteoporotic Compression Fracture, From Physical Therapy to Surgery: A Literature Review. JT Lee et al. Korean J Neurotrauma 25 Sept 2024 tinyurl.com/38xshd4x …short practical review

Looking for participants for our focus grp research. Parent grps 23/10/24, 24/10/24. Young person grps 29/10/24. We need your help! Addison's Disease Self-Help Group (ADSHG) The Pituitary Foundation Child Growth Foundation Duchenne UK Action Duchenne BSPED

We need your help to develop standards and education resources for families about sick day/emergency adrenal insufficiency management. This 20-minute survey asks for your experience and information about spotting symptoms of adrenal crisis and emergency surveymonkey.com/r/adrenalinsuf…

Applications are open for our Bone School in May next year, to register, just fill in the form and send us your CV theiscbh.org/bone-school/

After a week of celebrations it was a lovely surprise to finish the week with being awarded best poster at #BSPED2024 🎉 🙏 Thank you so much to BSPED and to Stichting Duchenne for funding this work Lucy Bray Jarod Wong

Just no note that Lucy Bray will present some results of the opinion of YP with DMD/parents/clinicians on use of bisphosphonate in DMD before fracture Action Duchenne conference in Nov 2024 Thanks to Stichting Duchenne for the funding. Hope to see many families there!

Dr Janet Hoskin and Dr Claire Wood have conducted a study looking into sexual health and fertility in people with DMD. Because people with some disabilities need a lot of different medical support, topics like sex can sometimes be forgotten about. pathfindersalliance.org.uk/sex-and-fertil…

We have launched our new In Case of Emergency app to ensure people with DMD receive appropriate treatment in emergency situations. The app enables users to maintain a profile of medical needs, emergency contacts, and guidance for healthcare providers. duchenneuk.org/new-app-to-pre…

It’s Friday and it’s another new episode of #BoneUp the podcast! Hear our good friend Elena Tsourdi from University of Dresden 🇩🇪 talk to Richie Abel and me about sequencing #osteoporosis treatments, patient engagement and tennis 🎾! Royal Osteoporosis Society for professionals media.rss.com/boneup/feed.xml

Childhood #Hypertension : A Retrospective Analysis of Causes, Treatments, and Complications ⁦MDPI⁩ mdpi.com/2227-9067/11/1…

Take charge of your health! 🦴 Join us on Jan 15, 2025, for an info evening on boosting bone health for adults with neuromuscular conditions—all on Zoom! Get expert insights, explore research, and participate in a Q&A session. Don’t miss out! Sign up ow.ly/N5e550TXf9u

Get to know your skeleton with Jarod Wong and co!

Today Jack was interviewed to help us develop nutrition information for Duchenne. The researchers are looking for more people to interview. Please contact Lucy if you can help. All details on flyer 👍

We have heard from some parents & YP but looking for more to help guide devt of national standards for education of a YP with adrenal insufficiency. We need YOUR input The Pituitary Foundation Child Growth Foundation Addison's Disease Self-Help Group (ADSHG) Action Duchenne Duchenne UK BSPED Lucy Bray

Adapting to Adulthood: A Review of Transition Strategies for Osteogenesis Imperfecta. Luca Celli et al. Calcified Tissue Int 13 Nov 2024 tinyurl.com/ycx2xzrv …five key steps: Education, Readiness, Preparation, Transition, and Follow-up

Best wishes for Christmas and the New Year from BoneUp! Thank you to all our guests and listeners for your support in 2024 🎅🏻 🦴 💪🏻 🎅🏻 Richie Abel Royal Osteoporosis Society for professionals NICHE

5. There is much to be fixed that all candidates have identified but I stand to be #RCRPresident and your ambassador as a celebration of what is possible and I share my story to inspire others. I hope I have inspired you and that I will be your choice. Thank you.