Really pleased this paper is out. A collaborative, recommendation piece from 2 surgeons, 2 physios & a neurologist from 2 specialist centres, sharing our experience on foot surgery for people with CMT 1/3 Neuromuscular Rehabilitation Research Group (NMRR) UCL_QS_CNMD CMT United Kingdom PNS pn.bmj.com/content/early/…

Resilience in adversity: Jenny Decker has #CharcotMarieTooth disease and is sailing solo around the world to raise awareness of this rare and debilitating neurological condition, which affects 3 million people globally with no cure. pbo.co.uk/cruising/jenny… #RareDisease #CMT

Good luck to all those riding for CMTUK in tomorrow's Ford RideLondon event and thank you!

The Trustees and Staff of CMTUK (only missing Lisa Yeates!). Left to Right we have Pete Kraushaar, Karin Rodgers, Vicky Thorpe, Thomas Henderson, Sophie Arnold, Simon Bull, Anton James, Kim Shires and Denise James.

📰 Latest Issue: New trustees, Conference round-up, fundraisers and more - mailchi.mp/cmt.org.uk/aut…

New clinical pathway for neuromuscular disorders out today. The pathway, developed by clinicians and patient groups, sets out what good treatment and care should look like. It can help assess services and support evidence for change. View it here: bit.ly/3B8KKMo

Are you getting the support you need for your neurological condition? Share your experiences and help us improve services for everyone the neurological across the UK and the Republic of Ireland. Fill in #MyNeuroSurvey here bit.ly/4cN4Dqk

A wonderful video on one woman's experience of being pregnant & giving birth when living with Charcot Marie Tooth disease CMT United Kingdom Charcot-Marie-Tooth Association Neuromuscular Rehabilitation Research Group (NMRR) Muscular Dystrophy UK Being Pregnant with CMT disease youtu.be/tNG_3XmMJ2k?si… via YouTube

New research from the Inherited #Neuropathy Consortium (INC): ✅ Analyzing Genetic Modifiers to Characterize Severity in Patients with #CharcotMarieTooth Disease Type 1A Listen and read more: rarediseasesnetwork.org/news/research-…

Still rather pleased with this decision making algorithm I devised for our paper on foot surgery in CMT. I'd be keen to know if colleagues find this helpful (or not!) 1/2 CMT United Kingdom HereditaryNeuropathy PNS pubmed.ncbi.nlm.nih.gov/38631902/

Thank you for sharing this.

October is CMT Awareness Month! CMT is a genetic condition that damages nerves, causing muscle weakness & sensation loss. CMTUK provides key support & funds research to help those with CMT. Let's spread the word & support CMT United Kingdom! cmt.org.uk #CMTawarenessmonth

CMT is a group of genetic disorders affecting nerves, causing muscle weakness & balance issues. Named after the 3 doctors who identified it, CMT United Kingdom provides support, resources, & funds research. Help raise awareness at cmt.org.uk 💪 #CMTUK #CMTawarenessmonth

#NobodyIsPerfect – and that’s okay! During CMT Awareness Month, we’re celebrating our differences. Whether living with CMT or not, we all face unique challenges. Let’s embrace what makes us strong & spread awareness. Share your story with #NobodyIsPerfect 💙 #CMTawarenessmonth

No one is perfect, even the Chairman... Meet Anton James, Chair of CMTUK's Board of Trustees 💙 A former Captain, Anton brings leadership and dedication. With a strong team of volunteer trustees and staff, we're united in supporting those with CMT! ⚓️ #CMTUK #CMTAwarenessMonth

We’ve reached 1,500 members! 🎉 CMTUK is a community, not just a charity. By becoming a member, we can keep you updated on events, and resources, and offer support. Membership is donation-based, with no set fee. Join us and stay connected: cmt.org.uk/cmtuk-membersh… 💙 #CMTUK #CMT

CMT affects 1 in 2,500 in the UK, but many have never heard of it! Living with CMT can be challenging, as symptoms change over time. Whatever the issue, there’s usually a solution, and CMTUK is here to help. Join our community and get support at cmt.org.uk 💙 #CMTUK

This CMT Awareness Month, let’s celebrate our uniqueness! Share your selfies or photos to raise awareness for Charcot-Marie-Tooth Disease! Tag CMT United Kingdom and use #NobodyIsPerfect. Together, we can build a supportive community! 💪🤳 #cmtuk #cmtawarenessmonth #raredisease

Today is #WorldMentalHealthDay! 💙 Join our supportive community through regional groups and online networks. Get access to resources, events, and a caring network. Let’s raise awareness together! DM us to learn more! 🙌 #cmtawarenessmonth #mentalhealth #disability

Did you know there are over 120 variations of CMT and every journey is unique? At CMTUK, we offer support for those newly diagnosed, caregivers, and anyone seeking advice. Visit cmt.org.uk for more. Let’s raise awareness together! 💪 #cmtuk #cmtawarenessmonth