
CMT United Kingdom
@cmtunitedkdom
CMTUK - the UK's charity supporting people living with Charcot-Marie-Tooth disease - the most common rare neuropathy.
ID: 119758585
http://www.cmt.org.uk 04-03-2010 15:20:36
3,3K Tweet
2,2K Followers
499 Following

Brandi
@brandi_whine
MS & Narcolepsy Advocate. HSCT Veteran Northwestern 2015. Twitter OG, Weather g33k. WCNC Spotter. Duke. Sharks. Frenchie mom. Tiffany Blue. Jimmy Ear Wold.
Third Sector
@thirdsector
The UK’s leading publication for everyone who needs to know what’s going on in the voluntary and not-for-profit sector. Find charity vacancies @jobsthirdsector
Muscular Dystrophy UK
@mduk_news
We connect a community of over 110,000 people living with muscle wasting and weakening conditions. Together we are stronger. Join us. Our #MusclesMatter.
Charcot-Marie-Tooth Association
@cmtausa
CMT is the most commonly inherited peripheral neuropathy and affects 3 million worldwide. Our mission is a world without CMT.
Naidex
@naidexshow
National Accessibility, Inclusion & Disability Expo 25-26 March 2026 #Naidex
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
John Kealy
@kealyj
Chief Scientific Officer at @UlyssesNeuro. Neuroscientist interested in rare genetic disorders, translational techniques, books & music.
HereditaryNeuropathy
@cmtneuropathy
(HNF) A non-profit dedicated to translating discoveries to find treatments & cures for #CharcotMarieTooth (CMT) disease & related inherited neuropathies.
International Pain Foundation®
@ipainofficial
International Pain Fnd (iPain) provides #ChronicPain community resources since Nov 2006 @NERVEmberProj @iPainLivingMag #MyPainIsLike #HopeIsTrue #NERVEmber
Scimitar Custom
@scimitarcustom
The sustainable custom sportswear & branded merchandise specialists.
NeuroRehab
@ectron
UK partners: @Tyromotion, @EksoBionics, @fesiatech, @AretechLLC, @Tecnobody & MAG & More. Technology for Neurological rehab with robotics, sensors & gaming
Mackays Hotel, Wick
@mackayshotel
We are a boutique hotel in the Scottish Highlands on the NC500 route. Run with love for over 65 years. linktr.ee/mackayshotel
Wolfgang M. Pernice
@joungmax
Asst. Prof | Laboratory for Digital Biology (LDB) @ the Merritt Center | Columbia University | ML + Rare diseases | More info: tinyurl.com/yc2nsdp9
Lee Evans
@leejamesevans86
Therapies Manager | @AlderHey @AlderHeyPhysioC | NHS Community | Physio | AHP | Views own
UCLH
@uclh
University College London Hospitals NHS Foundation Trust provides acute and specialist services in 6 hospitals. Tweets monitored Mon-Fri 9am-5pm.
Myaware
@myawareuk
Myaware is the only UK national registered charity supporting people with myasthenia. We fund research, specialist nurses and advisors #Ihaveheardofmyasthenia
TREAT-NMD®
@treat_nmd
Advancing diagnosis, care and treatment for those living with neuromuscular diseases around the world
Pressat
@pressat
The UK's leading press release distribution service. Connecting businesses & organisations with journalists and media outlets. Grow your brand with @pressat
Nat Rev Neurology
@natrevneurol
Nature Reviews Neurology is a clinical review journal from Springer Nature. Follow us for the latest updates in neurology from the journal and beyond.
Dr Katherine Forsey
@drbiol
Chief Research Officer | Charcot-Marie-Tooth Association @CMTAusa #CMTASTAR #CMTresearch STEM Ambassador
Beyond the Diagnosis
@beyondthedx
Beyond the Diagnosis unites art and science to raise awareness for children living with life-altering diseases.
UCL_QS_CNMD
@ucl_qs_cnmd
UCL Queen Square Centre for Neuromuscular Diseases
Fledglings
@fledglings
Part of the charity Contact, we provide products that help disabled children & support #SEND parents & carers. Working with schools, hospitals & others.
Nick Ward
@dr_nickward
Professor of Clinical Neurology and Neurorehabilitation. Trustee Rosetta Life. Deputy Editor at JNNP
Guy's and St Thomas'
@gsttnhs
Specialist and acute care at Guy’s, St Thomas’, @EvelinaLondon and @RBandH hospitals & community healthcare in Lambeth and Southwark. Supported by @GSTTCharity.
Institute of Neuroscience, Trinity College (TCIN)
@tcineuroscience
TCIN is an interdisciplinary research institute housing scientists who collaborate in advancing the frontiers of neuroscience.
KATE DURR 🐦
@katedurrgardens
RHS gold medal winning garden designer TV presenter, wife of @jasedurr. Insta: @KateDurrGardenDesign. Salty.
Karen Middleton CBE (she/her)
@kmiddleton60
Recently retired healthcare CEO (and having a blast), Visiting Professor at Leeds Beckett University, Executive Coach & Fellow of the CSP
Helen Devine
@helendevine10
Clinical Academic @NUAcT_NCL 🔬 Neurology Consultant 🩺 Academic strand lead for MBBS @uniofnewcastle med school #MND #ALS #mitochondria #neuromuscular
CatherineMWatt
@cathmwatt
Genetic counsellor
The Able Label
@theablelabel
Beautiful clothes, designed to make dressing easier
Bhavna
@bhavnabee
Paediatric Orthotist @RHCGlasgow | she/her (All views are my own)
Galway Neuroscience Centre
@galwayneuro
Galway Neuroscience Centre at University of Galway (@uniofgalway). Tweets by Dr. Ciara Egan (@BrainbowPoi). Bluesky: @galwayneuro.bsky.social
Chirag Parikh
@kidneydrchirag
nephrologist, translational researcher, husband, dad
Cambridge Rare Disease Network (CamRARE)
@camraredisease
making #rarediseases an everyday conversation bsky.app/profile/camrar…
Neuro Central
@neuro_central
Neuro Central, part of Taylor and Francis, is a free online hub that bridges the gap between #neuroscience and #neurology.
Royal Liver Building
@royalliver1911
The official account for the Royal Liver Building, an iconic Grade 1 listed landmark in the heart of #Liverpool.
Patient Worthy
@patientworthy
We're a resource for engaging, informative content and rare patient news, well done.
Emily Clarke (she/her) 🧬🦮
@talkinggenes
Registered Genetic Counsellor @GenePeopleUK. working in the voluntary sector to support the Genetic community. @theAGNC EDI Sub-committee member.
Abbie Breakwell PLY
@abbiebreakwell
Professional 🇬🇧 Wheelchair Tennis Player Paralympian LTA Level 2 tennis coach Never give up. Give sport a chance as it might change your life, It did mine.
CMT & Me
@cmtandmeapp
A @Pharnext international observational study app for patients living with Charcot-Marie-Tooth using @vitaccess' digital platform
ECMTF
@ecmtf
We are a voluntary non-profit federation, formed by European national organizations supporting people affected by Charcot-Marie-Tooth disease (CMT)
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
CMT Yorkshire
@cmtyorks
Highlighting issues re #CharcotMarieTooth disease; an inherited neurodegenerative condition. 4 sibs affected CMT1A
AnnemiekeAartsma-Rus
@oligogirl
Translating science from bench to bedside and from jargon to lay language
World Duchenne Organization
@worldduchenne
Global organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement
Rareminds
@raremindsuk
Specialised mental health and wellbeing services for the rare disease community. bit.ly/rarementalheal…
Wonky_Flute
@lorrainebr14368

AIIMS-CNMD
@aiimscnmd
AIIMS Comprehensive Neuromuscular Disorders Center (AIIMS-CNMD) is a virtual centre for AIIMS CNMD Clinic @AiimsNeurology
Rob Armstrong-Born
@born_armstrong
Author: Fictional thrillers based in and around the music industry
AGNC
@theagnc
The Association of Genetic Nurses and Counsellors, representing the profession in the UK and Ireland.
Nicola Condon
@nicolajcondon
Neuro Physiotherapist at QEHB / inherited metabolic disorders / neuro-rehab
Suk Wong (she/her)
@sukwong9
Community Neuro Physio in the NW, NW AHP Ethnic Diversity SAG; Pilates enthusiast
Dr Pedro J Tomaselli
@pjtomas32
Medico assistente dos ambulatorios de Neurogenetica e Doencas Neuromusculares do HCFMRP-USP. Pesquisador do ICGNMD.
St George's Hydrotherapy Users
@pbhydro_users
St George's Community Hydrotherapy Pool and spa, Peterborough, which welcomed users of all ages and abilities.
NHNN Therapy & Rehabilitation
@nhnn_therapies

Holly K (SHE/HER) 🏳️🌈🏳️🌈
@hollyristell
Specialist respiratory physiotherapist. interests in NIV and MI:E. All views are my own. @theACPRC #EDI champion 🏳️🌈🏳️🌈
Cambridge Clinical Mitochondrial Research Group
@cam_mito
MitoCAMB: a team of clinical researchers focused on mitochondrial & neurodegenerative disease research. bsky.app/profile/mitoca…
Tanya Stojkovic
@tanya_stojkovic
Neurologist Head of the Reference Center for Neuromuscular diseases-Pitié Salpêtrière Hospital Past President of the Francophone Peripheral Nerve Society
ChinaPS
@chinaspg
- 🧬🧬Geneticist 🔬.👩🔬.🧪 -MD🥼👩⚕️. . PhD candidate Genetics- Neuridegeneration. Exercise, travel, pics. Read. Draw. Write. Chocolate. Coffee.
Ataxia and Me CIO 1184030
@ataxia_and_me
#Ataxia is a #raredisease affecting #Balance #Speech and #Coordination #Patients Helping Patients #MovementDisorder #Health #Medical #pharma
Julie O'Donoghue
@julieodonoghue8
Paediatric Physiotherapist, mum and plodder(not quite a runner)
Jarod Wong
@drjarodwong
Clinical academic @UofGlasgow.Muscle-bone-growth in health/disease, rare conditions, human nutrition, pt engagement & improving communication. Views my own.
NIHR BioResource
@nihrbioresource
National panel of 300,000+ volunteers, each consented to take part in experimental research and early phase clinical trials based on genotype and/or phenotype.
ShoeFit UK
@shoefituk
We are a specialist footwear retailer using innovation to remove the hassle of buying shoes online! Authorised stockist of Asics, Joya and lots of other brands!
Dr Maria Dimitriadi
@dimitriadilab
Reader in Molecular Genetics @UniofHerts. Using the scientific legend #Celegans to model human neurodegenerative disorders #SMA