CdLS Foundation (@cdlsfoundation) 's Twitter Profile
CdLS Foundation

@cdlsfoundation

Cornelia de Lange Syndrome, promoting research & providing support to individuals with CdLS & their families 860.676.8166
#raredisease #cdlsawareness

ID: 413429580

linkhttp://cdlsusa.org calendar_today15-11-2011 21:44:28

2,2K Tweet

1,1K Followers

968 Following

CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

Get to know our community during these virtual events. 💜 Don't wait to join - register and find more info on our website now! cdlsusa.org/calendar/

Get to know our community during these virtual events. 💜
Don't wait to join - register and find more info on our website now!
cdlsusa.org/calendar/
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

Support the CdLS Foundation when you shop online with PayPal! Set us as your favorite charity, and you can choose to donate $1 each time you check out with PayPal. Get started here- ow.ly/m5Ml50TuA8Z

Support the CdLS Foundation when you shop online with PayPal!
Set us as your favorite charity, and you can choose to donate $1 each time you check out with PayPal. 
Get started here- ow.ly/m5Ml50TuA8Z
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

Don't miss the golf event of the season! Enjoy a round of golf with your pals, or get some marketing value out of being a sponsor, or both. Register here - givebutter.com/AmberGainesGol…

Don't miss the golf event of the season! 
Enjoy a round of golf with your pals, or get some marketing value out of being a sponsor, or both.
Register here - givebutter.com/AmberGainesGol…
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

As seen in our Reaching Out publication - Challenging behaviors may arise in individuals with CdLS, leading to ineffective communication. Read more about communication challenges and mutual reinforcement on our website - cdlsusa.org/as-seen-in-rea…

As seen in our Reaching Out publication - Challenging behaviors may arise in individuals with CdLS, leading to ineffective communication. 
Read more about communication challenges and mutual reinforcement on our website - cdlsusa.org/as-seen-in-rea…
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

The nation’s pediatricians are getting new guidelines for how to go about evaluating children who present with global developmental delay or intellectual disability. Read more about these new guidelines on our website - cdlsusa.org/pediatricians-…

The nation’s pediatricians are getting new guidelines for how to go about evaluating children who present with global developmental delay or intellectual disability.
Read more about these new guidelines on our website - cdlsusa.org/pediatricians-…
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

🎉🍦 Happy National Ice Cream Day! 🍦🎉 Share your ice cream pics below and tag a friend you’d love to share a cone with! 🥳❤️

🎉🍦 Happy National Ice Cream Day! 🍦🎉 
Share your ice cream pics below and tag a friend you’d love to share a cone with! 🥳❤️
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

For 25 years, the CdLS Foundation has been running in the Bank of America Chicago Marathon. Support Team CdLS and the Foundation by donating here: givebutter.com/teamcdls_chi25 For sponsorship information please contact Lisa Schroeder at [email protected]

For 25 years, the CdLS Foundation has been running in the Bank of America Chicago Marathon. 
Support Team CdLS and the Foundation by donating here: givebutter.com/teamcdls_chi25
For sponsorship information please contact Lisa Schroeder at lschroeder@cdlsusa.org
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

Meet Bransen! 💜 He lights up the room when he walks in. He is unique and such a fun kid! Learn more about Bransen from his family on our website. cdlsusa.org/meet-bransen/

Meet Bransen! 💜
He lights up the room when he walks in. He is unique and such a fun kid! Learn more about Bransen from his family on our website.
cdlsusa.org/meet-bransen/
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

🎉 Happy National Disability Independence Day! 🎈 Today, we celebrate the resilience and achievements of individuals with disabilities. #DisabilityIndependenceDay #CelebrateInclusion

🎉 Happy National Disability Independence Day! 🎈 Today, we celebrate the resilience and achievements of individuals with disabilities. 

#DisabilityIndependenceDay #CelebrateInclusion
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

The long vacation doesn’t simply hit the “pause” button on reading, math and writing skills. Learn the best way to balance school skills and summer fun on our website! cdlsusa.org/should-my-chil…

The long vacation doesn’t simply hit the “pause” button on reading, math and writing skills. 
Learn the best way to balance school skills and summer fun on our website!
cdlsusa.org/should-my-chil…
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

Thank you to our wonderful volunteers Jodi and Dayna who help with the Amber Gaines Memorial Golf Classic! 💜 Don't miss out on this year's event Monday October 13, at the Tapawingo National Golf Course. Register, be a sponsor or make a donation: givebutter.com/AmberGainesGol…

Thank you to our wonderful volunteers Jodi and Dayna who help with the Amber Gaines Memorial Golf Classic! 💜 Don't miss out on this year's event Monday October 13, at the Tapawingo National Golf Course. Register, be a sponsor or make a donation:
givebutter.com/AmberGainesGol…
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

Don't miss these virtual events! 💜 Get to know our community through our monthly support group, and educational webinars. Register and find out more info on our website. cdlsusa.org/calendar/

Don't miss these virtual events! 💜
Get to know our community through our monthly support group, and educational webinars.
Register and find out more info on our website.
cdlsusa.org/calendar/
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

Physicians are being told to play a bigger role in ensuring that children with disabilities have access to needed augmentative and alternative communication technologies. Read more about this report on our website. cdlsusa.org/pediatricians-…

Physicians are being told to play a bigger role in ensuring that children with disabilities have access to needed augmentative and alternative communication technologies.
Read more about this report on our website.
cdlsusa.org/pediatricians-…
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

The nation’s pediatricians are getting new guidelines for how to go about evaluating children who present with global developmental delay or intellectual disability. Read more about these new guidelines on our website - cdlsusa.org/pediatricians-…

The nation’s pediatricians are getting new guidelines for how to go about evaluating children who present with global developmental delay or intellectual disability.
Read more about these new guidelines on our website - cdlsusa.org/pediatricians-…
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

Meet a Team CdLS Chicago Marathon ambassador! 💜 Oliver is 9-years-old and loves to have fun with his family. They will be cheering on a runner this fall during the Chicago Marathon. Learn more about Oliver and how you can support Team CdLS on our website. cdlsusa.org/oliver-teamcdl…

Meet a Team CdLS Chicago Marathon ambassador! 💜
Oliver is 9-years-old and loves to have fun with his family. They will be cheering on a runner this fall during the Chicago Marathon. Learn more about Oliver and how you can support Team CdLS on our website.
cdlsusa.org/oliver-teamcdl…
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

Does digital media help or hinder language development in young children? 🤔 What does the research say about how parents and caregivers can foster an optimal environment for language learning? Read more about this on our website. cdlsusa.org/early-childhoo…

Does digital media help or hinder language development in young children? 🤔
What does the research say about how parents and caregivers can foster an optimal environment for language learning?
Read more about this on our website.
cdlsusa.org/early-childhoo…
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

Congratulations to our Family Service Coordinator, Ashley Fernandez! 💜 Read here about her Shoreline Chamber Women of Excellence Award. ⬇️ patch.com/connecticut/no…

Congratulations to our Family Service Coordinator, Ashley Fernandez! 💜
Read here about her Shoreline Chamber Women of Excellence Award. ⬇️

patch.com/connecticut/no…
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

💜 You asked - What is your best advice around genetic testing for older individuals with CdLS? We answered! Watch this video on Youtube from our experts! youtu.be/UER0vQWG6Rg?si… Have a question? Submit to Ask the Experts on our website. cdlsusa.org/ask-the-expert/

💜 You asked - What is your best advice around genetic testing for older individuals with CdLS?
We answered! Watch this video on Youtube from our experts!
youtu.be/UER0vQWG6Rg?si…

Have a question? Submit to Ask the Experts on our website.
cdlsusa.org/ask-the-expert/
CdLS Foundation (@cdlsfoundation) 's Twitter Profile Photo

Not a golfer but still want to be involved? 💜 Be a volunteer at the 37th Amber Gaines Memorial Golf Classic on Monday October 13th at the beautiful Tapawingo Golf Club! Email Lisa Schroeder at [email protected] for more information.

Not a golfer but still want to be involved? 💜
Be a volunteer at the 37th Amber Gaines Memorial Golf Classic on Monday October 13th at the beautiful Tapawingo Golf Club!
Email Lisa Schroeder at lschroeder@CdLSusa.org for more information.