Maggie’s spelling test - truck, stock, shock, quick, check. To the teacher who said we shouldn’t bother having her participate in spelling tests and that Maggie doesn’t belong in a general education classroom - I’ve got another “ck” digraph for you. #goMaggiego

#GoMaggieGo To all of our fellow #raredisease comrades - never give up. There is always hope.

The 40-patient placebo-controlled Phase 3 study of epalrestat for the treatment of PMM2-CDG is actively recruiting clinicaltrials.gov/ct2/show/NCT04…

The civil rights and human rights of disabled people should not be subjected to a cost-benefit analysis.

Btw, it’s not that you shouldn’t be mean to disabled people because they are disabled. You shouldn’t be mean to them because they are people.

Our daughter has been diagnosed with this rare brain cancer, DIPG. Due to its rarity, available data and treatment options are limited! Please retweet and If you are aware of any trials, please get in touch! Thank you!

Godspeed brother - no trial but this link holds invaluable information on laying out a path: bertrand.might.net/articles/algor…

FYI - school districts please note, it’s not just “one kid”. #disabilityrightsarehumanrights