It’s 6 years since we said goodbye to our dear Alan today. He took part in the #icebucketchallenge 10 years ago and we continue to fight to find a treatment and a cure. Always in our hearts 💕 #endmnd

Our CEO, Rachel Maitland, has written to the EU Clinical Trials Register and the Ethics Committee at Nīmes University to seek intervention in encouraging publication of #MIROCALS data. Read our update: mndscotland.org.uk/news/mirocals-…

We're growing our team MND Scotland. #newrole #support #team #mnd mndscotland.org.uk/jobs/support-a…

👏👏 Well done, a dry towel and hot cup of tea for the MND-SMART trial management team and those delivering the trial at the Anne Rowling Regenerative Neurology Clinic! 🥶 Thanks MND Scotland for continuing to raise awareness and funds for #MND research and trials.

We're supporting our partner, LifeArc, to better understand the challenges of living with MND to guide the development of new technologies that improve quality of life. Take the survey: bit.ly/3zWUVUj

We’re supporting MND Association in their campaign calling on NICE to make an exception to its normal criteria and take steps towards making Tofersen, an effective treatment for those with SOD1 MND, available on the NHS. Sign the petition: bit.ly/3Uaw3PK #PrescribeLife

On my way to Voluntary Health Scotland conference. Looking forward to a stimulating day MND Scotland #vhsconf24

Tejesh Mistry 'Let's have a different' conversation..#vhsconf24

'Make unusual friends' ...Martyn Evans. Voluntary Health Scotland #vhsconf24

My gorgeous daughter has commented on how amazing it is to see a well-known brand Aldi Stores UK recognise the importance of diversity in toys. But we can’t find one anywhere. Has anyone seen one in their Aldi? You’d make a wish come true

Living with #MND or supporting someone who is? We’d love to understand what technology could help improve daily life. Complete our partner, LifeArc's community survey to help shape the development of new technologies that improve quality of life: bit.ly/3zWUVUj

Looking forward to a good day at the Scottish partnership for palliative care conf MND Scotland #sppcconf24

Feels very apt today #uncertainty #sppcconf24

'Where there is uncertainty we should approach it.'...MND Scotland #sppcconf2024

Yesterday's announcement that tofersen, a breakthrough drug targeting people with SOD1 MND is closer to approval following a change in how NICE will assess the treatment, is a step in the right direction for #MND treatments. mndscotland.org.uk/news/nice-deci…

Our friends Euan's Guide are asking disabled people to have their say in the Euan’s Guide Access Survey. Your opinion matters. This is an opportunity to make your voice heard on all things disabled access, from Government, to toilets and parking. Click below to take part 🦽 #MND

So true!

Kevin and the team have already completed an impressive stretch from Liverpool to Wrexham, Gloucester to Bristol, and across Belfast. Today, they will make their way through Glasgow starting from 📍 Ibrox Stadium and finishing at 📍Scotstoun Stadium. #RunningHomeforChristmas

We’re at the📍Palace of Art, Bellahouston, ready to cheer on Kevin from Ibrox Stadium. 👏 Thanks to the team at Palace of Art for being wonderful hosts 💙 Glasgow Life #KevinSinfield #MNDScotland #MND #MakeTimeCount

Here we go - Kevin has just rolled up at📍Celtic Park! The cheers from supporters have been epic today! Next stop - Firhill Stadium. @celticfc #RunningHomeforChristmas #KevinSinfield #MNDScotland #MND #MakeTimeCount