Elena (@elena_piani) 's Twitter Profile
Elena

@elena_piani

Health economist, coffee lover and... just curious.
No act of kindness, no matter how small, is ever wasted. Esopo

ID: 2985910769

calendar_today19-01-2015 15:21:58

35 Tweet

29 Followers

71 Following

European Reference Network on Rare Bone Diseases (@ern_bond) 's Twitter Profile Photo

Do you know the main rare #BoneDiseases? Here's a part of them: 🔬 OSTEOGENESIS IMPERFECTA 🔬 ACHONDROPLASIA 🔬 X-LINKED HYPOPHOSPHATEMIA Share this post to let the results of our research grow and spread 🌱 #ERNBOND works for a constant improvement 🔍

Do you know the main rare #BoneDiseases?
Here's a part of them:

🔬 OSTEOGENESIS IMPERFECTA
🔬 ACHONDROPLASIA
🔬 X-LINKED HYPOPHOSPHATEMIA 

Share this post to let the results of our research grow and spread 🌱 #ERNBOND works for a constant improvement 🔍
European Reference Network on Rare Bone Diseases (@ern_bond) 's Twitter Profile Photo

The #EuropeanCommission accepted our proposal on the call for projects aiming to support the development and creation of registries for #RareDiseases in Europe 🇪🇺 We can now start to create EuRR-Bone: the #EuropeanRegistry for #RareBoneAndMineralConditions 🔬 #ERNBOND

The #EuropeanCommission accepted our proposal on the call for projects aiming to support the development and creation of registries for #RareDiseases in Europe 🇪🇺

We can now start to create EuRR-Bone: the
#EuropeanRegistry for #RareBoneAndMineralConditions 🔬

#ERNBOND
European Reference Network on Rare Bone Diseases (@ern_bond) 's Twitter Profile Photo

The main ambition of the #ERNBOND is to facilitate multidisciplinary, holistic, continuous, patient-centred and participative care provision to people living with #RareBoneDiseases (RBDs), supporting them in the realisation of their human rights 🤲 ernbond.eu/bone-rare-dise…

The main ambition of the #ERNBOND is to facilitate multidisciplinary, holistic, continuous, patient-centred and participative care provision to people living with #RareBoneDiseases (RBDs), supporting them in the realisation of their human rights 🤲

ernbond.eu/bone-rare-dise…
OMaR Malattie Rare (@ossmalattierare) 's Twitter Profile Photo

L’Istituto Rizzoli IRCCS che coordina la rete europea European Reference Network on Rare Bone Diseases, potenzia il Centro #MalattieRare Scheletriche attraverso il “Day Service Ambulatoriale’, il modello più adeguato per rispondere alle necessità dei pazienti. bit.ly/39K7FeG

Regione Emilia-Romagna (@regioneer) 's Twitter Profile Photo

#sanitaER #Coronavirus 100 chiamate in 3 giorni per Help Line malattie rare scheletriche creata da European Reference Network on Rare Bone Diseases coordinata da Rizzoli IRCCS Raffaele Donini : "Ancora una volta la nostra sanità mette a disposizione competenze e professionalità d'eccellenza" bit.ly/3bFWROY

#sanitaER #Coronavirus 100 chiamate in 3 giorni per Help Line malattie rare scheletriche creata da <a href="/ern_bond/">European Reference Network on Rare Bone Diseases</a>  coordinata da <a href="/IRCCS_Rizzoli/">Rizzoli IRCCS</a> <a href="/raffaeledonini/">Raffaele Donini</a> : "Ancora una volta la nostra sanità mette a disposizione competenze e professionalità d'eccellenza"
bit.ly/3bFWROY
Elena (@elena_piani) 's Twitter Profile Photo

EC adopted guidelines on EU #emergency assistance in cross-border #cooperation to enhance cross-border healthcare for #patients suffering from #COVID19. #EUsolidarity Learn more: ec.europa.eu/commission/pre…

European Reference Network on Rare Bone Diseases (@ern_bond) 's Twitter Profile Photo

Experts around the world must cooperate 🌍 We proudly support: 🇪🇺ernbond.eu/european-initi… 🇮🇹 ernbond.eu/helpline-for-p… to fight #COVID19 We are together in this battle 💪 #ERNBOND #GlobalResponse European Commission

Elena (@elena_piani) 's Twitter Profile Photo

Montaña Arcoiris (o Cerro Colorado), otro espectáculo de la naturaleza. 🌈 Con su 5.033 metros… instagram.com/p/Bdt27gzDeHT/