World Duchenne Awareness Day 🎈
@duchenneday
Join us on September 7 on World Duchenne Awareness Day #WDAD2024. Help raise awareness for people living with dystrophinopathies!
ID: 3240935363
https://www.worldduchenneday.org/ 07-05-2015 19:26:36
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Muscular Dystrophy UK
@mduk_news
We connect a community of over 110,000 people living with muscle wasting and weakening conditions. Together we are stronger. Join us. Our #MusclesMatter.
B. Scott Perrin, Jr.
@bsperrinjr
DMD Advocate (perrinpower.org; restore79.org); Software Engineer; People Leader; Computation Biophysicist (perrinresearch.com)
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
CureDuchenne
@cureduchenne
We are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.
MDA Wisconsin
@mdawisconsin
Muscular Dystrophy Association is a volunteer health agency working to defeat more than 40 forms of muscular dystrophy and related diseases.
Muscular Dystrophy Association
@mdaorg
MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
EveryLife Foundation
@everylifeorg
Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
Lesley - FPL ⚽️
@weggster
Managed to offend Fess Hole. My laugh triggers fire alarm systems. Music junkie. Gig addict. Incompetent Fantasy Football Manager. Potty mouth. #FPL
Frank van Ieperen
@frank_v_ieperen
Wmo | Welzijn | Zorg | Levensgenieter | Hulphond #Dobbes | Doorzetter
Nick Taussig
@ntaussig
Producer, writer, director. Father to three beautiful boys. Things often fall apart, then come together again.
Jan Verschuuren
@janspieren
TREAT-NMD®
@treat_nmd
Advancing diagnosis, care and treatment for those living with neuromuscular diseases around the world
Defeat Duchenne Canada
@defeatduchenne
Defeat Duchenne Canada is the country’s only national charity dedicated to ending Duchenne muscular dystrophy.
Nancy Intrator
@nintrator
Director of Corporate Communications for Muscular Dystrophy Association (MDA). All thoughts are my own.
Who Really Cares?
@theparentcarer
Shelley | SEND Mum | Parent Carer | Disability Rights Advocate & Activist | Accessibility & Inclusion Campaigner | Healthcare Equality & Ethics Enthusiast
ENMC
@_enmc
Joining Jack
@alljoinjack
We are joining Jack in the fight to find a cure for duchenne muscular dystrophy. Will you?
JustNBed
@justnbed
I'm Justin! a streamer from bed with Duchenne muscular dystrophy, taking on Fortnite and more 🎮 | Rolling through life! tiktok.com/@justnbed
Duchenne UK
@duchenneuk
Duchenne UK has one clear aim – to end Duchenne, a devastating muscle-wasting disease. We are the leading Duchenne muscular dystrophy charity in the UK.
Critical Path Institute (C-Path)
@cpathinstitute
C-Path leads collaborations that accelerate drug development, advancing better treatment for people worldwide.
Terri Ellsworth
@terriellsworth
Duchenne Advocate/Rare Disease Activist Mom, Designing Mom-Creating awareness & advocating for approval of safe & effective drugs. Words are always my own.
Pietro's Fight
@pietrosfight
Pietro's Fight is a nonprofit organization dedicated to raising awareness and funds to find a cure for Duchenne Muscular Dystrophy.
NIRDP
@ni_rdp
Working together for the Rare Disease Community in NI
Rare Disease Day Aus
@rarediseaseaus
Rare Disease Day seeks to raise awareness in the community and their impact. Rare Disease Day is on the 28th of Feb. rarediseasedayaustralia.com.au
@fightingforcharlie
@dmdcharlie
Duchenne Muscular Dystrophy Awareness (Dad to Charlie Henrik) DMD Advocate & caregiver : mda.org/disease/duchen….
Orphanet
@orphanet
The reference portal and knowledge base for information on rare diseases and orphan drugs. Orphanet nomenclature, ORPHA codes, Orphanet RD Ontology @inserm
Duchenne Destroyer
@destroyduchenne
The twitter page for updates on progress of @JJTheSuperHero training & preparation for @wigan10k. Join us @alljoinjack
Bert Gooris
@umbertosmission
Despite having a muscle disease myself, I continue to fight for accessibility, equality and i will try to break barriers if necessary
April Brant-Coles
@aprilbrantcoles
Sarepta Therapeutics
@sarepta
Commercial-stage biopharma company focused on the discovery & development of precision genetic medicine to treat rare neuromuscular diseases. bit.ly/3XgXshH
Amandeep Singh
@captianamandeep
I Have A Muscle Wasting Condition ♿️ Called Duchenne Muscular Dystrophy Everything I Say Is My Own Opinions And Views 🤔 Freedom Of Speech 🗣 Matters
JWMDRC
@jwmdrc
John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University #dmd #sma #lgmd #fshd #dm1 #gne #col6 #cnm
Jason Tomesch
@jasonswheels
I have Duchenne Muscular Dystrophy and a ventilator And I am living life in the community. Raising Action for animals,Universal Design,and Disability rights.
MDA Omaha
@mdaomaha
Muscular Dystrophy Association is a health org dedicated to saving and improving lives for people fighting muscle disease, including MD, SMA & ALS.
Kuwait Mission to the UN 🇰🇼
@kuwaitmissionun
The Official Account of the Permanent Mission of the State of Kuwait to the United Nations | الحساب الرسمي للوفد الدائم لدولة الكويت لدى الأمم المتحدة
Dwi U. Kemaladewi
@dkemaladewi
👩🏻🔬 Assistant Professor @ChildrensPgh @PittTweet | Rare Neuromuscular Disease Genetics 💪🧠🧬🐀💉 | 🔋 by ☕ & 😍 | HopOnHopOff 🇮🇩🇳🇱🇨🇦🇺🇸➡️🚀🌜
World Muscle Society
@worldmusclesoc
The WMS is a global, multidisciplinary community committed to advancing the science of neuromuscular disorders. Join us in Vienna for #WMS2025.
Rare Disease Review
@raredrev
The Medical Journal That Anyone Can Understand. Leader in #rarediseases & #knowledgetranslation. #zebrastrong
Lochmüller Lab
@lochmullerlab
Hanns Lochmüller's research lab in Ottawa, Canada. Clinical and basic research in neuromuscular and rare disease. Tweets by Hanns and team.
Muscular Dystrophy Association
@amaravathimusc2
Muscular dystrophy fighters #We for Us
Muscular Dystrophy Association of Tyler
@mda_tyler
MDA is the nonprofit health agency dedicated to spreading awareness and curing muscular dystrophy, ALS and related diseases by funding worldwide research
Antonio Malvaso, MD
@antonio_malvaso
Neurology Resident (3rd year) interested in Neuroimmunology 🧠 🏥 IRCCS Fondazione “C. Mondino” - Istituto Neurologico Nazionale
95, Rare Alliance Greece
@95rare
95, Rare Alliance Greece is a Greek non-profit Organization advocating for all who live with a rare & an undiagnosed #RareDisease 🔺 #ΣπάνιεςΠαθήσεις #Υγεία
Muscular Dystrophy News Today
@mdnewstoday_
We are dedicated to sharing the latest news, research, and muscular dystrophy patient perspectives.
British Myology Society
@britishmyology
Multidisciplinary professional body of experts founded to promote clinical practice, education and clinical trials in relation to muscle disease.
Rare Disease Research Partners
@rd__rp
Rare Disease Research Partners support research and access to treatment for people living with rare conditions. Serving rare disease communities.
SaskiaHouwen
@houwensaskia
Rehabilitation, Neuromuscular disorders
Therapeutic Advances in Rare Disease
@tararedisease
A SAGE gold open access journal | Publishing high-quality articles in the field of rare disease | Launched in 2020 | #TARareDisease
Neuromuscular Disease Network for Canada (NMD4C)
@nmd4canada
Canadian network connecting clinicians, scientists, patients, and industry to improve neuromuscular disease outcomes.
Jenny Shaw
@lilhousgreendor
Passionate. Believer in love. My best friend is also the love of my life💜💜. GenXer. Writer of poetry. Weirdo. Word nerd. Caregiver. Never stop learning.
DISORDER: The Rare Disease Film Festival
@disorderrare
Two rare disease dads took their films for Menkes Disease and USP7 & built them into a festival for all films on rare disease. rarediseasefilmfestival.com
Emma Rybalka
@emmarybalka
Professor in Muscle Biology & Disease @iHealthSportVU | Hon. Senior Research Fellow @UniMelbMDHS | Director @AIMSSmyopathy I Director of Science Cure ADSSL1
Escuadrón Duchenne
@escuadduchenne
Somos el Escuadrón Duchenne 🦸♂️🦸♀️ Luchamos contra la Distrofia Muscular de Duchenne, buscando ayudar a familias con niños que tengan esta enfermedad
Rare Disease Network
@rarecarenetwork
From patients and families, to students and teachers, providers and advocates, we believe every rare voice matters
Gaurav Sharma
@smascientistg
Phd fellow🇪🇺 Molecular Biology/ working on Spinal Muscular Dystrophy / interested in RNA and single-cell methods/ loves 🏃♂️ / in 🇮🇹/from 🇮🇳/ Alumina🇧🇪
Oxford-Harrington Rare Disease Centre
@ohraredisease
Rare Disease Centre @UniofOxford in partnership with @HarringtonDI_UH @UHhospitals, accelerating cures for rare diseases
Muscular Dystrophy Awareness Association
@mdaa_india
A Patient/Parent Advocacy Organization of #MuscularDystrophy. Let's create #Awareness, #Prevention, #Management and Find #Cure.
Rama Boddanapalli
@ramalakshmibv
عبدالله المحمود
@bdallhalmhmwd5
Daruieste Speranta Distrofie Musculara
@daruieste25
Sprijinirea persoanelor in faza de diagnosticare cât și pentru cei ajunsi in stadiul de a avea nevoi concrete 🤗
goforlander
@goforlander
We raise funds and awareness for Duchenne Muscular Dystrophy. Support our cause on goforlander.be
Team McClean
@team_mcclean
Ethan McC is a 16yr old with the terminal illness Duchenne Muscular Dystrophy. He loves Ice hockey, fast cars/bikes, going fast. Life is short enjoy each day !
AnnemiekeAartsma-Rus
@oligogirl
Translating science from bench to bedside and from jargon to lay language
Solid Biosciences
@solid_bio
Solid’s mandate is to improve the lives of patients living with devastating neuromuscular and cardiac diseases. #TogetherWeAreSolid
World Duchenne Organization
@worldduchenne
Global organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement
Michele
@miche_g_c
DMD Aileleri Derneği
@dmd_aileleri
Nadir hastalıklar arasında yer alan Duchenne Musküler Distrofisi (DMD), çocukluktan itibaren belirti veren ilerleyici bir kas erimesi hastalığıdır.
UAE Rare Disease Society
@uaerds
الحساب الرسمي لجمعية الإمارات للأمراض النادرة The official account of the United Arab Emirates Rare Disease Society #UAERDS
Jonne Doorduin
@drjonnedoorduin
Assistant Professor @Radboudumc Intensive Care | Technical Physician | Respiratory Muscle & Neurophysiology | Mechanical Ventilation | Dad and Cyclist
karen.hoe OBE💫 💙💪♿😷
@hoe_karen
inclusion activist and advocate ; disability champion and ambassador . Duchenne mum, fuelled by MAX, views are my own . ✌️💪🙋♀️