Hear from our hosts @Omvillaverde and @Montel_Willams as they discuss the importance of proper funding and research for rare diseases. 🧬 🎥 Head to our YouTube channel to watch the full video: youtu.be/rDLJpWS7bHA?fe… #BehindTheMystery #RareDiseaseDay #RareDiseaseAwareness

Here are just a few of the rare diseases our community advocates for. 🧬 🦓 We're raising awareness, one rare disease story at a time, to offer hope to our community of rare disease warriors. 💙 #BehindTheMystery #RareDiseaseAwareness #RareAdvocacy #RareDisease

A mother's love birthed #BehindTheMystery, amplifying voices like Tracy Dixon-Salazar's who became an expert in her daughter's Lennox-Gastaut Syndrome alongside @lgs_foundation, to find answers. Let's share their story for support and hope. Learn more at TheBalancingAct.com/rare

This is not a conspiracy theory, this is a Muslim Brotherhood strategy. Targeting universities has been one of their most effective strategies. They infiltrate campuses through an angry cause then they spread their indoctrination. “Resistance by all necessary means” “From the

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This is why we raise awareness about rare and genetic diseases through patient storytelling. With 300 million people affected globally and only 10% of these diseases having FDA-approved treatments, increasing awareness is crucial. Keep sharing your story.💙🧬 #BehindTheMystery

Congratulations Ilana Jacqueline on a starred Publisher's Weekly review of MEDICAL GASLIGHTING! publishersweekly.com/9781637745397

#SMA Awareness Month Spotlight: Meet Miles! Miles and his mom (@rare_mamas) are dedicated BTM community members. This summer, Miles won a USTA wheelchair tournament! 🏆 Let’s celebrate Miles and all #SMA warriors. #BehindTheMystery #SpinalMuscularAtrophy #SMAawareness

Have you ever heard of the rare disease generalized myasthenia gravis (gMG)? Join us to uncover the mystery of gMG with us tomorrow, September 16th at 7:30 AM ET/PT on Lifetime or visit TheBalancingAct.com/rare to learn more. #BehindTheMystery #gMG #gMGawareness #RareDisease

Behind the Mystery | Giving a Voice to Rare Diseases on National TV youtu.be/YL3Bpi1DBxo?si… via YouTube #raredisease #behindthemystery #geneticdiseases

#TipTuesday with XLH warrior and advocate Ashley! Share with someone who could use this advice today. 💙 Go to TheBalancingAct.com/rare for the full story. 📽️ #BehindTheMystery #XLH #RareDisease #RareDiseaseCommunity #XLHCommunity

Eric’s life changed when he went from being an active father to having a 3% chance of survival. Follow his journey from being told to say his goodbyes to being diagnosed with the rare disease aPAP. Full episode with Savara Inc. at: TheBalancingAct.com/rare #BehindTheMystery

It's time for a rare disease mystery! 🧬🔍 The mission? Uncover the clues and solve the case! Can you figure out which rare disease we’re talking about? #BehindTheMystery #RareDisease #RareDiseaseAwareness #RareCommunity #ChronicIllness

While facing a life-threatening hospital stay, Eric's family and friends started doing research. They found Dr Trapnell, who suggested a noninvasive blood test to confirm Eric's diagnosis of #aPAP. Full story on TheBalancingAct.com/rare. Learn more Savara Inc. #BehindTheMystery

Hidden talents of the rare disease community: mastering the pronunciation of countless complex conditions. 🧬 Share your rare disease with us below. 💙 😊 #BehindTheMystery #RareDisease #RareDiseaseCommunity #MeanGirls #RareDiseaseAwareness #MeanGirlsMeme #RareDiseaseMeme

Meet @wondergirlsaida, living with 3 rare diseases: Partial Trisomy 8q Duplication Syndrome, Vascular Ring (Congenital Heart Disease), & Hidradenitis Suppurativa (HS). Saida redefines rare and thrives as an athlete, author, podcaster, and advocate. 💙 #BehindTheMystery

It's time for a rare disease mystery! 🧬🔍 The mission? Uncover the clues and solve the case! Can you figure out which rare disease we’re talking about? 🕵️‍🔬 #BehindTheMystery #RareDisease #RareDiseaseAwareness #RareCommunity #ChronicIllness #SolveTheMystery

Kathi, diagnosed with myasthenia gravis (MG), shares her #TipTuesday: Be 100% open and honest with your physician about your symptoms and how you're feeling. Open communication helps create the best management strategy for you. 💙 #BehindTheMystery #RareDisease