A very Happy Mother’s Day to all the Moms and mother figures to a SHINE loved-one. Their needs might be special but so are the Moms who love and care for them, and advocate relentlessly. 💜💛 PS: Happy belated or early Mother’s Day to those in countries who don’t celebrate today

Thank you to Melanie Queen for her Spring Cleaning Drive with Savers. They have collected a lot and it will add up to over $700 raised for the SHINE Syndrome Foundation! Check out this link if you’re inspired to follow suit and have a drive in your area: fundrive.savers.com/?sc_src=Email&…

We're thrilled to share an update about our AAV research. We need your support to finish funding this crucial research: secure.givelively.org/donate/shine-s… To learn more watch these videos of the lead researchers:  Dr Muotri: youtu.be/P2MUI3Ji__Q Dr Aqeilan: youtube.com/watch?v=6ZGEbq…

Happy Father’s Day to all the Dads and father figures to a SHINE loved-one. Rare disease parenting/caregiving is not for the faint of heart and we are very thankful for all the dedicated and loving SuperDads in the SHINE community!

Happy SHINE Syndrome Day 2024. Please like and share and help us make these smiles even brighter by supporting our mission to find or create treatment options to improve quality of life and help each affected individual reach their potential Donate here: secure.givelively.org/donate/shine-s…