The Genetic Discrimination Observatory
@dgenetique
A network of researchers dedicated to researching and preventing discrimination based on genomic and other omic data worldwide. Retweets are not endorsements.
ID: 1016387811187023873
https://gdo.global/en/gdo-description 09-07-2018 18:25:12
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Marcia MacDonald @[email protected]
@marciam
geneticist, biotech nerd, ale-wife, open science and co-op community enthusiast, equity and #AntiRacistSTEM, #DecolonizeSTEM, she/her/elle.
Amy Harmon
@amy_harmon
New York Times reporter covering science, nature, social inequality | she/her
Leila Jamal
@jamalenator
Genetic Counselor + Bioethicist@National Cancer Institute. Educator, ethicist, and explorer. In Baltimore, MD.
みのゆ
@minoyu
Interests: Behavior genetics and social science genetics. Combining survey research and quantitative genetics. Communication involving genetic results.
Alondra Nelson
@sociallifeofdna
Author of The Social Life of DNA. Harold F. Linder Professor @the_IAS. Also @alondra and @AlondraNelson46.
Davit
@davitchokoshvil
Working at the intersection of data protection/GDPR, secondary use of biomedical data, and governance of researh. Personalized health & genomics afficiando.
Augusto valderrama
@avalderr
Biomedical Researcher, Entrepreneur.
Mahsa Shabani
@mahsashabani
Associate Professor @adamlawschool @LawHealthLife & @Ugent | Health Law | Biomedical Research Policy| ELSI genomics| Data sharing| Health Privacy| Data Ethics
Barbara Prainsack (@[email protected])
@bprainsack
Prof @univienna @sydney_chs #PrecisionMedicine #Solidarity #DataGovernance #FutureOfWork | Chair #ethicsgroup_eu | @wiko_berlin (Fellow 2023/24)
Nchangwi Syntia
@synthymama
Village girl | Social Vegan | Be kind | GenEthics | Infectious disease ethics| Governance-Health Research | I tweet what I like | Work In Progress| Hugs Please
Alberto Aparicio
@aaparicioden
Assistant Professor @IBHH_UTMB | STS & bioethics 🧬🏛 Frontier biotechnologies & who decides the future of aging? 👴🏻 Former @HarvardSTS @UCLSTS @CambridgeJBS
Colleen A. Campbell
@ccampbell49
Geneticist and Genetic Counselor. President, National Society of Genetic Counselors. A diehard Hawkeye & Packers fan!
Briana Mittleman
@brimittleman
PhD in Genomics, JD from Stanford Law School, interested in bioethics, biolaw, health law, IP, genomics
Megumu Yokono
@megumuyokono
Associate Professor of Medical Law & Ethics @waseda_univ
Prof. Ainsley Newson 💉💉💉💉💉
@biomedethics
Professor of #Bioethics @SydHealthEthics. Ethics Lead @AusGenomics. Ethics & #genomics, #reproduction, #mitoethics. She/her. Tweets in personal capacity.
Audrey Lebret
@audrey_lebret
Associate Prof in #biolaw #AI and #humanrights @UNIL🇨🇭 Affiliate @CeBIL_Center🇩🇰 @crdhparis2 🇫🇷 alumna @bu_law🇺🇲 & UFBA🇧🇷
Timothy Caulfield
@caulfieldtim
Professor of health law and science policy, author, speaker, and TV host. #GoScience #ScienceUpFirst Linktree: linktr.ee/caulfieldtim
Hrefna D. Gunnarsdóttir
@hdgunnars
Exploring bioethics and health law @CeBIL_Center; Otherwise chasing surf, snow and summits.
Bora
@fjelone
Ph.D cd.@University of Manitoba, alumnus@MemorialPoliSci& Ankara Uni. Faculty of Political Sciences. health policy, biotechnology, pharmaceuticals, STS.
John Novembre
@jnovembre
Developing computational tools to understand genetic diversity. Professor @UChicago. Art: Eduardo Korba “Ellis Island” mural.
INB / ELIXIR-ES
@inb_official
Spanish National Bioinformatics Institute (INB) | Institutional platform founded in 2003 by major Spanish bioinformatics groups | Appointed ELIXIR-ES since 2015
Mavis Machirori
@thinkspeakmavis
Senior Researcher @AdaLovelaceInst | ex-midwife | PhD | co-founder @geneticsengage. Likes data & (genomic/bio/digi)tech. Dislikes inequalities.
Genetics in Medicine
@gimjournal
Genetics in Medicine, an official journal of @TheACMG Site use policy: bit.ly/gimconduct. Cover image by istockphoto.com user fanjianhua.
Genomes2People
@genomes2people
Translational research program led by @RobertCGreen integrating genomic research and sequencing into #precisionmedicine and clinical practice. #AccessToGCs
Marieke Bak
@marieke_bak
Ethics of data-driven medicine at @amsterdamumc and @TU_Muenchen. #bioethics #philosophy and international #healthpolicy. PhD, MA, MSc. Most active on LinkedIn.
Guillermo Pacheco
@pachecutek
Médico genetista//Genodermatólogo/Génodermatologue (UNAM)//Genetic counselor/Conseiller en génétique (Université de Montréal). Guitar. #GeneticCounseling
Charité Ricker (she/her/ella)
@charitericker
Director of Genetic Counseling/Clinical Instructor University of Southern California - Cancer GC ♥️ committed to increasing access to 🧬 #soyasesoragenetica
Ida Ngueng Feze
@msnguengfeze
Mother, Lawyer (NY Bar), Researcher, Speaker - ELSIs of Biotechnologies (Health & environmental applications) -Views are my own & re-tweets are not endorsements
Bioinfo4Women
@bioinfo4women
👩💻 Women in Bioinformatics Programme by the Life Sciences Dept @BSC_CNS #Bioinformatics #HPC #PerMed #WomenInSTEM #WomenInScience #AIGenderBias #AdvCompBio
European Journal of Human Genetics
@ejhg_journal
The official journal of the European Society of Human Genetics, providing insights into human genetics, genomics, molecular, clinical and cytogenetics research
RTP SHS Génétique et Médecine génomique
@rtpshs
Le Réseau thématique pluridisciplinaire (RTP) SHS Génétique & Médecine génomique est une initiative institutionnelle du CNRS (InSHS). Compte animé par ILémonon
Karel Caals
@kcaals
Assistant Editor @AsianBioethics, #Bioethics #HealthGeography #HealthSystems #AIEthics #SocialMedia #SocialListening
Minority Genetic Professionals Network
@minoritygenetic
We are a space for racially & ethnically diverse professionals & students in genetics to connect & support increased access to services in minority communities.
extendGINA
@extendgina
Promoting convo's re:genetic discrimination, incl. steps beyond laws like the US Genetic Information Non-Discrimination Act #GINA (Account run by: @jnovembre)
Andrea R. Waksmunski, Ph.D.
@arwaksmunski
Ph.D. in Genetics from @CWRU. Views & opinions are my own.
Mark K. Bakker
@bakker_mk
Unraveling the genetics of neurological disorder. Fan of numbers, sports, science and twisty puzzles. Opinions are my own.
Taner Kuru
@taner_kuru_
PhD Researcher @TilburgU_TILT | Tweets about privacy and data protection
Clinical Ethics Africa
@iccec2021
Clinical Ethics & Consultation Initiative, continuing from ICCEC 2021, hosted by @SU_CMEL (RT, like & link ≠ endorsement)
Hazar Haidar
@hazarhaidar1
Bioethicist. Assistant professor, Université du Québec à Rimouski, Québec, Canada.
ELSIhub | CERA
@elsihub
ELSIhub.org is an online hub supporting work in #ELSI of #genetics & #genomics. Home of #ELSIFridayForum, #ELSIconversations, ELSIhub Collections, & TraineeHub.
Stellenbosch Medical Ethics & Law
@su_cmel
Division of Medical Ethics & Law, @SUHealthsci, @StellenboschUni @WHO CC @ICCEC2021 #ARESA @DSI_REDSSA (RT, like & link ≠ endorsement - also on LinkedIn)
Betty Cohn
@bettyccohn
PhD student @IPHG_UW | Master of Bioethics @bermaninstitute | interested in ELSI research, DTC genetic testing, and data privacy
Katharina
@katschigg
| off-the-rack mammal & kindness enthusiast | | PhD in Bioethics 🧬 | | Activist 🐙 🥦 🌍 climateaction.bz & scientistsforfuture.bz
CBmE SHAPES
@shapes_nus
Building #bioethics capacity & supporting policy & regulatory development in clinical research & biomedicine in Singapore @NUS_CBmE #ResearchEthics
Oliver Feeney
@feeneyoliver
Gene editing ethics/ELSI, Uni Tübingen. Bioethics, political philos, trust in med & science. Amateur rewilder/lrish woodland! at oliverfeeney.bsky.social
デジタル倫理と医療
@in_ysk
Digital ethics and healthcare. 最近の話題など。
Genomic Citizenship
@genomiccitizen
The Molecularization of Identity in the Contemporary Middle East
Alex Armenta (she/her)
@aarmentae
💚 #Anthropology #Bioethics #GlobalHealth #Equity #ReproductiveRights #HumanitarianAction #ClinicalResearch #HumanRights #Cinema
Kavli Centre for Ethics, Science, and the Public
@ethicsscipublic
Fostering conversations about the ethical issues raised by science, led by @genomethics
Mykhailo Arych
@mykhailoarych
Cincy Kids Genomics
@cincykidsgenomx
Accelerating discovery & knowledge of #GeneticsOfTime: circadian rhythms, premature birth, development, & rare disease. PRECISION GENOMICS MIDWEST: cincypgm.com
Giorgina Maxwell (she/they)
@giorginamaxwell
Genetic Counsellor & PhD student working in Glaucoma Genomics. Living & working on Kaurna Land. Views are my own 🧬🐕🌊🏳️🌈 @giorginamaxwell.bsky.social
Alida de Flamingh, Ph.D.
@adeflamingh
Conservation genetics, eco & evo biology, ancient DNA, paleogenomics, modern&ancient elephants, ancient fish, lions, canids: personal views 🇿🇦 (she/her)
Erica Monteferrante
@ericamontef
MA Bioethics @UMontreal. BA religious studies @mcgillu. Interests: moral deliberation, AI Ethics & research ethics. Top interest: pizza. Pronouns: she/her.
Dr Jane Tiller
@janemtiller
Dr by PhD. Ethical, Legal & Social Adviser, Public Health Genomics, Monash University & Senior Project Coordinator, Aust Genomics #ethics #genetics