New tattoo I got on Lou Gehrig Day. On the middle finger (of course) A little more creative way to say "F**k ALS!"

“I see a world where we keep exploring how to serve others, how to care for them, and how to love our human family.” - Steve Gleason - "Live Impossible" We have learned a lot over the last eleven and a half years. ALS is not a one size fits all disease. Every individual and family are unique.

MrBeast MrBeast hear me out- I’m 34 with a terminal disease called #ALS (don’t I look just like Lou Gehrig?). Let’s get your $ toward a cure for a devastating, underfunded disease that kills someone every 90 minutes. You can be the next #icebucketchallenge.

Since being diagnosed with ALS almost 18 months ago, the best part has been meeting amazing ALS warriors and learning from them. We all become family! The worst part is losing those same people to this horrible disease. So many people in just the last 1 1/2 years.#EndALS

Why might #ALS patients want to try #Nurown if U.S. FDA approved? For a chance … To breathe on their own. To hold their grandchild To use the bathroom on their own. To dress themselves unaided To not aspirate their own saliva and die of pneumonia. #tuesdayvibe #Adcomm

I really wish ALS patients lives mattered to U.S. FDA Never, ever try to tell someone with a terminal illness what is or isn’t hope! #Shameful #FailedByTheFDA #OurLivesMatter #ALS

My only grandchild, Hazel. 8 months old. Want to know why I was hoping for Nurown approval? HER, to watch her grow up. I'm not a medical professional, but I would try ANYTHING if there was even a chance of more time with her.

Just to bring a smile to your day. #grandmalife #endALS

Happy Halloween 🎃 #ALSAwareness #EndALS #HerALSStory #FuckALS #ALS #LifeWithALS #Accessibility #Disability #MND #MotorNeuroDisease #ALSSucks #MNDAwareness #FuckMND #DisabilityAwarenesss

Thx Inside Edition for telling the story of #ALS & how it's striking so many young people like Brook & the women in Her ALS Story -- decades earlier than normal. Brooke Eby is a hero for raising awareness & doing so with courage, intelligence & wit. insideedition.com/for-brooke-eby…

BREAKING NEWS: I am freaking out with excitement to share that No Ordinary Campaign will be streaming on Prime Video May 28th! Please share the trailer below with everyone so that, together, we can change the world. #ForLoveAndLife #NoOrdinaryCampaign

Film profiles Brian Wallach's fight against ALS Watch the full video here: tinyurl.com/yfhdawmh Brian Wallach

Today is Lou Gehrig's birthday and the anniversary of his ALS diagnosis. Those of us who have been on a similar journey never forget the date of diagnosis... but the birthdays of heroes should always be celebrated. Happy birthday, Lou! #livelikelou #als #alsawareness

Brian and Sandra are the epitome of hope. When Brian was diagnosed with ALS, he turned tragedy into action by launching I AM ALS and leading a movement to find a cure. I’m inspired by these two—and after you hear their story at the 2024 Democratic National Convention, you will be, too.

Triad ALS patient hopes to revive Ice Bucket Challenge momentum 10 years later trib.al/3bwzzhp

Meet ALStogether 🧡 join us at the link in bio

If your Christianity causes you to be offended by someone asking the most powerful person in the country to be merciful towards the powerless, then you have deeply, deeply misunderstood the teachings of Jesus Christ.

Eric Dane Announces He Has Been Diagnosed with ALS (Exclusive) people.com/eric-dane-diag…

FULL INTERVIEW: Former "Grey's Anatomy" star Eric Dane speaks out for the first time in a television interview about his battle with ALS, a degenerative neurological disorder. "I don't think this is the end of my story." ABC News News' Diane Sawyer reports. abcnews.link/HE9CLvt

86 years ago today, Lou Gehrig gave his "Luckiest Man" speech and brought international attention to #ALS. His legacy continues to raise #ALSAwareness and support in the search for a cure.