📢 Save the date! We are hosting an event to celebrate patient and public involvement in research with @Brainunitwales 🧠 Working together for better brain health 📅 Saturday 20 April from 12:00 📍 Hadyn Ellis Building 🎟️ Register now betterbrainhealth24.eventbrite.co.uk

🧵Welsh government want your views on a new mental health strategy. Here’s what some of you told us needs to change for a healthier, happier Wales. Do you agree? 1/2

One size does not fit all. Different people may need to see different specialists at different points in their care. These optimal care pathways offer a framework for good care that can be adapted to the individual’s experience and needs. bit.ly/3l7WOG5

Shout out 📢 to Beacon for Rare Diseases for helping to empower patients living with, and advocating for #RareDiseases #RareDiseaseDay #superficialsiderosis

Yes that's me collecting clutter.

Please sign the Right to Rehab petition now and help make it mandatory that there is a rehabilitation lead and strategy in every hospital and health board. Thank you. #RightToRehab #RehabLegend bit.ly/3InI9OY

Apply now! We are excited to be working with the MND Association to recruit an Involvement Lead to support coproduction work and other activities in both organisations. Find out more about the role here: bit.ly/3P4ltHr and apply now. Closes 13/03/2024 MND Association

I contributed to the Living Well With Joint Pain book produced by Bridges Self-management and can recommend taking part in the TIPTOE study.

The nine unexpected joys of living with a rare disease healthandcareresearchwales.org/about/news/nin… Let's do more for rare diseases.

Next week is #BrainAwarenessWeek. We are joining with Neurological Alliances across the UK to share #OneNeuroVoice and raise awareness of organisations across the country that support people living with neurological conditions. Keep an eye out for our posts and get involved.

We are definitely off the starting blocks now. Still time to join in to this stroke rehab trial.

Please complete the March-April #NeuroLifeNow survey now: bit.ly/3T1aJuM Thank you! The survey should take between 10 and 20 minutes to complete. #MyNeuroLife

Proud to be associated with Hope For The Community. Please read.

Our #HOPE4ABI feasibility RCT is almost finished! Stay tuned for participant #feedback on the #sexual and #mental #wellbeing support received as part of the 8-week #digital programme🧠🫶 Centre for Intelligent Healthcare Hope For The Community CIC Headway - the brain injury association Relate C&W brainstrust R&D at UHCW National Institute for Health and Care Research

It's the hidden and invisible disorders and deficiencies that are the greatest challenge.

HOPE4ABI …tfeasibilitystudies.biomedcentral.com/articles/10.11…

Great feedback. So proud to be associated with HOPE4ABI.

Great news! CIH researchers Dr Hayley Wright and Aimee Walker-Clarke (Professional Account) have won the #runner #up prize for their #HOPE4ABI poster at the BABICM conference this week! They will present their National Institute for Health and Care Research-funded results in full at next year's conference! Congrats Hayley and Aimee 😊

To the survivors, you'll get a lot of unsolicited advice about how to handle your #braininjury. Remember, brain injury can be complex & nuanced. To those who mean well, band-aid advice & trite platitudes will cause more harm. #brainstormforbraininjury #invisibledisability

youtu.be/v2O4SuSxWzg?si… Proud to be part of the Campaign.