Impatient Zero (@zero_impatient) 's Twitter Profile
Impatient Zero

@zero_impatient

Adult Ewing’s Sarcoma patient with slow-growing recurrence. Here to help and get help.

ID: 1460713852375642114

calendar_today16-11-2021 20:58:25

10 Tweet

16 Followers

103 Following

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There seems (to me) to be good reason to suspect my immune system has responded to this (short DFI) Ewing’s Sarcoma recurrence. First presentation was very aggressive; this recurrence has been “indolent.”

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Among the questions I have: what is the potential for high-dose chemo w stem cell replacement in my case? One doc advises me that this approach has been largely abandoned in N.America. My amateur google research indicates otherwise. Hope to hear any/all informed thoughts

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I will talk to anyone credible in or adjacent to the field of #Ewings #Sarcoma research about my case (no for-profit scammers): Aggressive presentation followed by “indolent” recurrence in an adult.

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via The New York Times in which an artist discussing her own medical challenges reinforces the notion that cancer is something to be self-conscious about nytimes.com/2022/03/28/art…