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Take action this #EpilepsyAwarenessMonth (Australia/Canada) - ask your healthcare provider about #SUDEP + how you can reduce your risk #SUDEPsavvy2BSUDEPsafer 💜 bit.ly/3s6Mqga

With my beautiful boys before Felix (right) died of #SUDEP . I have a piece in The Observer Magazine today about dealing with this unimaginable loss. Thank you to Harriet Green for publishing. bit.ly/3tGiwj7 @unbounders Hadley Freeman @mathewclayton.bsky.social

Just 4 days to go! 💜 #PurpleDay2021 #PurpleDayEveryDay #SUDEP #epilepsy Purple Day purpleday4epilepsy 🌎💜

For Purple Day + every day, let's remember to include #SUDEP in the conversation when we talk about #epilepsy + #EpilepsyAwareness 💜 Thank you, Cassidy Megan, for all you do to encourage this 💜 youtube.com/watch?v=eBkTWr…

Terrific news Harvey Epstein! Thank you for helping to bring vital information to those of us living with #epilepsy, our families and friends. There are ways we can try to reduce our risk, so discussing #SUDEP with health professionals is extremely important💜 Purple Day

Today is Purple Day, a grassroots effort dedicated to increasing awareness about epilepsy. On March 26 every year, people wear #purple and host events in support of #epilepsy awareness and SUDEP Aware. In the evening, City Plaza will be lit purple in support of Purple Day.

Raising awareness for Purple Day and every day in loving memory and celebration of all those we have lost to #SUDEP #epilepsy. Always in our hearts 💜 #PurpleDay2021

In celebration of Purple Day we are finding homes for the last 4 of our handmade Olly bears. 2b included in the prize draw, tell us why you want an Olly bear + confirm you reside in Canada/USA via bit.ly/3d5XCmW by END OF DAY March 31st💜 #PurpleDay2021 #SUDEP #epilepsy

Early onset epilepsy and sudden unexpected death in epilepsy with cardiac arrhythmia in mice carrying the early infantile epileptic encephalopathy 47 gain‐of‐function FHF1(FGF12) missense mutation onlinelibrary.wiley.com/doi/abs/10.111… ORIGINAL RESEARCH #epilepsy International League Against Epilepsy @wileyneurosci

Our perspective on SUDEP counselling during COVID times #SUDEP SUDEP Aware SUDEP Action Sebastian Ortiz, MD

Join us this coming Friday, September 24th at 8am EST. At our #epilepsy rounds: Dr. Lysa Lomax will be presenting on "The genetics of SUDEP" Lysa Lomax (she/her) Queen's University #SUDEP #WesternU CNS #neurotwitter

4 #WorldGratitudeDay we're particularly grateful to @DrRichardShep for bringing greater awareness/understanding to Sudden Unexpected Death in #EPilepsy (#SUDEP) in his fascinating memoir "Unnatural Causes" (ch15) 💜 drrichardshepherd.com

Join our 10/14 Facebook Live to learn about new advances in stopping #SUDEP, including new technologies such as #seizure detection and seizure prediction devices. Details here: fb.me/e/383tp4toz

We invite caregivers of a child with #epilepsy to help ID how providers can best communicate information about #SUDEP. Danny's parents and so many others did not hear about SUDEP until too late. Participate by 10/29 via this QR code or link: redcap.duke.edu/redcap/surveys… Please RT!

Tomorrow ໊ EDT, free online workshop re #SUDEP for patients w/#epilepsy + their caregivers w/Dr Peter Carlen from TO Western Hospital. To register + more info: bit.ly/2ZwtSgi University Health Network Krembil Brain Institute

Join the worldwide effort to raise awareness of #epilepsy + #SUDEP together💜 Use the hashtags #EpilepsyDay #epilepsyawareness #sudepawareness in your social media postings to help spread the word 💜

WEAR PURPLE TODAY 💜 in support of international PURPLE DAY for EPILEPSY! Help bring more awareness to #epilepsy and #SUDEP (Sudden Unexpected Death in EPilepsy) by encouraging its discussion and sharing #PurpleDay2022 postings. 💜Purple Day Purple Day® Every Day

CONGRATS 2 SUDEP Aware research grant awardee Antis George 4 his recent #SUDEP #epilepsy publication + obtaining his PhD UCalgaryMedicine + MANY THX 2 YOU 4 helping make this possible (ur generous donations, diligent fundraising efforts + steadfast support) 💜​authors.elsevier.com/c/1gqY7_fK6VVB7

#alwaysinourhearts, today, #sudepactionday2023, and every day 💜 sudep.news/in-memoriam-ca…

Key point: Centrally-mediated respiratory depression may increase the risk of SUDEP doi.org/10.1111/epi.17… #SUDEP #amygdala #apnea #tonicclonicseizures #diffusion #MRI #NODDI #FocalEpilepsy International League Against Epilepsy @epilepsiajourn Wiley Neuro