As we celebrate the 10th anniversary of the CureSMA Foundation of India, we are proud to announce the launch of our new podcast, “SMArtitude”—the unstoppable attitude. podcasters.spotify.com/pod/show/cure-…

On World Disability Day, let's reaffirm our commitment to creating a world where individuals are valued for their abilities, talents, and potential, irrespective of their challenges.

Two-year-old has only 15 days of medicines left Parents of Aakriti Singh, who has rare spinal condition, left in limbo following SC stay on a Delhi HC order allowing govt aid for special medicines mid-day.com/mumbai/mumbai-… Mid Day; Alpana Sharma

Akriti & many children Cure SMA Foundation of India 🇮🇳 r sufferin frm this gruesome disease , despite an approved treatment available in India our children r dying as these treatment r not affordable #Risdiplam #Zolgensma can save lives Devendra Fadnavis PMO India Narendra Modi Ministry of Health Jagat Prakash Nadda

HEALTHCARE FOR ALL! Let's celebrate our right to healthcare and request #UrgentTreatmentAccess4SMA in India! With collective action, we can create a brighter future Ministry of Health President of India #right2life #right2health #curesmaindia #battleagainstSMA #acchedinkabayenge

On this Rare Disease Day, we honor the strength, resilience, and courage of all those living with Spinal Muscular Atrophy (SMA). Your journey is one of extraordinary determination, and your perseverance inspires hope and progress in the fight against rare diseases.

We are honoured to welcome Manasa Varanasi,Femina Miss India 2020,as the Brand Ambassador of #CureSMAIndia! She joins us in raising awareness for #SpinalMuscularAtrophy (SMA) and supporting thousands of families across India in our #BattleAgainstSMA Welcome to the family, Manasa!

Let’s create awareness to prevent SMA… join us in #RunforSMA to create awareness , it will help to prevention of the disease , so we can avoid future generation suffering #Runforkids Cure SMA Foundation of India 🇮🇳 Roche Novartis Biogen

Dr.Radha Rama Devi, Senior Geneticist, Dr.Giriraj Chandak, expert on Rare Diseases, CCMB GIRIRAJ R CHANDAK & our SMArt Warriors Pratyush n Anushka for joining us in this event. See you on 10 Aug 2025, 6AM in Gachibowli stadium to join the Run!!! #SMAAwareness #RunForCause #RunForSMA

Meet Pranjali, a #SMAWarrior! Despite Spinal Muscular Atrophy, she's found strength & joy in painting. "Art makes her feel alive!" Let's celebrate her resilience & creativity this #SMAwarenessMonth! 💕🎨 #CureSMA #SMArt

THANK YOU to everyone who ran with us for SMA awareness! 🙏💪 Your energy & support mean the world to the SMA community. Special thanks to our esteemed guests for their inspiring presence! 🙌 Every step counts towards a better future for SMA warriors! 💕 #RunForSMA #SMAawareness

Meet Dr. Abhinand from Chennai — an SMA Type 2 warrior who turned challenges into milestones From living with SMA to earning a PhD in Bioinformatics & becoming an Assistant Professor, his journey proves strength isn’t in steps, but in courage. 💪 #SMAAwarenessMonth #LifeWithSMA

Dreams shouldn't be stopped by stairs 🚫! Muhammed Bilal, with SMA Type 3, needs remote job opportunities for stability, dignity & life-saving medicine. Accessibility isn't optional, it's freedom! 💪 #SMAAwarenessMonth #AccessibilityMatters #InclusionForAll

Happy Independence Day! 💫 Let's break free from limitations & unleash our strengths, just like Zaid, young #SMArt warrior who's reaching for the stars! Freedom to live life to the fullest,with accessibility and inclusion for all! 🙌 #IndependenceDay #SMAwareness #InclusionForAll

SMA awareness saves lives! 💜 3 life-changing treatments exist: Zolgensma, Risdiplam & Spinraza. Crowdfunding spreads awareness, builds solidarity & gives SMA kids hope. 🌸 Together, let's turn awareness into action! ✨ #SMAAwareness #CureSMA #HopeForSMA

Meet 8-month-old Yuvaann 💙 fighting #SMA Type 1 with courage. SMA is a genetic disorder affecting muscle movement—early diagnosis & genetic testing can change lives. Watch his inspiring journey & spread awareness 🌸 #SMAawareness #SMAwarriors

Heartfelt thanks to FICCI NITI Aayog & CDSCO_INDIA_INFO for including Ms Alpana Sharma, Co-Founder of Cure SMA Foundation of India. Grateful for the opportunity to share patient voices & work towards a better future for SMA families 🙏 #SMAIndia #PatientCentricity

On behalf of every child n adult living wid SMA, v express our heartfelt gratitude 2 d Hon’ble Chief Justice of India, Hon’ble Justice Surya Kant n Hon’ble Justice Joymalya Bagchi n delivering an order dat upholds d dignity, rights n respect 4 persons wid SMA n other PwDs.

On the occasion of International Disability Day @Curesmaindia is super excited to present the preview n soft launch of e-swayam-Digital Accessibility map of India in Hyderabad today. Ministry of Social Justice & Empowerment, GOI Ministry of Information and Broadcasting Ministry of Health NITI Aayog SDGoals SDG2030 MEITY Dept.for Empowerment of PwDs, SC and TG persons,TG Divyang Empowerment

Heartfelt Gratitude 2 d Govt of Kerala! 🙏 Cure SMA Foundation of India 🇮🇳 expresses its deepest thks 2CM Pinarayi Vijayan FM K N Balagopal &HM Veena George 4 d historic allocation of ₹30 Crore 4 Spinal Muscular Atrophy treatment #KeralaGovernment #SMAAwareness #HistoricBudget" Ministry of Finance