Our article examining the extent to which people with #hypermobility are at risk of Long COVID was just published in BMJ Public Health, an open access journal. bmjpublichealth.bmj.com/content/3/2/e0…

Prof Iwasaki at the HHS LC Roundtable yesterday💙

🆕️ The Diagnostic Burden of Spontaneous Intracranial Hypotension: Imaging Volume and Specialists Involvement Prior to Diagnosis ✒️ Parnian habibi et al. via AJNR 🧠💧 #spinalCSFleak #CSFleak #SIH #CSFVF #NeuroRad #NeuroX ajnr.org/content/early/…

For decades, people with #MECFS faced stigma & little research funding. Now, NIH spotlights ME/CFS in its feature on mitochondria, a step toward recognition. Learn why this connection matters for ME/CFS, #LongCOVID & related conditions. Read today's blog: bit.ly/4mjda8g

Sjögren’s disease, an autoimmune condition, can cause pain #PainAwarenessMonth #PainAwareness

From Emerge Australia: "The AusME Registry is making a real impact! The AusME Registry is now supporting 25 research projects across Australia - helping scientists unlock the biology behind ME/CFS & long COVID" Get involved here: emerge.org.au/get-involved-i… #MEcfs #LongCovid

How quickly #mRNA degrades is linked to autoimmune disease risk! ➡️ We usually think of gene activity in terms of how much mRNA is produced. But a new study shows another key factor: how fast mRNA degrades. 1/

Absolutely agree - few more yet to be elucidated underlying conditions will include platelet storage disorders too.

1) Had a look at this recent paper in BMJ Public Health that reports that generalized joint hypermobility (GJH) is a risk factor for Long Covid. Some critical comments 🧵

Now out - I have a chapter with the late Gemma Carey on the social impacts of #LongCovid. Let’s hope many medical and healthcare professionals and educators learn from this important volume

STAT3 Regulates Collagen-Induced Platelet Aggregation Independent of its Transcription Factor Activity #MECFS #LongCovid pmc.ncbi.nlm.nih.gov/articles/PMC44…

This reflects my own experience (I do circa 130 hours of care the average week), but somehow I still found this shocking. Carers for v severe ME carry HUGE responsibility, with little to no support. The support we have often comes at a cost, which adds financial pressure 🤯

The NIH in the US have highlighted a recent ME/CFS study they funded: "Overactive immune responses in ME/CFS" nih.gov/news-events/ni… #MEcfs #CFS

I don't think people even vaguely understand how profoundly serious this is. It's ironic that while we were thinking that it was the CO₂ in the atmosphere that was going to doom us, it could actually be the CO₂ in the water. 👀

Healthy indoor air is a human right! To get clean air infrastructure everywhere, we need organizations, universities, schools, healthcare facilities, communities, etc, to sign the document below. Please spread the word! Global Pledge for #CleanTheAir: aas.eventsair.com/healthy-indoor…

Poor science literacy among the general public is a major problem. In a large U.S. national survey, only 64% of Americans understood the statistical concept of probability, only 51% correctly defined a scientific experiment, and only 23% were able to correctly describe the

Leaders who “run away from major challenges risk being trusted by no-one.” Aust is a small nation, but glad most support cutting emissions & that our PM is pushing back on high-profile science-deniers over climate change. apple.news/ARTh2CfbsQrCt8…

This exploratory study identifies autoantibodies directed against EBV mimicking arginine-rich sequences in human proteins, suggesting a potential role for molecular mimicry in the pathogenesis of PCS and ME/CFS.

High-Resolution CT in CTD-Interstitial Lung Disease A systematic review and meta-analysis examined the role of high-resolution computed tomography (HRCT) in diagnosing and characterizing interstitial lung disease (ILD) associated with connective tissue diseases (CTDs).

Great vid - I actually wasn’t aware of researcher Maureen Hanson’s personal connection to ME/CFS. Sadly, most researchers only get into the field when there’s some kind of personal link. We have to wait 4 great scientists or their kids 2get sick - what a horrible thing to say.