#Lifesavingdrugs4cf #Kaftrio
@sade_39
We Need Everyone's Help
In Our Campaign For Access To ALL Precision Medicines For People With CF In The UK. Please join our FB group.
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ID: 841962267239407617
https://www.facebook.com/groups/1413623745325543/ 15-03-2017 10:40:22
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Wow. Just wow 🙏 Matt Hancock Blake Dark dailymail.co.uk/health/article…
So pleased and proud as a journalist that after an 18 month campaign in Daily Express with 189 articles on CF and telling the stories of 105 different #cysticfibrosis sufferers we can see this day. #dailyexpresscrusade4cf has been best thing I’ve ever been involved in. #kaftrio
.Matt Hancock Thanks You told me you’d help & you did You’ve given my daughter Jess the chance to have a normal life where she can live with CF not die of CF Vertex Pharmaceuticals your amazing medecines will change lives forever #Kaftrio is a miracle Crispin Blunt Paul Scully💛
Today was most amazing day NHS announced people with CF will receive #Kaftrio the game changing medicine that’s closest thing to a cure we can hv! Thank you Blake Dark Matt Hancock my mum Ali Dillon 💙 NHS @nhsCFwarriormum Chris Riches & all who campaigned! I’m off to plan my life!
To all who don’t/won’t wear a mask, look at this young lad, Kaden Barton, He has cystic fibrosis He said “I’ve been wearing masks like this one every day Surprisingly it does not impact my oxygen levels! Wear a mask.” Be like people with #cysticfibrosis #WearAMask Cystic Fibrosis Trust💛
#lungfunction test update! It’s been 1 week on #trikafta #Kaftrio This drug is truly a #miracle Thank you Vertex Pharmaceuticals #cysticfibrosis #lifechanging #newzealand #canada #scotland #wales please make this drug available youtu.be/rttYTSZKfFk
Six months apart. Three kgs heavier, 6cm taller and no longer poorly every few weeks 💕 thank you Vertex Pharmaceuticals Matt Hancock NHS England Media Orkambi has changed our lives! Can’t wait for #Kaftrio 🙌🏻 #cysticfibrosis
#16 days or less till we get #kaftrio I can’t bear the wait anymore After nearly 20 years of waiting for this day, when #Cysticfibrosis can be a disease you live with, not die from, .Healthcare at Home🚚📦 from .Vertex Pharmaceuticals .King's College NHS 🙏🏻hope your all ready with our #kaftrio
2day I hv another success story Matt Hancock Blake Dark Joe Barnes 17, had years of declining health. He was too ill to be listed 4 transplant & spiralling downhill. Now he’s looking 4ward to going back 2 school he’s putting on weight & according to mum back to his cheeky self!
express.co.uk/news/uk/132606… Daily Express delighted to report this story after 18 months of writing about Kaftrio’s existence & dreaming of a deal - it’s finally here, on the NHS & will now start to be rolled out!! Amazing!! #dailyexpresscrusade4cf Carlie Pleasant - Motherhood vs Cystic Fibrosis 🫁 Cystic Fibrosis Trust
Chris Riches Daily Express This couldn’t have happened without your amazing campaign which helped us win our fight for this miraculous drug #Kaftrio will give Jess hope for a longer healthier life What more could I ever give her I love you Jessica So happy for you🥰
Heartbreaking. We all Daily Express are praying Ben travels to Geneva soon and gets his lifesaving double lung transplant. He should be able to get it here on #NHS. Cystic Fibrosis Trust Matt Hancock Blake Dark Boris Johnson Royal Brompton and Harefield #dailyexpresscrusade4cf @nhsuk express.co.uk/news/uk/134894…
Loz's time is short. #trikafta can save her. If Loz lived where Vertex Pharmaceuticals saw a mkt, she'd have 'compassionate' access. Loz lives in #SouthAfrica where life expectancy w #cysticfibrosis is 21 & there's not enough profit. But she CANNOT just be left to die. That's why today..