It may not work for everyone, neither may chemotherapy. But we have the right to life, we have the right to try. #NUROWN NOW for the world.EU Medicines Agency U.S. FDA Dr. Stephen M. Hahn Joe Biden BrainStorm C Lebovits Mary Kay Turner Ralph Kern Ursula von der Leyen hwr

Lap tray setup using the #XboxAdaptiveController as well as joysticks and switches from Warfighter Engaged. Base of the tray has a cushion on it and was $28. #A11Y #SoEveryoneCanGame #XAC #xbox #AdaptiveGaming

Je vous invite à partager ce Tweet, Franco Partage Francis Drouin Vincent Desmarais-Adam Carol Hughes Jenica Atwin for Fredericton Patrice Roy Alain Bérard Société de la SLA du Québec | ALS Society of QC Guy A Lepage @RichardVeenstra Julia del Carmen Sánchez The Neuro Eddy K. Lefrançois @HMcPhersonMP @MarcSerreMP Chantal Lanthier Alain Bérard #SLA

There was a 1st survivor of HIV. There was a 1st survivor of polio. There was a 1st survivor of then terminal cancers. There will be a 1st survivor of ALS. Pass. It. On.

💻Respect women online. 💼Respect women at work. 🏠 Respect women at home. 🏫Respect women at school. 🏛️Respect women in politics. 🚗Respect women on the road. 🚶‍♀️Respect women in the streets. 🚈Respect women on public transport. Respect women EVERYWHERE. #orangetheworld #16days

FDA Approval for Life-Saving Nurown for ALS Patients - Sign the Petition! chng.it/ZSYfxh5Y via Change.org Canada

“Rolling review” and “interim expedited approval”: used by HC to approve the vaccine based on “solid evidence”. “Solid evidence” also now exists for amylyx to treat ALS: let’s go HC - you are on a roll and can do the same thing for ALS

The ALS patient community in Canada will not be quiet anymore. Even on Christmas Eve. Watch the news clip about Norman MacIsaac and the need for an accelerated treatment approval process here. montreal.ctvnews.ca/video?clipId=2…

#BREAKING: ~1,000 Canadians died of ALS in 2020 and another ~1,000 Canadians received a new diagnosis. These numbers are the same as last year and the years before that. 2020 also marks yet another year that Canada’s governments took no meaningful action to combat ALS.

Big thank you to CBC Hamilton CBC News for sharing this story online and on the World Report that brings attention to the issues of access to promising therapies for the ALS community. bit.ly/3obIbxZ #EndALS

This was the headline from 2016. Canadian families are still waiting for action to be taken. #ItsTime for Canada to join the global movement to #EndALS Justin Trudeau Patty Hajdu Trudeau urges support for ALS research as Commons honours Belanger globalnews.ca/news/2567737/t…

MPs and #ALS community agree on need to get treatments like Amylyx’s AMX0035 to patients faster! Marie-Hélène Gaudreau, députée Francis Drouin Jenica Atwin for Fredericton Todd Doherty @HMcPhersonMP ALS Canada Société de la SLA du Québec | ALS Society of QC Kelsie Snow Steven Gallagher Elias Makos Patty Hajdu hilltimesresearch.ca/mps-and-als-pa…

The right to die by assisted suicide has made it to Canada’s top court twice (1993 & 2015). BOTH cases were brought by someone with ALS. We have invested so much in Canada on assisted suicide laws and infrastructure. And so little on ALS research and treatment development.

If 1,000 Canadians were trapped deep in a cave with rising waters and diminishing oxygen, how much would we spend to keep them alive and rescue them? $10M? $25M? $50M? More? Every year 1,000 Canadians ARE trapped in a cave like this. It’s called ALS. We must fund ALS.

The failure to grant priority review status to AMX-0035 (Relyvrio) was a betrayal of the #ALS community in Canada and internationally.#MND #EndALS #ALSbetrayal ALS Canada Société de la SLA du Québec | ALS Society of QC Steven Gallagher ALS Action Canada Mario Hudon Francis Drouin @HMcPhersonMP more-than-als.com/?p=903&fbclid=…

People with ALS can’t wait for lengthy drug reviews and access negotiations - each day is loss - loss of function and loss of life. Canada must do better. Health Canada and PHAC ALS Canada

Today, in an amazing victory for the Unite to End MND and the Sunday Express Fund the Fight to Cure MND campaigns, Boris Johnson has told us he’s given the go ahead for £50 million funding to research a cure for Motor Neurone Disease - like Doddie Weir OBE we are over the moon!

#ALS Caucus 🇨🇦 : Can we match this? CAD $84 million for ALS research! @HMcPhersonMP Jean-Yves Duclos Francis Drouin Todd Doherty Marie-Hélène Gaudreau, députée Jenica Atwin for Fredericton Carol Hughes @JudySgroMP Steven Gallagher Tammy Moore ALS Canada Société de la SLA du Québec Mario Hudon ''Gérant d'estrade'' #MND #EndALS

Imagine having cancer, knowing there is chemo available, but because it hasn't helped 100% of the patients it was given to, you don't even get a chance to try it. Doesn't seem right does it? Welcome to #ALS and the fight for #NUROWN We deserve better!