70% of people with #neuromyelitis optica spectrum disorder #NMOSD have cognitive changes, with impairments in two or more cognitive tests of the BICAMS. Study on 40 people with NMOSD from 🇲🇽 MIGUEL ANGEL MACIAS ISLAS CUCS Universidad de Guadalajara ▶️ journals.sagepub.com/doi/10.1177/20…

MS vs NMO Attacks explained by Aaron Boster MD. NMO attacks are often more severe with lesser improvement after steroids. youtu.be/kWjWLnFInWc?si…

➡️ We are sharing our last work on MOG antibodies restricted to CSF (positive in CSF and negative in serum): interesting findings ‼️

Step into the world of patient advocacy w/ Leda Bresnov. We discuss her journey following an NMO dx, from her work at The Sumaira Foundation to how EUPATI Patient Academy is giving her the tools to shape the future of healthcare. #neurotwitter #nmo Genentech podcasts.apple.com/us/podcast/epi…

#NMOSD is associated with unpredictable attacks, also known as relapses, which can lead to long term disability like vision loss or paralysis. Explore what other symptoms are associated with this #RareDisease below. #NMOAwarenessMonth

Thank you The Assistance Fund (TAF) Advocacy for welcoming me with so much warmth & love in Orlando today! 🩷🧡💛 Inspiring to be with the entire org that works tirelessly to ensure #raredisease patients like myself get access to therapies they need & deserve! And the #Barbie song was perfect! 😉

New article posted on Rare Disease Advisor #NMOSD: "Potential New Biomarker Identified for AQP-4 Negative NMOSD." Read the full article here: buff.ly/3IEezoE #neurology #raredisease

Neuromyelitis Optica Therapies by Aaron Boster MD youtu.be/pMLnLS0U7F8?si…

Delighted to share our dedicated #MOGAD clinic offering multidisciplinary care and access to the latest clinical trials at our Minnesota, Arizona & Florida campuses John J. Chen, MD, PhD Sebastian López Cristina Valencia-Sánchez Mayo Florida AutoImmune Neurology Group mayoclinic.org/departments-ce…

"My biggest fear was losing my eyesight. 10 years ago, I was diagnosed with #NMOSD. I lost 90% of my vision after my 2nd relapse. It was scary but because of my inner strength, positivity and of course, my husband's support, I have regained my vision," Sonali 🇮🇳 #NMOmilestone

At TSF's 1st Global Meet & Greet, we we were joined by 21 patients from Australia, Bulgaria, Denmark, Germany, Holland, India, Jamaica and the US. Happy #NMO Awareness Month & Happy Easter! Thank you for continuing to illuminate #NMOSD & #MOGAD with us 🩷🧡💛 #10YearsOfTSF

For #NationalPetDay, Marie Abrego & AnneMarie joined us to explore the powerful bond between pets and their owners. Hear their stories and insights on the benefits of pets and dealing with loss. The Sumaira Foundation Genentech #nmo #nmosd #mog #mogad #PetsofTSF podcasts.apple.com/us/podcast/epi…

🇫🇷 "Le diagnostic est tombé en novembre 2016. Ma neurologue m’annonce au regard de mes IRM et de la dernière prise de sang que je n’ai pas du tout une SEP mais la maladie de Devic avec l’anticorps #MOGAD" Nelly Lisez l'histoire inspirante et colorée ici: sumairafoundation.org/lhistoire-de-n…

For #MOGAD Awareness Month, we had a conversation today with Eoin Flanagan, of Mayo Clinic, who spoke to us about assessing the diagnostic utility of cerebrospinal fluid myelin oligodendrocyte glycoprotein antibodies testing. Stay tuned!

Join us for a riveting chat delving into Roselyne's extraordinary journey from misdiagnosis to med school while living with #NMO. She shares insights on navigating the dual roles of clinician & patient with grace. The Sumaira Foundation Genentech #neurotwitter podcasts.apple.com/us/podcast/epi…

Your story is an asset. Alanna Yee talks about overcoming the fear of sharing our w/ advice about starting small & framing your narrative. Tune in to hear how she turned her struggle into a platform for change. The Sumaira Foundation Genentech Alanna | Where Are My Pillows podcasts.apple.com/us/podcast/epi…

Physical therapy isn't just exercise; it's a lifeline. Learn more from Dr. Gretchen Hawley PT, DPT, MSCS in our latest episode. The Sumaira Foundation Genentech #nmo #nmosd #mog #mogad #ms #pt #TSF_MoveForNMOG podcasts.apple.com/us/podcast/epi…

A study by Michael Levy, MD, PhD et al in Multiple Sclerosis and Related Disorders Journal revealed how #qualityoflife is impacted by #NMOSD. Read the summary: sumairafoundation.org/summaries/quan… #raredisease #disability #QoL #QoLscores

What are the benefits of shared decision-making? 🩷 Better health outcomes 🧡 Increased satisfaction with care 💛 Reduced anxiety 💚 Treatment adherence 💙 Personalized care 💜 Reduced healthcare costs To learn more about shared decision-making, visit sumairafoundation.org