What's the relationship between #sleep and #MND? How can people living with MND and their carers get more rest in 2021? It was great to work with Carol Birks David Ali and the team at MND Australia on this blog, and I hope it helps:

We welcome the recent announcement by the #NDIS Minister, Linda Reynolds, to pause the introduction of NDIS independent assessments. Read our full joint submission on independent assessments as part of the Neurological Alliance Australia: bit.ly/3vePicb

#MNDWeek21 People with MND don't have time to sit on a waiting list for a My Aged Care package. We need to put pressure on the federal Government to implement a key recommendation from the Royal Commission - to urgently clear the home care package waiting list. #StillWaiting⤵️

Don't miss Four Corners tonight on the ABC at 8.30pm, featuring The Scott-Morgan Foundation who lives with #MND

I’m here at Parliament House for global MND day with my colleagues, and it was lovely to hear Harrison share his mum’s story, Sharon Kirkwood, about living with #MND, the tough things and dealing with the changes, but also the power and joy of having family. ⁦MND Australia⁩

Great to be Australia today #GlobalDay with MND Australia to raise awareness of #ALS #MND and the importance of access to care, support and information and hope through investment in research #ALSMNDWithoutBorders

"There's been an explosion of research." Don't miss A Current Affair TONIGHT on how funding from the Ice Bucket Challenge has fuelled unprecedented levels of #MND research. 9now.nine.com.au/.../f96fe551-e…...

Looking forward to presenting with Ben O'Mara and Ruth Quaken on Fri 3 September at 10th National MND Australia Conference for professionals and providers supporting people living with #MND. A great opportunity to learn, share and network so register today shorturl.at/iJYZ9

⏰Only 1 week to go until the online 10th National MND Australia Conference! Register here: bit.ly/3jMr5Wl For health professionals, disability & aged care providers and anyone with an interest in support and care for people living with #MND.

Date claimer; Australian and New Zealand MND Research Symposium - co-hosted by FightMND and MND Research Australia 4 - 6 Nov 2021 Online meeting covering all MND research from basic studies to care MND Connect session on the 6th Registration and abstract submission details coming soon

⏰There's less than 24 hours to go until 'MND Connect: Research Live' kicks off! ➡️Sat, 6 Nov @ 10am AEDT Join our expert panel online to hear about advancing better #MND treatments. Register here: bit.ly/3vwuQVh or head to MND Australia's Facebook page to watch live.

BREAKING 🥳 WE DID IT! The GOV.UK has now agreed to commit £50 million to fund specific research in to motor neurone disease in response to our #United2EndMND campaign. It's made the front page of Sunday's Daily Express, which has supported our fight 🔬 express.co.uk

Wonderful to be published in the inaugural Games for Change Asia-Pacific 🚀 #G4CAPAC journal with Ben O'Mara Kirsten Harley & Natasha Dwyer exploring the methodology for our work focused on inclusive gaming for people living with MND: kilthub.cmu.edu/articles/book/… MND Australia Faculty of Education Swinburne University of Technology Victoria University

Do you work with people living with ALS/MND?Check out the Allied Professionals Forum of the Alliance happening this week! als-mnd.org/events-program… ASARA Speech Pathology Australia @SAC_OAC ASOAUDIO RCSLT 💙 @BSAudiology1@BVAVoice @ASLTIP_UK FNO Deutscher Bundesverband für Logopädie e.V. (dbl) Indian Speech Language & Hearing Association

The Allied Professionals Forum kicked off today! ALS/MND Alliance Thank you Sara Feldman for co-moderating! Sara Feldman Really excellent presentations from everyone!! #alsmndwithoutborders

Finding trusted information & advice about #MND can be difficult, especially if you or someone you love has been recently diagnosed. In our latest blog, we look at all the ways our new MND Connect website can help you find the info & support you need: bit.ly/3ElBscS

Our International Symposium on #ALS/#MND begins on Tuesday. It's the biggest annual conference dedicated to MND research. We bring together researchers from around the world to share their work. Follow MND Research for live updates 🔬 symposium.mndassociation.org | #alsmndsymp

And we are off! Day one of the Aus NZ MND Research Symposium - thank you to FightMND and MND Research Australia for providing this amazing opportunity to see the #MND community over the coming 3 days!

Today is #GivingTuesday 💙 Your donation to MND Australia helps us to provide care, advocacy and research towards a cure for people living with MND 👉mndaustralia.org.au/.../donate-to-…

The annual ALS/MND Alliance meeting is currently underway in San Diego. We're also pleased to announce that MND Australia's Research Director, Dr Gethin Thomas, has just been appointed the new Chair of the Alliance's Scientific Advisory Council.