If you use HMV, or are you a carer looking after an HMV user, in need of information on secretion management, Home Mechanical Ventilation in Partnership has produced a guide. Our thanks to I'm Still Standing and Alabama Evans for sharing their experience. #addinglifetoyears #hmv hmvip.co.uk/secretion-mana…

Do you or someone you know have MND and live in the UK? Please help us take part in our research to improve the way we support people experiencing emotional distress. Emily Mayberry (she/her) Chris McDermott Charlotte Massey @PaulWicks South Yorkshire MNDA Neuroscience Institute NIHR Sheffield Biomedical Research Centre

Today, with Biogen, we announced results from the topline Phase 1/2 study of our investigational drug in people living with amyotrophic lateral sclerosis (#ALS). For more information about this program: ir.ionispharma.com/news-releases/…

Are you a carer for someone with MND? Join our 12-week online peer support programme to connect with others who understand your journey. Volunteer peer supporters, trained to provide guidance through an online app can help improve your wellbeing. Find out more below 📱

Disappointing news but I’m still hopeful that targeted gene therapy is the future even for those without gene mutations in #als #mnd

'By the time that you watch this I will no longer be here' A poignant final message from the Leeds Rhinos legend and MND campaigner recorded before his death for a special BBC documentary 'There's Only One Rob Burrow' BBC One BBC iPlayer

Just met Alex who’s keen to work with us on our new National Institute for Health and Care Research funded study to deliver better Better NIV for MND . Within minutes I could tell she’s a real champion for her patients and a real expert in her field. So many amazing staff in Home Mechanical Ventilation in Partnership

Do you have experience living with MND or helping someone who does? We are looking for help shape our new UK study trying to improve the way people use breathing machines. More info here. MND Research My Name'5 Doddie Foundation @PaulWicks South Yorkshire MNDA Patients United2EndMND sites.google.com/sheffield.ac.u…

Junior doctors pay has been cut by 26.8% since 2008. A doctor can be working on £15/hr, with 100k worth of student debt. We are asking to go to £20/hr. Is it any wonder that doctors are leaving the NHS due to not feeling valued? #payrestoration

Researchers, including @drestherhobson and Emily Mayberry (she/her), from Neuroscience Institute would like to hear from people with #MND and their carers about their emotional experiences of MND. The study aims to help improve emotional support for people with MND. More info: mndassociation.org/research/get-i…

Congratulations Sally. A much deserved honour for your dedication and leadership.

Boris Johnson

Delighted to share: Measuring Health-Related Quality of Life in Amyotrophic Lateral Sclerosis | Neurology neurology.org/doi/full/10.12… Thanks to our collaborators who worked with us to finalise the framework. Chris McDermott Phil Powell MND Association SCHARR Alys Griffiths

Our new paper tells researchers what things are important to measure when we think about quality of life in people living with the #ALS #MND #encals funded by National Institute for Health and Care Research and NIHR Sheffield Biomedical Research Centre neurology.org/doi/10.1212/WN…

Our systematic review & new framework are out! We examined health-related quality of life for people with #ALS #MND and developed a new conceptual framework. Full text in Neurology Journal: neurology.org/doi/pdf/10.121… Thanks to National Institute for Health and Care Research & MND Association for support with this work.

Do you or someone you know have MND? Would you like to help us do a short interview to help us know more about how to care for people experiencing emotional distress? South Yorkshire MNDA Ammar Al-Chalabi Chris McDermott My Name'5 Doddie Foundation Darby Rimmer MND Foundation mndassociation.org/research/get-i…

And we’re off! 🚶🚶‍♀️ Good luck to the 450 staff, students, alumni and friends taking part in the #TUOSBigWalk today to raise money for motor neurone disease research at the University of Sheffield. Please help us cheer them on. 👏👏👏 Donate here 👇 justgiving.com/campaign/bigwa…

“You’re changing the conversation from care to cure…” Neuroscience Institute’s Chris McDermott putting fire in the bellies of our walkers with a reminder of how they’re helping bring an MND cure closer. #TUOSBigWalk

We'd like to congratulate Prof Heidi Christensen and Dan Blackburn who have been awarded the Made with Patients Equality, Diversity and Inclusivity award from the Patient Engagement Open Forum. The award recognises their collaborative work with CognoSpeak. sheffield.ac.uk/cs/news/sheffi….

Great to see amazing research in MND funded by MND Scotland by Brittany Ellis from Neuroscience Institute and NIHR Sheffield Biomedical Research Centre at the medical research day. Another step forward to finding a cure