JUST ANNOUNCED: ASTP and OIG at HHS are taking an active enforcement posture to find and fine health care entities that block the access, exchange, and use of #EHI and that restrict patients’ engagement in their care. #PatientAccess #CuresAct @HHSgov hhs.gov/press-room/hhs…

HHS has announced that "information blocking" will now be a focus of enforcement of the 21st Century Cures Act. A critical gap remains- patients currently don't have a standardized, secure way to receive their data or meaningfully share it. #data #patientrights

Excellent! There will be a LOT of medical data that must follow the transplant patients. It would be great if they had data portability to go with it! #PatientCare

This is real. It's no longer just you & your doctor. It's you & an entire health system. And they want to collect as much data on you as they can, no matter if you object. There's no way this is good for patients. #healthdata #healthcare #patients

Health systems consider YOUR Data to be THEIR competitive asset. You have the right to it, but they don't care... #data #healthdata #curesact

The World Wide Web was a turning point in world history. Knowledge flowed more freely across wider regions. Of course, this generated user data that gave insights into user behaviors & preferences. Soon, every marketer & researcher began collecting & analyzing data to give

Patients have a right to request & providers/payors have a duty to furnish their health data under the 21st Century Cures Act. Hospital execs think they don’t have to. The ONC is stepping up enforcement… #data #patients #informationblocking

AI in healthcare has a long way to go before it can demonstrate that it can be relied upon. What works in other industries is quite different in healthcare. Quality data for training would help, but even that’s a challenge… #data #ai #patients

"Information blocking is defined as practices that are likely to interfere with, prevent, or materially discourage the access, exchange or use of EHI." Physicians, hospitals, electronic health record (EHR) vendors, health information exchanges (HIE) and health information

When it comes to your data, ownership is subordinate to custody. #data #patients #healthdata #privacy

Under the 21st Century Cures Act, patients have the right to request & receive electronic copies of their entire health records, both clinical & financial. So why are health systems so reluctant to furnish them?? #informationblocking #healthdata #privacy

Patients have the right to obtain & providers have the duty to furnish complete medical records in electronic form. In practice, providers deliberately opt to give patients obfuscated data dumps- raw, unstructured exports that bury critical details in voluminous, hard-to-parse

The Shepherd’s Bargain: A Parable A vast flock of sheep entrusts their wool—their health, their life stories—to a shepherd who promises: “Your wool is yours. Ask, and I will shear it cleanly so you may weave warmth, gift it forward, or prove the storms you’ve weathered.” But

High time this happened… texasattorneygeneral.gov/news/releases/…

Good Night

Under HIPAA Right of Access & the 21st Century Cures Act, patients have the right to receive- & providers have the duty to furnish- their complete medical records in a usable form. Why are patient records still difficult to obtain? #patients #data #informationblocking

A sovereign health data hub is a patient-owned platform where individuals hold custody of their full, longitudinal health record and directly control which providers, payors, researchers, and applications can access it for care, payment, and discovery. Patients become the single,

The current state of patient data is fragmented & scattered across multiple silos, each with differing formats & governance. Trying to address this with another piece of "furniture" shoehorned into an (already) crowded room just adds another silo. There has to be a better way.

"After all, the data now belongs to whomever holds it." Bingo. So long as YOUR data resides on THEIR infrastructure THEY can do what they want with it & YOU'RE none the wiser. After all, they truly believe that YOUR data is THEIR competitive asset. And why not? It's right there