DataSavesLives
@datasaves_lives
A Europe where trustworthy data sharing supports health & scientific research to meet the needs of patients. We support the #datasaveslives movement!
Find us ⤵️
ID: 1125741792597630977
https://linktr.ee/datasaveslives 07-05-2019 12:38:53
1,1K Tweet
3,3K Followers
450 Following
FierceHealthcare
@fiercehealth
The healthcare industry's trusted source for need-to-know news & analysis. Delivering news, revealing insights straight to your inbox.
The BMJ
@bmj_latest
The BMJ is patient centred, evidence based, and independent. Help us improve the health of our world with the best science, journalism, education, and comment
The King's Fund
@thekingsfund
We are an independent charity working to improve health and care in England. Our vision is that the best possible care is available to all.
Birgit Bauer
@birgitpower
Initiatorin @DSL_Deutschland #DigitalHealth & #SocialMedia Expert #PatientExpert, blogger, HIMSSFuture50, member of @sciana, about: bit.ly/1s1t1bM
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Valentina Strammiello
@valestrammi
Strategy Lead + #HTA @eupatientsforum. I post about #health, #patientengagement, #RWE, #EU. Views are my own.
Dr Simon Stones
@simonrstones
🏳️🌈 • he/him • Medical Communications Specialist & Patient Advocate • Scientific Director, @amicasci • Chair-Elect, @eular_org PARE Committee
Government & Policy
@govhit
Your source for news, insights and commentaries on how government & policy drive #HealthIT. Published by @HealthITNews.
TEHDAS2 joint action
@tehdas
The TEHDAS2 joint action prepares the ground for the harmonised implementation of the secondary use of health data in the EHDS. Co-funded by the EU.
FierceHealthIT
@fiercehealthit
We deliver need-to-know news, insights and trends to healthcare executives, CIOs and IT managers
data.europa.eu
@eu_opendata
🇪🇺 The official portal for European data. 1+ million data sets, #DataEuropaAcademy, #EUDatathon, studies, use cases, events and news. All things #OpenData.
EU Medicines Agency
@ema_news
Latest news from the European Medicines Agency, the European Union agency responsible for the evaluation and supervision of medicines. RTs ≠ endorsement.
Innovative Health Initiative
@ihieurope
We're an EU PPP funding health research & innovation under #HorizonEU. We also manage IMI projects. Find us europa.eu/!CBGHyv
Michele Calabrò
@micheclb
Director at @EUREGHA - 🇪🇺 #Regional & local #health authorities | @YoungGasteiners Task Force & @healthparl alumnus | Views are mine
The European Public Health Alliance (EPHA)
@epha_eu
EPHA is a change agent – Europe’s leading NGO alliance advocating for better health. We now post on #BlueSky @ epha-eu.bsky.social
EUScience&Innovation🇪🇺
@euscienceinnov
Policy updates from the @EU_Commission's Directorate-General for Research & Innovation. Follow also @HorizonEU, @EZaharievaEU & @lemaitre_eu
EUPHA
@euphacts
The European Public Health Association, or EUPHA in short, is an umbrella organisation for public health associations and institutes in Europe.
Vall d'Hebron Institut de Recerca
@vhir_
La #recerca d'avui, la #salut del demà. The research of today, the health of tomorrow. @iCERCA centre
Alexander Berler
@alexanderberler
eHealth expert, Heathcare Interoperability, IHE Europe, HL7 Greece
AMIIF México
@amiifmx
Representamos a más de 60 empresas globales establecidas en México, que tienen el objetivo de contribuir a mejorar el bienestar de los mexicanos.
Artur Olesch
@arturolesch
Digital Health Journalist & Content Designer | Founder of @aDigitalHealth | Editor | Medical Writer | Passionate about #digital #transformation in #healthcare
EORTC
@eortc
European Organisation for #Research and #Treatment of #Cancer defines better treatments for all cancer #patients to prolong survival and improve quality of life
Euractiv Health
@eahealtheu
This channel is no longer being populated with articles. Follow @Euractiv for the latest from us or visit euractiv.com/sections/healt…
Open Data Institute
@odihq
Making data work for everyone. Find us odihq.bsky.social mastodon.social/@ODIHQ
European Patients' Forum
@eupatientsforum
We are the leading voice of patient organisations in Europe. #EuropeForPatients
EUREGHA - Regional and Local Health Authorities
@euregha
Bringing European Regional and Local Health Authorities together to exchange practices and join forces to achieve #HealthinAllRegions! #Regions4Health
EHTEL Secretariat
@ehtel_ehealth
EHTEL is the one multi-stakeholder organisation within Europe that brings together organisations and individuals engaged in all aspects of eHealth.
EU One Health
@eu_health
The official account of @EU_Commission Directorate-General for Health & Food Safety (SANTE): #OneHealth: connecting health of humans, animals & plants 👤🐾🌱
COCIR
@cocir
European Trade Association representing the medical imaging, radiotherapy, health ICT and electromedical industries.
Vall d'Hebron
@vallhebron
Vall d’Hebron Barcelona Hospital Campus, un parc sanitari d'excel·lència al teu servei - #FemVHambTu
Orphanet
@orphanet
The reference portal and knowledge base for information on rare diseases and orphan drugs. Orphanet nomenclature, ORPHA codes, Orphanet RD Ontology @inserm
IHE International
@iheintl
IHE is an initiative by healthcare professionals and industry to improve the way computer systems in healthcare share information.
Horizon Europe🇪🇺
@horizoneu
Funding opportunities, projects & events from the EU's Research & Innovation Programme. Follow also @EUScienceInnov, @EZaharievaEU & @lemaitre_eu
EB Research Partnership
@ebresearch
EB Research Partnership funds research aimed at treating and curing Epidermolysis Bullosa (EB). 🦋 #HealEB 🔬 Find a cure
Alzheimer Europe
@alzheimereurope
Non-profit NGO, making #dementia a European priority. Newsletter: bit.ly/AE_News_signup Conference #35AEC
Donna Henderson 🏴
@donnatecscot
Head of International Engagement, Technology Enabled Care and Digital Healthcare Innovation
Medicines for Europe
@medicinesforeu
Official Twitter account for Medicines for Europe. Our 5 pillars: #patients #quality #value #sustainability #partnership. IGBA member. RTs not endorsement
FEAM
@fedeuroacadmed
The Federation of European Academies of Medicine aims to advise policy-makers on human and animal medicine, biomedical research, education and health
Stella Kyriakides
@skyriakideseu
Former European Commissioner for Health and Food Safety 2019-2024. Human rights advocate. Focus on the positive.
Bundesgesundheitsministerium
@bmg_bund
Wir sind das Bundesgesundheitsministerium und kümmern uns um Gesundheitsthemen & Gesundheitspolitik. Impressum: bundesgesundheitsministerium.de/impressum
Petronille Bogaert
@petronillebo
Views are my own. Passionate in health and of sharing knowledge.
Dr Richard Pratt 💙
@rich_pratt
Sandy toed health tech innovator & GP digital health advisor & mentor. Thoughts my own. Clinical Director Ummanu Health. Primary Care Clinical Lead ORCHA.
European Brain Council
@eu_brain
EBC is a platform for patients, health professionals, scientists & industry that promotes brain research in Europe and improved quality of life for patients.
Thomas Allvin
@thomasallvin
Swede in Brussels. Works at @EFPIA. If you like the combination of health policy and Star Wars, this is the twitter feed you're looking for. Tweets personal.
EATRIS
@eatriseric
The European Research Infrastructure for Translational Medicine #EU_RI. Supporting research communities translate scientific discoveries into #patient benefit.
The Health Policy Partnership
@healthpolicyptp
The Health Policy Partnership (HPP) is a research organisation working to drive policy and system changes in healthcare.
ADHD-EU
@adhd_care
exchanging good practices about ADHD in adults in EUrope - 2022-1-IE01-KA210-ADU-000081410
Ingrid
@missingridw
EPF
Center for Health Equity Transformation (CHET)
@healthequitynu
@luriecancer & @nu_ipham CHET aims to #LiftHealthforAll by exposing health inequities; pushing boundaries in research, edu, workforce dev + community engagement
Vall d’Hebron Institute of Oncology (VHIO)
@vhio
Leading translational research to accelerate & advance personalized and targeted therapies against cancer. @iCERCA centre
SYNCHROS
@synchros_eu
The SYNCHROS @EU_H2020 Project aims to create a strategic agenda for integration and harmonisation of health cohort initiatives across Europe & internationally.
JANE GIUDICE
@janegiudice
EUPATI Fellow Gravitate Health UAG Executive Secretary Arthritis and Rheumatism Association Malta Working at Id-Dar tal-Providenza Bio:
IncluPsy Erasmus+ project
@inclupsy
Exchanging good practices for the social inclusion of people with mental health problems | Partners from: Belgium, Canada, Croatia, France, Greece & Italy.
Národní asociace pacientských organizací
@napo_cz
Zastřešujeme pacientské organizace v ČR a prosazujeme kolektivní zájmy pacientů. Máme 51 členských organizací. silapacientu.cz/vize2035
Pavi Brar
@_pavbrar
she/her | own views | Senior Policy Advisor @NVTweeting | Always looking to learn and get involved in new projects!
Elisa Ferrer Mallol
@ferrer_mallol
Patient Advocacy Manager, Aparito @aparitohealth #patientengagement #rarediseases. She/her
#1Patient1Record4Belgium
@1patient1record
𝐉𝐨𝐢𝐧 𝐭𝐡𝐞 𝐦𝐨𝐯𝐞𝐦𝐞𝐧𝐭! Share the hashtag #1Patient1Record4Belgium and fight with us for transparent and full access to your medical record.
Autoimmune Chat
@autoimmunechat
A patient led initiative bringing autoimmune patients together to share experiences, support and raise disease awareness. Join our #autoimmunechat community
Susanne Brandl
@susannebrandl1
Label2Enable
@label2e
Towards a quality label for #healthapps and #wellnessapps. EU-funded project.
Mark Lawler
@qubcancerprof
Associate Pro-Vice Chancellor, Professor of Digital Health and Chair in Translational Cancer Genomics
EUCAPA
@eucapa4health
Meaningful patient education for engagement in the #HTA process.
i~HD
@ihd_healthdata
The European Institute for Innovation through Health Data (i~HD). Enriching knowledge and enhancing care through health data.
ΟΣΑΚ-Cyfpa
@osak_cyfpa
H ΟΣΑΚ αποτελεί ομπρέλα οργάνωση η οποία εκπροσωπεί την πλειοψηφία των οργανώσεων ασθενών της Κύπρου Cyprus Federation of Patients' Associations
Anca Toma
@anca4health
ED at @eupatientsforum. Mother, #publichealth geek caring about equity, solidarity, prevention, science. Tweets own views, retweets food for thought.
BioMed Alliance
@biomedalliance
The Biomedical Alliance in Europe is an organisation of European medical societies that together include more than 400,000 researchers and health professionals.
InfAct
@ja_infact
Information for Action! The Joint Action on Health Information builds and continues the work of @bridge_health
Health Data Research UK (HDR UK)
@hdr_uk
Health Data Research UK (HDR UK) is an independent charity working to accelerate trustworthy data use to enable discoveries that improve people’s lives.
numeriKare.be
@numerikare
Le premier "webdomadaire" belge entièrement dédié à la santé numérique. Het eerste ‘webweekblad’ over digitale gezondheid.