Danielle Drachmann
@dani_drachmann
Executive Director at @ketotic_hypo / EHP @healthparl / Patient Representative at @EMA_News
ID: 1248958089405050880
http://www.ketotichypoglycemia.org 11-04-2020 12:56:38
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Dave deBronkart
@epatientdave
@ePatientDave.bsky.social Participatory Med. Past: OpenNotes adv bd, HL7 #PatientsOnFHIR co-chair, Mayo visiting prof. #HeForShe, #AntiRacist
Bertil F. Dorch
@astronerd
Associate professor of astrophysics🔭 Library Director📚 Board member, Mad Hatter🎩 空手一級🥋 The global north🇩🇰🇬🇱🇨🇦🇯🇵 #stopasianhate #StandWithGreenland
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Claire Scott
@claire_scott22
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Sloboda Met Dejmon
@milosdjajic
Aktivista (@Centarmv i @liderke) koji juri ☀️ , ❤️ politiku, čelista, levičar, zaljubljenik u ⛷️, 🌻🌸🐳🐯🌱, 🐎 i 📸 , obožavam da učim i podučavam
Parathyroid UK
@parathyroiduk
The only patient organisation for families living with #parathyroid conditions in the UK & Ireland. #rare #hypopara #hyperpara Tweets by @lucyweigall
CancerGeek
@cancergeek
Chief Strategy & Marketing Officer GE HealthCare; Medicine ruckusmaker; Patient-physician interface; #radiology #medicine Aha at #Nof1
Donna Cryer
@dcpatient
CEO, Global Liver Institute. Attorney, and patient accelerating innovation and collaborations in health technology, policy, and systems improvement
Južne vesti
@juznevesti
Južne vesti - najčitaniji informativni web portal koji pokriva region južne Srbije. Možete nas naći i na Facebooku na facebook.com/juznevesti
Radomir Martin™
@radomir_martin
#RadomirBio #KažePrecednik patreon.com/RadomirMartin
Tiffany ⁷
@tiffanyandlupus
#Lupus Patient Advocate | Follow @Lupus_Chat | Mental Health #KBeauty | #BTS ARMY | 💗💛🩵| 2025 📚: 41/100 - 📕: Lone Wolf: Bennet Pack by K.C. Mills
Floor Jansen
@floorjansen_
Nightwish X 𝐏𝐚𝐫𝐚𝐠𝐨𝐧 - out now! 🎙🐎🤘🏻🇳🇱🇸🇪🇫🇮 ✉️ [email protected]
Partha S Kar 🇮🇳🇬🇧🏏🎥
@parthaskar
Type 1 Diabetes & Technology Lead @NHSEngland @NHSGIRFT Consultant Diabetes, Portsmouth IMG- From Kolkata 🇮🇳 Rest? Click link Motto: Dance lightly with life
EveryLife Foundation
@everylifeorg
Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
Avril Coelho 🏳️🌈🇪🇺⚫💜💙
@avrilcoelho
BEA Volunteer. White Ribbon Champion. SW BCU SNB Business Rep. Disabled, Diversity, Equity, Inclusion & Accessibility advocate. [email protected]
Piet Verhoeve
@pverhoev
be.linkedin.com/in/pietverhoeve
Lidija Radulović
@lidiradulovic
U borbi sa stereotipima. Žena u energetskom sektoru. Istražujem planine i trčim ekstremne ultramaratone. ♻️ #ClimateAction #SDGs #ESG #skyrunning
Helen Bevan
@helenbevan
Change facilitator, strategist, speaker. Prof. of Practice in Health & Care Improvement @WarwickBSchool. Advisor @HorizonsNHS. Senior Fellow @TheIHI. Views own.
𝗢𝘃𝗲 𝗚𝗮𝗮𝗿𝗱𝗯𝗼𝗲
@ovegaardboe
Læge - Fokus på livets afslutning - Dansk Selskab for Patientsikkerhed, 3F, Liv&Død - #tagsamtalen [email protected]/ BlueSky gaardboe
Rodoljub Sabic
@rodoljubsabic
Morten Sodemann
@mortensode
Professor of Global & migrant health, chief physician Migrant Health Clinic. Health systems, Migration, Equity, social determinants,globalhealth
CHI
@congenitalhi
Improving the lives of babies, children, and adults with hyperinsulinism (HI) by supporting HI families, research, and awareness to prevent brain damage & death
Global Alliance of Mental Illness Advocacy Network
@gamian_europe
GAMIAN-Europe is a patient-driven, pan-European organisation, representing the interests of individuals living with #mentalhealth conditions.
Dansk Selskab for Patientsikkerhed
@patientsikker
Danish Society for Patient Safety // Vi styrker #patientsikkerhed i #sundpol // Direktør @kristensenps ☎️22168161 // Pressekontakt Lars Jørgensen ☎️20220381
Pedro Lendinez #EnfermedadesRaras #MasVisibles
@pelendinez
#EnfermedadesRaras #MasVisibles. ¿Te sumas? ¡Juntos llegaremos más lejos! Opiniones personales.
Danske Regioner
@regionerne
Interesseorganisation for de fem danske regioner inden for #sundpol, #psykiatri, #socialpol, #uddpol, #dkgreen & regional #udvikling. Pressevagt: tlf. 51511818.
EU One Health
@eu_health
The official account of @EU_Commission Directorate-General for Health & Food Safety (SANTE): #OneHealth: connecting health of humans, animals & plants 👤🐾🌱
Tanja Thybo
@tthybo
Chef for Forskning og Viden i @diabetesDK -og aktiv i #diabeteskampen. Tweeter om #sundpol, #forskning og #diabetes. [email protected], +45 63 12 90 12
Inge Kristensen
@kristensenps
Direktør/CEO @patientsikker / Arbejder for at styrke #patientsikkerhed i #sundpol / #patientsafety/ #quality/Tlf: 22168161 / Mail: [email protected]
Miodrag Stojkovic
@miostojkovic
Prednost pametnoga je da se pravi glup. Obrnuto je teže.
Biorasi
@biorasi
Biorasi is a CRO widely recognized for delivering success in complex clinical trials worldwide.
Steno Diabetes Center Copenhagen
@stenodiabetes
Steno Diabetes Center Copenhagen er Skandinaviens største diabeteshospital inden for behandling, klinisk forskning, sundhedsfremmeforskning og uddannelse.
Vittoria Carraro
@lucyintheskylu
Policy officer @EU_Health. Social and health policies. Art enthusiast. Views are my own.
Lene Jensen
@lene_jensen_dk
Direktør i Sjældne Diagnoser/Rare Diseases Denmark - #sjældnesygdomme #raredisease #sundpol #handicap. Mail:[email protected]
UNICEF Srbija
@unicefsrbija
UNICEF spašava dečije živote, brani njihova prava, i pomaže im da ispune svoje potencijale. Nikada ne odustajemo.
The Lancet Diabetes & Endocrinology
@thelancetendo
Your leading source of international, cutting-edge research, review, and opinion in clinical diabetes and endocrinology. IF=44·0.
Prof Kamlesh Khunti
@kamleshkhunti
Professor of Primary Care Diabetes & Vascular Medicine, GP, University of Leicester
AELIP
@aelip_
Asociación de familiares y afectados por Lipodistrofia España, Europa y Latinoamérica
Nacionalni konvent o Evropskoj uniji 🇷🇸 🇪🇺
@nkeusrbija
Nacionalni konvent o EU - National Convention on the EU
Centar Online (FCD)
@centaronline
Fondacija Centar za demokratiju je nevladina, nestranačka i neprofitna organizacija koja doprinosi razvoju demokratskog društva i usvajanju evropskih vrednosti
Katrine Astrup Jacobsen
@katrine_79
Research librarian: pharmacy and chemical engineering. Involved in activities for PhD students: Philoteket and PhD Cafés
Children's Hyperinsulinism Charity UK & Ireland
@chcharityuk
Support Group, Fun Days, Conferences, Resources, Advocacy, Raise Awareness, Support Research. Supporting Hyperinsulinism families across UK & Ireland
Ingrid
@missingridw
EPF
DG MEME 🇪🇺
@meme_ec
The Directorate-General for #Memes and #Satire Book: dg-meme.eu/book Store: dg-meme.eu/store Not an official EU page!
@EVdEycken
@evdeycken
menosRaras
@menosraras
Divulgando para hacerlas #menosRaras #EnfermedadesRaras
Care4Autism
@care4_autism
🔄 ExChAnging good pRacticEs for Adults with #Autism & their family Caregivers @EUErasmusplus project submitted in @AEF_Europe & coordinated by @BelBrainCouncil
FAIRVASC
@fairvasc
FAIRVASC receives @EU_H2020 Research & Innovation Programme funding under EJP RD COFUND-EJP N° 825575. Tweets reflect only the views of the project owner.
Danske Patienter
@danskepatienter
Arbejder for at sikre #patienter og #pårørende gode liv trods sygdom. Presse: 4242 9393. Find os under den blå sky 💙☁️
Julie Maréchal-Jamil
@julie_marjam
Learnatic - Enthusiastic Believer - Greater Good is Within Reach - Pharma, Brain&Body connection - @medicinesforEU. Views my own. Retweets≠endorsement
Center for Patientinddragelse
@patientinddrag
Center for Patientinddragelse er del af Region Hovedstaden. Vi understøtter #patientinddragelse i den kliniske hverdag. Enhedschef @mww_wrgler /T: 30691282
ALAMEDA Project
@alameda_project
Bridging the Early #Diagnosis and #Treatment Gap of #Brain Diseases via Smart, Connected, Proactive and Evidence-based Technological Interventions | #H2020
Melody Buckley
@melodyb77905028
ACIMET | Asociación Acidemia Metilmalónica
@acimet_mma
Asociación de afectados y familiares con acidemia metilmalonica. #Enfermedadrara #metabólica #genética 🧬. 1/60.000 nacidos 👶 48 casos. 🗺️worldmmap.com
Vidoomy
@vidoomymedia
Vidoomy is an Adtech specialized in advertising allowing agencies to reach their target audience through innovative video ad formats and high quality inventory.
Margherita
@marghebugiani
Consultant EU Health Team at Acumen Public Affairs :)
Jose F. Oliver
@josefoliver7
Natasha Barr
@caretently
Creating content with CARE for the rare disease community. Medical writing, translation and content creation services. Formerly worked at @vascern + @orphanet
Anne Wettergren Karlsson
@wettergrenanne
PhD Fellow @community_user @SyddanskUni tweets on user involvement in health research, health innovation & health systems improvements.
Anna Stentebjerg
@annastentebjerg
Folkesundhedsvidenskab studerende / MSc Public Health student, specialisation Global Health policies, University of Southern Denmark
Tom Brady
@f1tombrady
Formula 1 analyst for independent media. 🏎️🏁. Before I worked in a brewery in a town hall, a bridge operator and in the merchant navy
Retki bolesti Ohrid Rare Diseases
@retkoedasiredok
MEDVIA
@medvia_be
The innovation cluster paving the way to better health. MEDVIA supports members with tailored services and earmarked, non-dilutive funding. #healthinnovation
SDU Citizen Science
@citscisdu
SDU's Videncenter for Citizen Science medvirker til at skabe relevant forskning for og med borgerne af høj kvalitet. W: sdu.dk/cs Kontakt: [email protected]
Tarunveer Singh Ahluwalia
@tsahluwalia
Principal Investigator; Precision Medicine; Bioinformatics; Diabetes Complications; Biomarker; Risk Prediction; Patient Care; Omics
CheckRare
@checkrare
Leading publisher and learning platform focused on rare diseases. Rare Diseases Are Our Focus, Expertise, and Passion.
BTCPay Server
@btcpayserver
Best way to accept #Bitcoin. No fees, no intermediary. Free, open source & self-hosted Bitcoin payment processor for self-sovereign individuals and businesses.
France en Serbie
@franceenserbie
Compte officiel de l'Ambassade de France en Serbie / Zvaničan nalog Francuske ambasade u Srbiji. RT are not endorsement #France #Serbie #Serbia #Srbija
toon digneffe
@digneffetoon
🇪🇺 🇧🇪