Cystinosis CRN (@cystinosiscrn) 's Twitter Profile
Cystinosis CRN

@cystinosiscrn

Cystinosis Research Network is dedicated to supporting research, providing family outreach & educating the public & medical communities about #cystinosis

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linkhttp://cystinosis.org calendar_today08-09-2012 17:40:44

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@cystinosiscrn

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Thanks to the power of the internet connecting #cystinosis families around the world, we bring you Bercan and Süreyya’s journey. Check out page 35 of The Cystinosis Advocate newsletter here: tinyurl.com/CystinosisAdv #CystinosisAdvocate #RareStorytelling #RareDisease

Thanks to the power of the internet connecting #cystinosis families around the world, we bring you Bercan and Süreyya’s journey. Check out page 35 of The Cystinosis Advocate newsletter here: tinyurl.com/CystinosisAdv #CystinosisAdvocate #RareStorytelling #RareDisease