Cure HHT
@curehht
Cure HHT is the only organization in the US advocating for research, education and a cure for Hereditary Hemorrhagic Telangiectasia, Osler-Weber-Rendu Syndrome
ID: 80449667
http://curehht.org 07-10-2009 00:48:23
3,3K Tweet
1,1K Followers
795 Following
HerbTheEntSpec
@herbtheentspec
Talent Wrangler A High-Yielding Celebrity Commodity Cashapp: $herbtheentspec The J. Anthony Brown JSpot Reunion Comedy Roast w/Chris Spencer
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Roy Gregory
@roygregory
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
ENTofGA North
@entofgeorgia
ENT of Georgia North. Doctors you can trust! We strive to make each visit comfortable and convenient to have you feeling better faster!
@drcolleenplein on bluesky
@ihavesinus
ENT. Focus on minimally invasive Rhinology, snoring and OSA. Via @UChiPritzker and @SUNYdownstate. Tweets not medical advice. #ENTsurgery #shENT 🏳️🌈
UCSF Imaging
@ucsfimaging
A global leader in imaging technology known for patient care, education, & research.
Dr Gemma Clunie @gemmaclunie.bluesky.social
@gemmaclunie
Lead Clinical Academic for AHPs @ImperialNHS @NIHRResearch SCPRA Fellow Now at Bluesky 💙 @gemmaclunie.bluesky.social Views my own.
Tamer Institute @CU
@columbiatamer
The Tamer Institute for Social Enterprise and Climate Change @ @Columbia_Biz trains the next generation of leaders to address social + environmental challenges.
ENT Operator
@dreamydr
Med school survivor. Madurai. Chennai. ENT surgeon
Michael Makris
@profmakris
Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
National Organization for Rare Disorders (NORD)
@rarediseases
National Organization for Rare Disorders (#NORD) is the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay.
Atlanta ENT
@atlantaent
Our team includes highly trained medical and surgical specialists in the fields of ENT, Allergy, Asthma, Sleep Medicine, Aesthetics & Facial Plastic Surgery.
World Orphan Drug Congress USA
@orphanconf
Get regular updates on #WorldOrphanUSA! April 22-24, 2025 | Boston Convention & Exhibition Center 👉 Register here: terrapinn.com/bookwodc_tw
ENT Institute
@entinstitute
Center of Excellence for the Ear, Nose & Throat disorders. 14 Convenient Georgia Locations & 2 Surgery Centers. 770-740-1860
ENT Center of Austin
@entcenteraustin
ENT Center of Austin, Serving Cedar Park, Round Rock and Central Austin, Texas. Home of the Sinus Center of Excellence specializing in the Balloon Sinuplasty.
SanfordCoRDS
@sanfordcords
CoRDS is the world's only cost-free, international #RareDisease #PatientRegistry - Enroll today and share your #data! bit.ly/2hrrjlS
THIRD DAGREE
@thirddagree
BOILING POINT ENT. C.E.O., Indie artist, podcast host, tastemaker, A&R, PR Specialist CONTACT [email protected]
NCATS
@ncats_nih_gov
Official account. nih.gov/web-policies-n… nih.gov/news-events/so… engagement ≠ endorsement
CDC_NCBDDD
@cdc_ncbddd
CDC’s Center protecting those most vulnerable to health risks: babies, children, people with blood disorders, disabilities, and those at increased genetic risk.
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Solusi Imaji Media
@siment_official
Music Promoter; Event Organizer; Advertising, Medical & IT Specialist
Stephanie Fischer
@rarepov
#Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.
Dr. Pasha & the Team
@snoringandsinus
Pasha Snoring & Sinus Center, led by Houston ENT Doctor Raza Pasha, focuses on finding long term relief from allergies, sinus disorders, sleep apnea, & snoring.
Rare Diseases South Africa
@rarediseasessa
We're bridging the gap to improved quality of life, for a better tomorrow, for the #1in15 South Africans affected by rare diseases.
Joy Nock
@livvyloubruno2
Biorasi
@biorasi
Biorasi is a CRO widely recognized for delivering success in complex clinical trials worldwide.
HHT España
@hht_spain
Asociación española de HHT
JVIR
@jvirmedia
Journal of Vascular and Interventional Radiology | Advancing minimally invasive, image-guided procedures | #Irad #Endovascular #PAD #oncology
Lianne de Serres MD
@drldeserres
Mother of 3, Pediatric ENT, cook, dog lover, gardener, and intermittent exerciser. All opinions my own ...
ENT Medical Center
@e_n_t_m_c
ClaytonWardULHT
@teamclaytonulht
Proud to care for ENT, maxillo-facial & urology patients at Lincoln County Hospital. RTs not endorsement or medical advice #6cs #NHS tweets by Averil
Cassi Friday, PhD
@cassifriday03
Follow my journey to advance research with Cure HHT, to advocate for science policy & military families, and through the wild ride of parenting 3 wildlings.
Cambridge Rare Disease Network (CamRARE)
@camraredisease
making #rarediseases an everyday conversation bsky.app/profile/camrar…
Alliance ENT & Hearing Center
@allianceent_wi
Sleep | Hearing | Sinus | Allergy Call (414) 727-0910 to schedule an appointment.
Catalyst Medical Center
@catalystfargo
Multi-specialty medical center & clinical spa providing ENT, hearing, allergy, cosmetic & skincare services. #lookbetterfargo #hearbetterfargo #feelbetterfargo
Elizabeth Fieg (she/her)
@elizfiegcgc
Senior genetic counselor, program manager, site coordinator, adjunct assistant professor, Gattaca understudy. Tweets are my own.
Franck Lebrin Lab
@lablebrin
Microvascular disease, HHT, imaging and drug development
PA Rare Disease Advisory Council
@pararedisease
To improve the quality of life for all those affected by rare diseases in Pennsylvania.
Masaki Komiyama, M.D.
@kanachan2020
Ex-neurointerventionalist. Love phylogeny, embryology, vascular anatomy, 🐶, 🌷; HHT and ped vascular anomalies. Tweets mine.
Jay Piccirillo, MD
@piccirillojay
Professor, Vice Chair Research, and Director, Clinical Outcomes Research Office @wustl_ent; Program Director for TL1, R25 @wustlmed. Editor @jamaOTO.
UCSF HHT CENTER OF EXCELLENCE
@ucsfhht
The official twitter of the UCSF HHT Center specializing in the comprehensive screening, diagnosis and treatment of hereditary hemorrhagic telangiectasia.
Adam Fish, MD 🇺🇸🇮🇱
@adam_g_fish
Yale SOM Interventional Radiology resident, class of 2025. Vascular anomalies and HHT researcher and enthusiast. Husband and father.
ATHN
@athnnews
At ATHN, our goal is to secure data, advance knowledge, transform care—and ultimately improve the lives of people with bleeding and clotting disorders.
The Fang Lab
@fang_lab
Studying vascular biology and cell-cell signaling in microphysiological organ-on-a-chip systems and mouse models. Doing science at @Tulane!
Kali Gal 🇺🇸
@liberty_ten
DAR - 9 gen of military service 🇺🇸 -America First 🇺🇸 - fmr Sports Journalist 🏈 - Wanderlust - Salt & Light Life 🌼 - Idaho Roots
Porter Stansberry
@porterstansb
Founder of MarketWise, OneBlade, and Porter & Co.
Freya Droege
@freyadroege
Clifford R Weiss, MD
@drcliffweiss
Interventional radiologist, scientist, device developer, vascular malformation specialist, HHT advocate, husband, dad, passionately bad golfer.
Steven Long, MD
@stevelongmd
UCSF Pathology. Cytology, FNA, USFNA, ENT SurgPath Cyto-Heme Inter-institutional Collaborative (CHIC). SF General. Clinical Professor. Fna for profiling
Hemophilia News
@hemophilianews
Network Medical
@networkmedical1
Manufacturer of quality ENT and Ophthalmic products, including CORONET®, EYETEC®, NETCELL® and NETWORK ENT®Network Medical is part of the Innovia Medical group.
AVM&Brain Aneurysm
@avm_malaysia
A platform to spread awareness on AVM & Brain Aneurysm. Arteriovenous Malformation (AVM), where arteries and veins contribute to this tangle of vessels.
Chan Zuckerberg Initiative
@chanzuckerberg
We're a new kind of philanthropy that builds tech and partnerships to accelerate progress in science, education and create a thriving California Bay Area.
VASCERN
@vascern
Gathering the best expertise in Europe to provide accessible cross-border healthcare to patients with rare vascular diseases #ERNeu #RareDiseases
CZI Science
@cziscience
Science news and updates from the Chan Zuckerberg Initiative @ChanZuckerberg
Medical & Veterinary Entomology
@medvet_ent
The biology and control of insects and other arthropods of medical, veterinary and forensic importance Find us on @respublications.bsky.social #RESMedVetEnt
Rolvix Patterson, MD, MPH
@rolvixpatterson
PGY-5 @Duke_Oto😈 & global otology researcher🦻🏽
Varun Singh M.D.
@vsinghradiology
Interventional Radiology Resident @MGHimaging @harvardmed | 2024-2026 @MESHIncubator Executive Innovation Physician Fellow | @curehht