FA Research Alliance (@curefa_org) Twitter Takipçileri • TwiCopy

Rare Disease Day

@rarediseaseday

29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay

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Ataxia UK

@ataxiauk

The national UK charity for people affected by ataxia. Fighting for a cure for all ataxias.

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Rolly Samp

@swampfox61

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National Ataxia Foundation

@naf_ataxia

Our mission is to accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

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Eric Little

@theericlittle

Radio & TV Play-By-Play Broadcaster. I keep talking & people keep paying me for it. His timing…not mine. Trying my best to be a good human. I don't like cheese.

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TASNEEM

@iamtasneem

• Artist • Caregiver • Disability Justice • (t'us-knee'm) تسنيم • they/leur • 🍉

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National Organization for Rare Disorders (NORD)

@rarediseases

National Organization for Rare Disorders (#NORD) is the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay.

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Global Genes

@globalgenes

Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare

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Kateřina Veverová (Čechová)

@katerinaalz

PhD ~ 🧠Neuroscience at @2LFUK. Lab leader in @MitophagyAD project. Assistant Prof. at @CharlesUniPRG. Member of @CzechAging. Author (eds.) of @BludisteALZ.

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Anne-Marie Blackburn

@amblackburn

Mam, Geek, Optimist, Ethical Socialist and Cheese Lover. Superwoman in her spare time.

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Andrew Hostetler

@hossandhoss

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David Fajgenbaum, MD

@davidfajgenbaum

@Penn physician-scientist-patient who 'cured thyself' | Advancing @CureCastleman + @EveryCure | National Bestseller #ChasingMyCure ChasingMyCure.com

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Amr Aghaa

@amromohammad

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Prof Dunc Cameron 🏳️‍🌈♿️ 🐝

@dunkie_c

Microbiology Prof @OfficialUoM🧫🧬, beardy🧔🏻‍♂️& tattooed🌹 ex-skater🛹& rugby player🏉. Gay Disabled Scot 🏳️‍🌈♿️🏴󠁧󠁢󠁳󠁣󠁴󠁿 Surviving #ataxia ⚡️🧠⚡️

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Beacon for Rare Diseases

@rarebeacon

Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.

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Stephanie Fischer

@rarepov

#Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.

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Mary Fiance

@maryfiance

VP, PR @MDAorg | #RareDisease, #MuscularDystrophy, #NMD, #ALS, #PR | NYC | Previously @92Y, @jazzdotorg @LincolnCenter #ViewsAreMyOwn

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Denville Partners

@denvillepartner

Executive Search & Organizational Consultancy. We partner with Biotechs, small Pharma & industry related nonprofits. We build mission driven teams.

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Progress, Potential, And Possibilities

@progresspotent1

Interviews With Fascinating People Creating A Better Tomorrow For All of Us! - Host, Ira Pastor @irat1onal

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STOP FA

@stop_fa

Asociación sin ánimo de lucro para sumar esfuerzos para encontrar una cura para la Ataxia de Friedreich.

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Zhongbo Chen

@zhongboc

Neurology doctor & Crick postdoctoral research fellow

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Graham Erwin

@grahamserwin

Asst. Professor @bcmhouston. Previously Stanford and UW–Madison. We use molecules and genomes to understand repetitive DNA sequences. #FirstGenAcademic

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Annie Ganot

@annieganot

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Friedreich's Ataxia News

@friedreichsatax

We are dedicated to sharing the latest news, research, and Friedreich’s ataxia patient perspectives.

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Ataxia and Me CIO 1184030

@ataxia_and_me

#Ataxia is a #raredisease affecting #Balance #Speech and #Coordination #Patients Helping Patients #MovementDisorder #Health #Medical #pharma

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Ataxia Centre - UCL Institute of Neurology

@ataxiacentreucl

Our centre brings together specialists researchers and clinical academics for basic & translational research in all forms of ataxia, and best clinical practice.

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AtaxiasARG

@ataxiasarg

🇦🇷Ataxias Argentina #Ataxia #MovementDisorders #AtaxiaAwareness #Brain #Cerebro #Neurology #Neurologia #rarediseases #livingwithataxia #Research 👩‍🔬👨‍🔬

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RARE Revolution Magazine

@rarerevolutionm

Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]

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Noah Griffith

@noahgg01

AU Journalism grad 🎓🦅 | High School sports reporter for the Opelika Observer | blogger & disability advocate

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Effie Parks

@onceuponagene

Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓

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Shiang Lim (Max)

@shiang_lim

Cardiovascular research. Principal Research Fellow

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Meike E van der Heijden, PhD

@meikeesther1

Tweeting about work, life, and balance. Looking for answers in the cerebellum. NINDS K99 awardee | Assistant Professor @VTNeuro @FralinBiomed

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Kavli Institute for Nanoscience Discovery, Oxford

@kavlioxford

Catalysing discovery by bringing the physical sciences into the cell. #nanoscience #nanotechnology #nanomedicine #nanomaterials

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VA Fury Platinum 2029

@vafuryplat2029

Top VA 14U fastpitch team - 2029/30 players.

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ILIMLIHAÇI

@ilimlihaci8

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Sleawnuv

@sleawnuv668040

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Jean-Béni Mugisho

@jeanbnimugisho1

Je suis étudiant à l'Université Laval Actuaire - Chrétien Unité dans la diversité en toute responsabilité

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Xaussic

@xaussic0363029

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BURAK ÇEVİK

@cevik98516

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Alan Mejía Maza MSc, PhD 🇵🇪

@alanmej55130600

Postdoc studying repeat expansion diseases in human brain at @HarvardMed & @CGM_MGH.Previously @UCLIoN Queen Square,UK #XDP #ALS #NMJ.Opinions are my own.

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