FEDER | Enfermedades Raras

@feder_ong

👉🏻 Somos la esperanza de 3 millones de personas con #enfermedadesraras 🍀 Representamos a 422 organizaciones de pacientes y a 1.546 patologías poco frecuentes

+ Follow

LifeArc

@lifearc1

Medical research non-profit transforming promising life science ideas into medical breakthroughs that change patients’ lives.

+ Follow

DKFZ

@dkfz

Das Deutsche Krebsforschungszentrum (DKFZ) ist die größte biomedizinische Forschungseinrichtung in Deutschland. | bsky.app/profile/dkfz.b…

+ Follow

Daniel-Aníbal García

@eliadosom

Presidente de @Fedhemo y @feacem y secretario de finanzas de @COCEMFEnacional. Interesado en salud, libertad individual, economía. Mis tweets son personales.

+ Follow

SUUMA Voluntarios 🚑

@suuma_cdmx

Capacitación en primeros auxilios y paramédico. 🇲🇽 Servicio médico de urgencias GRATUITO en CDMX. 🚑 Emergencias al 55 2735 0289 o 911. Antes @iberomed

+ Follow

WFH

@wfhemophilia

The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.

+ Follow

World Orphan Drug Congress USA

@orphanconf

Get regular updates on #WorldOrphanUSA! April 22-24, 2025 | Boston Convention & Exhibition Center 👉 Register here: terrapinn.com/bookwodc_tw

+ Follow

Roche España

@roche_es

Twitter Oficial de Roche España. Innovación para la salud

+ Follow

Bruce Booth

@lifescivc

Early stage biotech VC. Recovering scientist. Opinions expressed are solely my own and do not express the views or opinions of Atlas Venture.

+ Follow

cmmmlg

@cmmmlg

+ Follow

Brad Loncar

@bradloncar

#Biotech, Founder of @BiotechTVHQ, KC native, @univmiami hurricane.🧬🙌

+ Follow

World Orphan Drug Congress

@orphan_drugs

World Orphan Drug Congress Europe | 27 - 29 October 2025 | RAI Congress Centre, Amsterdam

+ Follow

La Santorini

@mlsantorini

Ingeniero explorando la gastronomía, buscando sabores y aromas en cada rincón || una Guara en 🇮🇹 || IG @MLSantorini

+ Follow

Catéter Doble Jota

@cateterdoblej

Ingeniero (MSc, PhD) e historiador especialista en #HistoriaMedicina (PhD). En ocasiones doy clases a universitarios.

+ Follow

Kara

@kara_jesusdm

Si es de los niños el futuro, que nos gobiernen ellos.

+ Follow

Lluis Montoliu

@lluismontoliu

Biotechnologist, interested in mammalian genomes and generation & use of genetically modified animals as models of human rare diseases, such as albinism #CRISPR

+ Follow

Fernando Martín Moro

@fer_martinmoro

MD at @USAL | Internal Med student at @HematoCAUSA | #cytopath #cytometry and #lymphoma at Hospital Ramón y Cajal @HematoRYC | PhD student at @UAHes

+ Follow

Promedia Formación

@promediaab

Ofrecemos formación orientada al mundo de Internet, que abarca desde el diseño y multimedia hasta lenguajes de programación y desarrollo de aplicaciones.

+ Follow

Hemofilia Málaga

@hemofiliamalaga

Asociación Malagueña de Hemofilia y/u otras coagulopatías. 📍 C/ Linaje, 2. 3º piso, izq. (Málaga). 🔔 [email protected] 📱 609 393 237

+ Follow

carmen

@carmen_aguado70

+ Follow

Elenacion7 (Elena de las Heras Pascual)

@elenacion7

+ Follow

Senado de España

@senadoesp

Perfil institucional del Senado de España. senado.es Instagram: instagram.com/senadoesp/ YouTube: ow.ly/ZATaq

+ Follow

Yann Le Cam

@yann_eurordis

CEO @eurordis, #raredisease #patient advocate. Member of @rarediseasesint council. Tweets are my own.

+ Follow

RarasNoInvisibles

@noinvisibles

Hablamos de salud, enfermedades raras, inclusion social y biomedicina. Escribe @Sombradoble Mas Información: [email protected]

+ Follow

Raul Cordoba, MD, PhD

@drraulcordoba

Lymphoma Unit @Hospital_FJD. Board member @sehh_es & @EHA_Hematology. Chair SWG “Aging and Hematology”. @ASH_hematology IMC member

+ Follow

Andrew Pannu

@andrewpannu

daily dose of biotech & healthcare commentary • founder @sleuthinsights • building software for the bioeconomy

+ Follow

BBMRI-ERIC

@bbmrieric

Supporting biobanking and biomolecular research. 🦋 bsky.app/profile/bbmrie… 🖇️ linkedin.com/company/bbmri-…

+ Follow

Graham Collins

@graham74gc

Associate Professor of Haematology and lymphoma specialist at Oxford Cancer and Haematology centre. Christian, husband and father.

+ Follow

MedicsforRareDisease

@medicsforrare

Excellence in rare disease medical training

+ Follow

Ring20UK

@ring20uk

Non-profit organisation supporting families, individuals and professionals who are affected by or who come into contact with Ring chromosome 20 syndrome - r(20)

+ Follow

UDN

@udnconnect

The Undiagnosed Diseases Network has archived this account. Past posts are preserved for reference.

+ Follow

Asociación de Hemofilia de Asturias

@ahemasasturias

ONG que ofrece apoyo en Asturias a los pacientes con hemofilia y otras coagulopatías congénitas. Miembro de @fedhemo, @COCEMFEnacional y @feder_ong.

+ Follow

Mohamad Mohty

@mohty_ebmt

Professor of Hematology; past-president of the EBMT; Chairman of the IACH; Editor in Chief: Bone Marrow Transplant; Clin Hematol Int.

+ Follow

Portal de la Transparencia - España

@transparencia_e

Portal de la Transparencia de la Administración General del Estado. DG Gobernanza Pública. Gobierno abierto. Normas de uso: run.gob.es/fpnhos

+ Follow

Fundación Anemia de Fanconi

@todosconfanconi

Apoyamos a pacientes con #anemiaDeFanconi y sus familias. ❤️ Investigamos sobre sus causas y su tratamiento. 🔬 Ayúdanos a encontrar la cura

+ Follow

Jordi Surrallés

@jsurralles

Director of @IRSantPau and Full Professor of Genetics at @UABarcelona

+ Follow

Eva Ortega-Paíno

@evaortegapaino

Secretary General for Research at @cienciagob. Mom of 3. An adopted Swede 🇸🇪 living in her home country 🇪🇸. My own views.

+ Follow

@sehh_es

@sehh_es

Twitter oficial de la Sociedad Española de #Hematología y #Hemoterapia (SEHH) #HematoEnRed #HematoAvanza #SEHHematología #SEHHCuidaTuSangre #SEHHContigo

+ Follow

Raras pero Reales

@rarasreales

Sanofi, comprometidos con el descubrimiento de terapias para pacientes con #EnfermedadesRaras. pro.campus.sanofi/es/legal/polit…

+ Follow

Blood Journal

@bloodjournal

Blood, the flagship journal of @ASH_Hematology, is the most cited peer-reviewed publication in the field of hematology, available weekly in print and online.

+ Follow

dazzle4rare

@dazzle4rare

Est. 2016 | Signal boost RARE with #dazzle4rare every Aug | #Signalise is our #podcast | Our 🔗 linktr.ee/dazzle4rare

+ Follow

Real Fundación Victoria Eugenia

@rfve_hemofilia

Fundación cuyo objetivo es promover y divulgar investigaciones científicas en el campo de la Hemofilia y otras coagulopatías congénitas y patologías asociadas.

+ Follow

Dr Victor Noriega

@noriega_dr

MD, PhD. Hematologist in CHUAC (A Coruña-Spain). Leukemia,Bone Marrow Transplantation and CAR-T. Tweets and opinions are mine.

+ Follow

NCBRS Worldwide Foundation - Nicolaides Baraitser

@ncbrsfoundation

Our aim is to help families by providing practical advice, annual conferences, raising awareness of #NCBRS and possibly help to fund any future research studies

+ Follow

Ana Maria

@darlenedrinkgin

mãe do raul mais conhecido como raúli, mini ou neco👦🏼🌼💙🌈

+ Follow

IACH

@theiach

The International Academy for Clinical Hematology (IACH) is founded by an international group of physicians whose focus is to promote good clinical practice.

+ Follow

Hematología HUVRocío

@hematohuvr

Cuenta oficial de la Unidad de Hematología y Hemoterapia del @HospitalUVRocio.

+ Follow

Alvaro Hermida

@info_rares

Specialist on Metabolic Diseases and always looking on the bright side of life.

+ Follow

Biotech2k

@biotech2k1

Biotech investor for over two decades. Data driven ideas. I study and share my takes on biotech companies.

+ Follow

jj_runningteam

@jrunningteam

Padre de Julia, niña con discapacidad, pediatra y 50% de este equipo. Visibilizamos la discapacidad. Creadores de conciencia social IG: @jj_runningteam

+ Follow

Chelsea's Hope Lafora Children Research Fund

@chelseashopela1

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. Find us: @chelseashopelaforacure

+ Follow

BowTiedBiotech 🧪🔬🧬

@bowtiedbiotech

Daily Biotech Updates: Public & Private Market Updates, Company Building, Financing, Exit Strategies, & Emerging Science Trends | Current: Janitor at Biotech VC

+ Follow

IIC-UMU-IMIB 🇺🇦🇺🇦🇺🇦

@iic_umu_imib

The Immunity, Inflammation and Cancer lab led by Victoriano Mulero uses the zebrafish model to deciphering inflammatory, infectious, blood and rare diseases

+ Follow

Dr. David J. Young, MD PhD

@drdavidjyoung

Pediatric Hematologist and Oncologist @nih_nhlbi #SAA #IBMFS #DBA #RUNX1 #FPD #MDS Comments are mine

+ Follow

Prime Medicine

@primemedicine

Delivering on the promise of Prime Editing. Terms: primemedicine.com/terms-of-use/

+ Follow

REMEDi4ALL

@remedi4all

The European Platform for Medicines Repurposing

+ Follow

Marta Morado

@moradohemato

Doctora en Medicina. Especialista en Hematologia. Anemias, enfermedades minoritarias y diagnostico hematologico. Hospital Universitario La Paz

+ Follow

Telómera

@telomerahealth

Nuestro ADN 🧬 son los datos y los datos salvan vidas.

+ Follow

Plataforma Especialidad Genética

@ptfespgenetica

Plataforma formada por la Sociedad Civil y Profesionales para reivindicar la creación urgente de la Especialidad Multidisciplinar de Genética Clínica

+ Follow

Secundino

@secundinosv

Intentando hacer un mundo mejor.

+ Follow

Izaskun Zeberio

@ixazebe

Hematologist Hematology and Oncology Institute Donostia

+ Follow

Beatriz Perales

@beatrizperales8

Public Affairs | Communication | Market Access Director en @Sobi_iberia

+ Follow

Hemofilia.cat [ACH]

@hemofilia_cat

Lluitant per millorar l'assistència del col·lectiu de persones amb coagulopaties.

+ Follow

Aaron Goodman - “Papa Heme”

@aarongoodman33

Hematologist/Bone marrow transplanter at UCSD/educator - interests include, hematology, medicine, 🍺, 🎸, 🌮, Nirvana (best band), grunge, family, and San Diego

+ Follow

Ana Marín Niebla

@amniebla

Hematologist at @hvhebron Lymphoma Unit & Hematological Diagnosis @Hemato_Vhebron and @labclinicsvh Barcelona

+ Follow

ISABIAL

@isabial_iis

Instituto de Investigación Sanitaria y Biomédica del DS Alicante-HGUA UA y UMH. R&D Institute that integrates Alicante Health Deparment-HGUA, UA and UMH.

+ Follow

Gloria Iacoboni

@gloria_iacoboni

Hematologist at Vall d'Hebron Hospital, special interest in new drug development for lymphoma treatment and immunotherapy.

+ Follow

David Beneitez, MD

@beneitez_david

@Hemato_Vhebron / Red Blood Cell Disorders Unit / ERN-EuroBloodNet Center / Clinical confirmation unit of SCD newborn screening programme in Catalonia

+ Follow

Sanofi España

@sanofies

Perseguimos el poder de la ciencia para mejorar la vida de las personas. Las interacciones con nuestra cuenta deben cumplir con bit.ly/3T0QmPv.

+ Follow

Salvador Payán-Pernía 🇵🇸

@salvadorpayan

Hematologist specialized in #anemia and other red blood cell and #iron metabolism disorders. Hospital U. Virgen del Rocío. 🏳️‍🌈 #SCD #PBM

+ Follow