🌟🌏The Ehlers-Danlos Society invites you to the 2025 Global Learning Conference, a can't-miss hybrid event in #Brisbane, Australia.🌐✈️ 📅 February 7-9, 2025 🎟️ Secure your spot! For more information, tickets, and scholarships, click here: ehlers-danlos.com/events/2025-gl…

🌏NEW: EDS ECHO Multidisciplinary Team Practice (MDTP) Australasia Program Commencing April 2! ⚕️It is designed for those currently involved in clinical work or planning to work with clients with #EhlersDanlossyndromes or #hypermobilityspectrumdisorders: ehlers-danlos.com/eds-echo-multi…

A recent study by @bendybrain published in BMJ Public Health found that individuals with generalized joint hypermobility might face a greater risk of not fully recovering from COVID-19. Read all about it here: ehlers-danlos.com/study-finds-pe…

Mark your calendars for May 11 during EDS Awareness Month!🗓️ Join us in Portland, Oregon, USA, at the Northwest Genetic Aortopathy & Arteriopathy Program Regional Symposium on Marfan Syndrome, Loeys-Dietz, and #VascularEhlersDanlosSyndrome (VEDS)! 🧬ehlers-danlos.com/events/nw-gaap…

Interactive Health System Simulation Workshop: Integrated Care for People Living with a Rare Disease - 6 May 2024, Perth. For more information, visit bit.ly/RArEST-project…

Chair and director of CTDNA Sue at the Marfan and Aortopathy Conference today in Brisbane. #CTDNA #MarfanSyndrome #HeritableDisordersOfConnectiveTissue

Today is #ClinicalTrialsDay (20 May), an opportunity to pause in reflection, recognition, and admiration of all that has been accomplished thanks to clinical trials and the people behind them. Today we celebrate the trailblazers among us! More: clinicaltrialsday.org/#ctd2024 #CTD2024

Low-dose naltrexone (LDN) has been used to treat chronic pain. There is, however, no agreement on effective dosage, leaving clinicians without guidelines on initiating treatment with naltrexone. A recent research study focused on understanding effective dosing for LDN through an

The Pelvic Disorders Working Group of the International Consortium on Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD), has collaborated on a comprehensive publication of guidelines tailored for healthcare professionals, and individuals with hypermobile

RVA Partner TAMS invites you to a free patient education webinar on Zoom. 💊 Learn more and register at: mastocytosis.org.au/news/education…

Launched: 'Taking Action Together Toolkit: Improving Health & Wellbeing Outcomes for Australians Living with a Rare Disease': bit.ly/4bjdfDz #RareDisease #RArESTProject

Long COVID is snuffing out some patients' dreams of having children, and complicating pregnancy and parenthood for those who choose to conceive despite their symptoms and doubts about when or if they will recover. abc.net.au/news/2024-12-2…