Ann-Marie Williams (@cornishtwinmum) 's Twitter Profile
Ann-Marie Williams

@cornishtwinmum

a mother of twins living with a chronic illness based in cornwall. trying to tell the truth. #cfs #ME #chronicillness

ID: 1706779499583447040

calendar_today26-09-2023 21:15:53

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Nia | The Chronic Notebook (@chronicnotebook) 's Twitter Profile Photo

People towards the chronically ill and disabled be like: If you hide your symptoms we will doubt you, but if you show them we will call you hysterical. If you hide them we'll assume you're better but if you show them we'll assume you're attention seeking. Sound good?

Dr David Cartland BMedSci MBChB MRCGP (2014) (@cartlanddavid) 's Twitter Profile Photo

Thank-you all from the bottom of my heart for your support on this matter. You have no idea how much you have helped me in my legal fight 🔥❤️👍 democracythree.org/david-cartland

Dr David Cartland BMedSci MBChB MRCGP (2014) (@cartlanddavid) 's Twitter Profile Photo

They get aggressive & defensive when questioned on this. Had a disturbing case of a lady prescribed a strong anticoagulant with high side effects/risk profile over a call that took 20 mins double the time of a 10min appt. Risk for DVT was 0 (Well’s score). This is negligence!

They get aggressive & defensive when questioned on this. Had a disturbing case of a lady prescribed a strong anticoagulant with high side effects/risk profile over a call that took 20 mins double the time of a 10min appt.  Risk for DVT was 0 (Well’s score). This is negligence!
Allyn Condon (@allyncondon) 's Twitter Profile Photo

Not long to go now until our Ben’s new inquest. Hopefully the low life that left him for dead and covered up their failings can be honest this time around University Hospitals Bristol and Weston NHS FT Bristol Royal Hospital for Children #BenCondon #Bristol #NHS #PICU independent.co.uk/news/health/be…

Ann-Marie Williams (@cornishtwinmum) 's Twitter Profile Photo

Our nhs is failing us. Letting people die due to negligence. 3 years waiting to get access to #mentalhealth is not acceptable. Left on a machine being fed with no care plan. Told to get mental health help, mental health say I need physical health. #nhsfail #nhs #chronicillness

Carole Bruce (@carolebruce17) 's Twitter Profile Photo

#MaeveInquest #ME #GreatestMedicalScandal This 👇was the case in the recent inquest into the death of Maeve Boothby O’Neill. Is this fair justice?

#MaeveInquest #ME #GreatestMedicalScandal 

This 👇was the case in the recent inquest into the death of Maeve Boothby O’Neill. Is this fair justice?
Paul Keeble ME/LC (@paulrkeeble) 's Twitter Profile Photo

A poignant image created by Jornelia Paulsen (the ME shrinking world pictures are also hers IIRC) on the #MaeveInquest and imagining all the seats in the court room taken up by other ME patients as imagined by Dan Wyke.

A poignant image created by Jornelia Paulsen (the ME shrinking world pictures are also hers IIRC) on the #MaeveInquest and imagining all the seats in the court room taken up by other ME patients as imagined by Dan Wyke.
Ann-Marie Williams (@cornishtwinmum) 's Twitter Profile Photo

I am dieing. Been told I've #chronicfatigue by exeter hospital like #maeveInquest . Told they don't know enough about it to help me. I'm scared. I'm on tpn but it's not helping I hope god takes me soon. #ME #cfs

Andrea Fighting for #MECFS Diagnostic Biomarkers (@mecfsnanoneedle) 's Twitter Profile Photo

In my opinion (as a patient) #MECFS is relapsing and remitting AND progressive. 3 things we cannot measure by biomarker - and not in real-time. The idea of "cure" in #MECFS is dangerous and too pervasive for such a complex problem which is funded .04 of the disease burden.

Ann-Marie Williams (@cornishtwinmum) 's Twitter Profile Photo

#chronicillness #ME #cfs time is ticking I'm not sure how much more I can take. The world isn't set up for me. I'm tired and exhausted fighting

#chronicillness #ME #cfs time is ticking I'm not sure how much more I can take. The world isn't set up for me. I'm tired and exhausted fighting