Parents of children with CF/CF carriers/CFSPID and adults with CF/CF carriers: Our study is exploring views of using extended sequencing to screen for more DNA mutations via newborn screening for CF in England. Find out more and how to get involved here: kcl.ac.uk/research/cf-ngs

Would you like to contribute to research into the acceptability of genetic screening with future implications for all babies in the UK? We are looking for 2 members of the public to join our oversight group warwick.ac.uk/smascreening/o…

We are putting on a free art event for school-aged children (6+ years) in the Priors Shopping Centre, Leamington Spa, this Saturday (12th Nov) on theme of genetics and identity. See website for details warwick.ac.uk/fac/sci/med/re… Imagining Futures

MEETING POSTPONED. As SERG was due to take place on one of the recently announced UCU strike dates, we have taken the difficult decision to reschedule. New date to be announced soon. Register on website to be kept updated warwick.ac.uk/SERG

Looking for 2 members of the public to attend 3 online oversight meetings (£75 per meeting), anyone (UK) over 18 welcome, would especially love to hear from parents of younger children (10yrs and under). No knowledge of subject needed, just enthusiasm! warwick.ac.uk/SMAscreening

Survey on whether all newborns should be offered screening for Spinal Muscular Atrophy (neuromuscular condition). Open to all UK residents, no knowledge of SMA or screening needed. Potential for impact on national screening policy warwick.co1.qualtrics.com/jfe/form/SV_38…

Survey for UK-based healthcare professionals supporting people affected by Spinal Muscular Atrophy (any capacity e.g. neurologists/nurses/paediatricians/ GPs/surgeons/physios/counsellors/speech therapists...) Potential policy impact warwick.co1.qualtrics.com/jfe/form/SV_em…

There is still time to complete our short online survey to help us understand how we can adapt to best meet the needs of those with a personal and professional interest in #animalwelfare #science ➡️ research.shift-insight.co.uk/UFAW-2

Stakeholder Views of the Proposed Introduction of Next Generation Sequencing into the Cystic Fibrosis Screening Protocol in England mdpi.com/2677798 #mdpiIJNS via @IJNS MDPI

New paper on healthcare professionals' views towards using next gen sequencing for Cystic Fibrosis newborn screening doi.org/10.3390/ijns10… Imagining Futures Jane Chudleigh Louise C. Moody

As part of our #ELSIabroad series, learn about #ELSI research in the United Kingdom with Felicity Boardman Professor at Warwick Medical School, and lead researcher, with Corinna Clark, of the SERGNetwork (Social and Ethical Research in Genomics) elsihub.org/news/elsi-abro…

❓ Scientists help policy-makers make public health decisions, but who helps the scientists? 🗣️ Supported by Warwick Institute of Engagement & 1 MILL STREET, our recent outreach event on public involvement in modelling & healthcare decision making! #warwickresonate 🔗: resonatefestival.co.uk/stories/who-he…

You can read all about our recent MEMVIE project (PPIE in mathematical modelling for vaccination programmes) event as part of the Resonate Festival with Warwick Institute of Engagement here...Sophie Staniszewska resonatefestival.co.uk/stories/who-he…

Discover how #diseases spread and how #vaccination programs are evaluated in this insightful animation from the MEMVIE project. Funded by the NIHR, MEMVIE excels in public involvement and #health economic modelling. Learn more about their work and impact! bit.ly/4cM4y5L

We have published a report that looks at different ways to improve clinical research for participants. Our People-Centred Clinical Research project has made 19 recommendations for change, and identified nine hallmarks of good research. Find out more ➡️ hra.nhs.uk/about-us/news-…

Join us on 11th Sept 10-12 @ university of Warwick for the next SERG meeting! Presenters are Dr Rich Gorman (EPPiGEN) and Dr Lisa Hinton (VALENTIA). Sign up via the SERG webpages: warwick.ac.uk/SERG

youtu.be/qrA41SQEaBw Public & Patient Involvement is health research is so important and representation in PPI is vital

SERG meeting registration now open for our London meeting (25th Nov) warwick.ac.uk/fac/sci/med/re… SERGNetwork Imagining Futures Jane Chudleigh