
Cooley's Anemia Foundation
@cooleysanemia
Cooley's Anemia Foundation is a US nonprofit dedicated to serving people with all forms of the genetic blood disorder #thalassemia.
ID: 223849670
http://www.thalassemia.org 07-12-2010 14:08:26
4,4K Tweet
1,1K Followers
126 Following

American Red Cross
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The official account of the American Red Cross.
Nonprofit Tech for Good
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Nonprofit Tech for Good shares useful digital marketing and fundraising resources. We follow nonprofits, charities, NGOs, and activists worldwide. 🌐
Vertex Pharmaceuticals
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Johns Hopkins Center for Health Security
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NonProfit Times
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Vitalant - New Jersey
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Nonprofit Quarterly
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SCDAA
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ASH
@ash_hematology
The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.
ISBT Central Office
@isbtco
ISBT - International Society of Blood Transfusion Official tweets, discussions and media content from the International Society of Blood Transfusion (ISBT)
AABB
@aabb
AABB is a not-for-profit association representing institutions and individuals working in transfusion medicine and biotherapies. #AABB2025 #AABBjc #AABBcabp
bluebird bio
@bluebirdbio
We’re pursuing curative #genetherapies to give patients and their families more bluebird days. Guidelines: bit.ly/bbbGuidelines
Sickle Cell Society
@sicklecelluk
The Sickle Cell Society supports and represents people affected by sickle cell disorder to improve their overall quality of life.
Thalassemics India
@thalindia
NGO based in New Delhi - India helping children suffering Thalassemia. The official twitter handle of Thalassemics India
Lachelle Dawn
@lachelle_dawn
hematologist & CHIP clinic director | scientist | une goutte du soleil sous la terre | justice is restorative | i tweet what i want | pronouns: she/her/hers
Rare Diseases Clinical Research Network
@rarediseasesnet
NIH-funded network fostering collaborative research among 20 teams of researchers, patients, and clinicians, each focused on a group of rare diseases.
Silence Therapeutics
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CDC_NCBDDD
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Rare Disease Report
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Columbus Citizens Foundation
@ccfdn

UK Thalassaemia Society
@teamukts
We support families & professionals, educate, campaign for change & fund research.
BloodCollectorsWeek
@bloodcollectors
Dedicated to recognizing the contributions of phlebotomists, apheresis operators, and all those who help secure blood for patients in need. #bloodcollectorsweek
Domenica Taruscio
@dtaruscio
MD, Former Director of the National Centre for Rare Diseases @istsupsan . TW are personal views. RT≠endorsement facebook.com/domenica.tarus…
TIF
@thalassaemiatif
A non-profit organization based in Cyprus advocating for the prevention & treatment of thalassaemia & other haemoglobin disorders & patients' rights worldwide.
The Lancet Haematology
@thelancethaem
The Lancet Haematology is a world-leading #haematology journal publishing peer-reviewed research and reviews, opinion, and news. #hematology
ASH Clinical News
@ashclinicalnews
A magazine from @ASH_Hematology offering news and views for the broader hematology/oncology community.
LaTasha Lee, PhD,MPH
@docteelee
#HealthEquity & patient engagement professional; #SickleCell advocate; Neuroscientist, policy wonk, & professor. #NMQF40Under40 Views are my own.
New Jersey Blood Services
@newjerseyblood
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Society of Hematologic Oncology (SOHO)
@societyofhemonc
The only worldwide society dedicated to hematologic malignancies. Join SOHO FREE➡️ soho.click/join Register for SOHO 2025: soho.click/2025
Blood Journal
@bloodjournal
Blood, the flagship journal of @ASH_Hematology, is the most cited peer-reviewed publication in the field of hematology, available weekly in print and online.
Blood Advances
@bloodadvances
Peer-reviewed journal of @ASH_hematology publishing original articles describing basic laboratory, translational, and clinical investigations in hematology.
Agios
@agiospharma
Passionately committed to applying our leadership in cellular metabolism to transform the lives of people with rare diseases
Thalassemia Patients Advocacy Group
@pagthals
Patient advocates from across India who believe there can be #NothingAboutUsWithoutUs. We talk about #safeblood #disability #thalassemiaprevention
UCSF Center for Maternal-Fetal Precision Medicine
@ucsfcmfpm
We discover genes that drive fetal anomalies & develop fetal molecular therapies to treat serious genetic diseases before birth. @ ucsfcmfpm.bsky.social
emma ✨
@atthesamemoon19
reneé all day
Giuliana Grossi
@giulianagrossi
Editor 💬 @AJMC_Journal Director of Center on Health Equity & Access my views active on bsky - not here
Francesca Vinchi
@ironresearchlab
@NYBloodCenter, Head of Iron Research Lab #IronHomeostasis #SickleCellAnemia #Thalassemia #MDS #BloodTransfusion #Erythropoiesis
CheckRare
@checkrare
Leading publisher and learning platform focused on rare diseases. Rare Diseases Are Our Focus, Expertise, and Passion.
RARE-X
@rare_x_
PATIENTS' DATA POWERING PROGRESS - RARE-X is expected to become the largest data-sharing initiative focused on rare diseases. More to come.............
The Rare Disease Company Coalition
@rarecoalition
We are a coalition of life science companies committed to discovering, developing & delivering rare disease treatments for the patients we serve. #OneRareVoice
Martin S. Tallman, MD
@martintallman
Adj Professor MSKCC. Former Chief Leukemia Service MSKCC, Past President of @ASH_Hematology. Tweets my own.
CardioOncology Poland
@oncology_cardio
Sebastian Szmit (#CardioOncology, President #ICOSPoland), Jarosław Kępski (#cardiology), Michał Wilk (#oncology)
Prithviraj Bose
@bose_prithviraj
Professor, Leukemia at MD Anderson; Co-Leader, section of myeloproliferative neoplasms (MPN). Tweets reflect my own views; not necessarily my institution's.
The RBCD Hub
@rbcdhub
🩸A space to connect about #SickleCellDisease, #Thalassemia, & other #RedBloodCellDisorders🌙 🌊|✨Official Blog of @UHN’s RBCD Clinic✨ | Stories that Matter 🗞
The PTCTC
@theptctc
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Akshay Sharma MD
@akshaysharmamd
Pediatric Bone Marrow Transplant @StJudeResearch #GeneTx #GenomeEditing #SickleCell Tweets and opinions are my own ≠ medical advice. COI: bit.ly/3uZhzmg
Alexis Thompson
@dralexisthompsn
Pediatric Hematologist, advocate for patients with blood disorders, providers caring for them, researchers working to improve outcomes. All my personal views.
Ben Samelson-Jones, MD, PhD
@drsamelsonjones
Pediatric Hematologist | Gene Therapist | Biochemist | Husband | 👩👦👧👶 🐕 Dad | #WilliamsSyndrome Advocate | Views my own
Hemanext
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Dr.Héctor De Los Santos
@drhctordelossa1

Amiri Ayanna, Ph.D.
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Passionate research grant writer for cutting-edge scientists and changemakers at Boston Children's Hospital
Frontier Foundation
@frontierfounda3
A not for profit humanitarian organization serving Thalassaemia and Hemophilia patients with a vision of Thalassaemia Free Pakistan
Christopher Bocquet
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I work blood adjacent...
Atara Bio
@atarabio
Atara Biotherapeutics $ATRA develops next-gen #CART therapies & off-the-shelf allogeneic #TCellRx #immunotherapy for cancer & #MS #EBV+ #PTLD #celltherapy
Transfusion News
@transfusionnews
The latest news in Transfusion Medicine. The home of "Transfusion Medicine Question of the Day." Free Continuing Education.