
Contact
@contactfamilies
UK disability charity for all families caring for a disabled child ☎️ support, info & advice ❤️ bringing families together 📢 campaigning for change!
ID: 14153075
https://linktr.ee/contactfamilies 15-03-2008 15:33:52
26,26K Tweet
33,33K Followers
6,6K Following

Dingley's Promise
@dingley
Dingley's Promise is a charitable company that supports under 5's with additional needs and their families.
Jessie May
@jessiemaytrust
Jessie May nurses provide specialist palliative and respite care at home for children with life-limiting conditions in the South West.
Scope
@scope
We’re Scope, creating equal futures with disabled people. Daring the world to think differently about disability. Join us.
Carers UK
@carersuk
Caring for a relative or friend? When caring affects you and your family Carers UK is here to provide the support and advice you need.
Mencap
@mencap_charity
Our vision is for the UK to be the best place in the world for people with a learning disability to live happy and healthy lives.💜
Action for ME
@actionforme
This account is no longer actively managed.
Epilepsy Foundation of America
@epilepsyfdn
#EpilepsyAwareness & Education | FREE #SeizureFirstAid Certification | 24/7 Helpline (1-800-332-1000) | Unwavering ally for people w/ #epilepsy & #seizures.
Scoliosis Support & Research
@scoliosis_sr
Formerly SAUK and BSRF. We raise awareness, provide support and fund research for scoliosis & spinal conditions in the UK.
Ayshah Tull
@ayshahtull
Journalist | Presenter| Friend | @channel4news | Netballer | Trustee @JSchofieldTrust Agent @KnightAyton
Down's Syndrome Association
@dsainfo
Supporting people who have Down's syndrome to live full and rewarding lives.
Carers Trust
@carerstrust
One in ten of us are providing unpaid care to someone. Carers Trust is here to provide action, help and advice to 7 million carers across the UK. Join us.
MediCinema
@medicinema
Our in-hospital cinemas reduce the stress, anxiety and isolation felt by so many patients on the wards.
Research Institute for Disabled Consumers (RiDC)
@ridc_uk
Research charity with a panel of 4,000 disabled/older people working with businesses/organisations making products and services inclusive and accessible for all
Sibs
@sibs_uk
UK charity for brothers and sisters of disabled children and adults.
ME Association
@meassociation
We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
Prof Ryan
@sarasiobhan
Activist. justiceforlb.org. @mylifemychoice1. theguardian.com/profile/sara-r… @LearningMet MMU. Dr Dr she/her. @sarasiobhan.bsky.social
CALL Scotland
@callscotland
We help children and young people across Scotland to overcome disability and barriers to learning using assistive and communication technology.
Ben Coleman
@chelfulhamben
Labour MP for Chelsea & Fulham. Member of @CommonsHealth. 👉bencoleman.uk/newsletter | bsky.app/profile/chelfu…
Family Fund
@familyfund
Championing families with disabled children through partner collaboration, research and family voices.
Angela Rayner
@angelarayner
Deputy Prime Minister of the United Kingdom. Secretary of State for Housing, Communities and Local Government. MP for Ashton-under-Lyne.
StarlightMcKenzie
@starlightmckenz
Meetings are not Outcomes (MANO). Passionate about fairness, transparency and accountability In SEN.
IPSEA
@ipseacharity
Registered charity helping children and young people with SEND get the education they are entitled to by law. We monitor this account in working hours.
Gene People
@genepeopleuk
Charity supporting families affected by genetic conditions providing the UKs only free Genetic Counsellor-Led Helpline 0800 987 8985 | [email protected]
RareDiseaseFdn
@rarediseasefdn
Changing the lives of patients affected by rare & undiagnosed diseases through social support, advocacy & treatment-focused research. linktr.ee/Rarediseasefdn
Ambitious about Autism
@ambitiousautism
We stand with #autistic children and young people so they can be themselves and realise their ambitions. We run services and campaign for change.
Sjögren's Foundation
@sjogrensorg
Creating a community where patients, healthcare professionals & researchers come together to conquer the complexities of Sjögren's. #ThisIsSjögrens
Lucy Webster
@lucy_webster_
Journalist | Disability advocate | @guardian @thetimes etc | @cbgbooks @JLASpeakers | THE VIEW FROM DOWN HERE, memoir of ableism and sexism, out now 👩🦼🏳️🌈
Disabled Children's Partnership
@dcpcampaign
The DCP is a coalition of organisations campaigning to improve support for disabled children, young people & families. #SENDABetterMessage
CDC
@cdc_tweets
Hello! The Council for Disabled Children (CDC) is the umbrella body for the disabled children’s sector in England. Part of the @ncbtweets family
Rare Genomics
@raregenomics
RGI is a non-profit organization that provides research to families in need of diagnosis & treatment for rare genetic diseases.
Special Needs Jungle
@spcialndsjungle
Parent volunteers writing & podcasting about all things #SEND. Telling it like it is & how it should be since 2008 Independent strategic advocacy #EHCP #fixSEND
A Child Of Mine
@achildofmine
Supporting families and working with the professionals when a child dies. Registered Charity Number 1152159
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Guts UK Charity
@gutscharityuk
We're the national charity for the digestive system. We provide information and support, fund life-changing research, and raise awareness about our guts. 💚
Mushy
@musharafasghar
Proud Stammerer | Speaker | Journalist | Mushy off Educating Yorkshire | I make YouTube videos about stammering! Any enquiries contact: [email protected]
EDS Awareness
@edsawareness1
An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians.
Motability Foundation
@motability
We are building a future where all disabled people have the transport options to make the journeys they choose. For customer queries please call 0300 456 4566.
NASS
@nasschools
National Association of Independent Schools & Non-Maintained Special Schools working with special schools not maintained by local authorities in England & Wales
Tuberous Sclerosis Association
@uktsa
Support, research and advocacy for the Tuberous Sclerosis Complex (TSC) community. Social media community guidelines: bit.ly/3z4j7hz
Carers Scotland
@carersscotland
Carers Scotland is a charity set up to support the 759,000 people in Scotland who care for a relative, partner or friend who has a disability or ill health.
Lucy Bray
@lucybray9
Professor of Child Health Literacy. #healthliteracy #children #childrencomingtohospital Tweets are my own. youtube.com/@professorlucy…
UK Thalassaemia Society
@teamukts
We support families & professionals, educate, campaign for change & fund research.
Bardet-Biedl Syndrome UK (BBS UK)
@bbs__uk
UK Charity, supporting people with Bardet-Biedl syndrome, their families, and their carers. Registered Charity Number 1181244.
Richard Kramer 🇺🇦
@richardkramer_
Ex Chief Exec @sensecharity @SenseInternatl Proud Trustee of @CareTechFdn @en4ei and NED @RCHTWeCare Views my own. Cornwall 〓〓
PINNT
@pinntcharity
A UK charity, support and advocacy for people on home artificial nutrition. We educate and build partnerships with relevant people to advance our cause.
Emily♡
@itsemilykaty
Author of GIRL UNMASKED: HOW UNCOVERING MY AUTISM SAVED MY LIFE (the Sunday Times Bestseller) 📚 FIND ME ON INSTA/LINKEDIN/TIKTOK
Dr Alison Pearson
@alisonpearsonsw
Postdoctoral research fellow researching education, wellbeing, resilience. Mum to a beautiful trisomy girl.
The Boparan Charitable Trust
@boparantrust
Changing the lives of children across the UK with disabilities, life-limiting conditions or in extreme poverty. RCN: 1129992.
International Epilepsy Day
@intepilepsyday
International Epilepsy Day is a global event celebrated annually on the second Monday in February, to promote awareness on epilepsy right around the world.
Standing Up to POTS
@potsactivist
SUTP works to improve quality of life for people living with postural orthostatic tachycardia syndrome (POTS) through research, advocacy, and support.
Garfield Weston Foundation
@westonfdn
A family founded grant-maker supporting a wide range of charities across the UK, with grants totalling over £100 million last year.
Women & Equalities Committee
@commonswec
We are a cross-party group of @HouseofCommons MPs working together to scrutinise the Government on equalities. See what we're working on 👇
Children's Hyperinsulinism Charity UK & Ireland
@chcharityuk
Support Group, Fun Days, Conferences, Resources, Advocacy, Raise Awareness, Support Research. Supporting Hyperinsulinism families across UK & Ireland
NHS Ability
@nhsability
Talks with people with a learning disability, autistic people and family carers about NHS England.
Catriona Moore
@catrionamoore13
Policy manager @IPSEAcharity. Contributor @SpcialNdsJungle. Advisory group member @SexMattersOrg. Book-lover. Personal account with own views.
SEND Action
@send_action
UK network of disabled children and young people, families, carers and allies working together to uphold the rights of disabled children and young people.
Effie Parks
@onceuponagene
Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Square Peg
@teamsquarepeg
Because one size doesn't fit all in education | EBE led, grassroots, strategic specialists in persistent absence + barriers to school attendance | #squarepegs
Catherine Murnin - The Wellbeing Pathway
@catherinemurnin
Founder The Wellbeing Pathway | 🔴TEDx Curator | Facilitator | Coach | Author & Podcaster Wisdom of Wellbeing | Keynote Speaker | Leadership & Wellbeing
The GAAD Foundation
@gaadfdn
Our vision is that accessibility (#a11y) is built into the product development lifecycle for technology and digital products.
Rareminds
@raremindsuk
Specialised mental health and wellbeing services for the rare disease community. bit.ly/rarementalheal…
Rae
@raea_smith
Mum & carer. Disability Campaigner. Views mine 📸dogs mine 🐾
Young Carers Alliance
@ycalliance
A network of organisations and individuals committed to improving the support available for young carers, young adult carers and their families.
National Playday
@nationalplayday
The national day for play in the UK - celebrated on the first Wednesday in August every year Coordinated by @playboard_ @PlayWales @PlayScotland @playengland
It’s Never You Charity
@itsneveryou22
Advocating for change and supporting parents of children with cancer. Together, we strive for a better future. Reg. UK charity 1198257
ASN Reform Scotland
@asnreformscot
We are a grassroots, parent-led group of campaigners and activists. Our goal is to reduce the ASN attainment gap. [email protected]
SMILE Children’s Charity
@smilechildrens
SMILE Children’s Charity provides support to families of seriously ill or disabled children. Scottish Charity Registration Number - SC053107
Money and Mental Health
@mmhpi
Charity working to break the link between financial difficulty & mental health problems. Founded by @MartinSLewis. Led by @helen_undy.
Nystagmus Network
@nystagmusuk
Supporting the #NystagmusCommunity linktr.ee/nystagmusnetwo… Registered charity no. 1180450
Paula McGowan OBE (Also on BlueSky)
@paulamc007
•Hon University Fellow- Fac Health •Founder The Oliver McGowan Mandatory Training •Patient Safety Trying to survive Cancer #Melanoma