Proper diagnosis is important. Drs who keep asking why we need a name for our symptoms miss the point. It helps us find a community, try new treatments, improves #mentalhealth for us & our loved ones & accept the things that can't be changed. #NEISvoid #POTS #EDS #chronicillness

So much depressing timeline content today. Reminder to myself and all my disabled friends: We aren't burdens. We aren't burdens in any way. We aren't burdens to society or to our loved ones. We have the right to care. We are worthy of love and respect. We have inherent value.

Got Hobbies? They do the Spoonie Body Good! Did you know hobbies can actually make people with chronic illnesses healthier? 🎧 Download the episode to find out how: podcasts.apple.com/us/podcast/the…

Friend of mine got her MRI back. Showed major spinal issues & she’ll need surgery. Two other docs had told her she was menopausal & her pain was all in her head. But she knew better. Keep fighting Spoonies! You know your bodies!! podcasts.apple.com/us/podcast/the…

You’re right. I’ve learned to quit unhealthy relationships. Inflammatory foods. Exercises that hurt my joints. Doctors that don’t listen. And it’s gotten easier over time to quit all those things that are bad for me and set better boundaries. You’re right. podcasts.apple.com/us/podcast/the…

On this episode, we discuss where some of these Best Places to Live for Spoonies lists. What they got right & what to take w/ a grain of salt. Also, what you need to think about before moving to a new county or state. Download and then share your thoughts! podcasts.apple.com/us/podcast/bes…

Greg Abbott has armed guards who don’t let people get close, daily testing for anyone he comes into contact with, a whole team disinfecting the Governors mansion and a medical staff on standby And he STILL got that shit I’m sure those unmasked Texas schoolkids will be fine, tho

It's amazing how many people don't know that they have legal rights when they walk in the door of a medical facility. The Patients' Bill of Rights are essential for Spoonies to know & we go over all of them in this week's episode. An essential listen! podcasts.apple.com/us/podcast/the…

When we decided to do an episode to talk about how the Texas abortion law would impact Spoonies,we decided to just talk about the law and what it means for someone with chronic illness. Period. Make it a NO JUDGEMENT ZONE. So take listen: open.spotify.com/episode/6rNjUW…

Chronic illnesses include those of the mind (sometimes we forget). On this episode we talk to Peyton Garland, author of "Not So By Myself" & fellow Spoonie living with Obsessive Compulsive Disorder--or OCD--about her diagnosis & feeling less isolated. DL: open.spotify.com/episode/6THFco…

“The search for happiness is one of the chief sources of unhappiness.” ~ Eric Hoffer

I am 67 years old. I have never seen a young Black woman's disappearance covered like the #gabbypetitio disappearance. Not once. That is horribly wrong.

This is totally true. And as a lot of Spoonies have weight issues...we need to advocate more! BMI is a joke, and your weight doesn't always mean unhealthy! tiktok.com/@andydoeshealt…

If you have #endometriosis (or even wonder what it is!), this is the episode for you. Joined by our special guest, Madison Corley of The Endo Resistance Project and The Sour Collective Magazine, we discuss the ins and outs of endometriosis. podcasts.apple.com/us/podcast/the…