
Children's Tumor Fdn
@childrenstumor
The Children's Tumor Foundation is the drug discovery engine pioneering more solutions, better options, faster for all NF patients.
ID: 30002694
http://www.ctf.org 09-04-2009 15:17:38
6,6K Tweet
6,6K Followers
818 Following

Andrew Wilkinson
@awilkinson
Co-founder of Tiny w/ @_Sparling_. We own @Dribbble, @Serato, @Letterboxd, @AeroPress, and 35+ other wonderful companies. Author of Never Enough.
AACR
@aacr
The mission of the American Association for Cancer Research is to prevent and cure cancer through research, education, communication, and collaboration.
Sara Gosline
@sargoshoe
Computational biologist/data magician @pnnl focused on the interplay between chemicals and the human body. All views my own.
FiercePharma
@fiercepharma
Pharma’s go-to destination for news & trends shaping approved drugs. Delivering news, revealing insights straight to your inbox.
Aashim Bhatia, M.D., M.S.
@draash
Pediatric Neuroradiologist @CHOPRadiology & Assis. Prof @Penn • 🧠BHATIA LAB Brain Tumor Imaging Advancements @BhatiaLab • @The_ASPNR • 🎧♟🏀🎾🏈⚾️ • ❤️Philly
Tina Saey
@thsaey
Senior writer covering molecular biology for @ScienceNews Geek. Lover of science fact and fiction. Standard disclaimers may apply. Mileage will vary. She/her
Alex's Lemonade Stand Foundation
@alexslemonade
Nonprofit fighting childhood cancer, one cup at a time. Connecting with our childhood cancer supporters & giving ways to help in the fight. #OneCupAtATime
AACR Foundation
@aacrfoundation
The AACR Foundation supports the American Association for Cancer Research, the first and largest cancer research organization in the world.
Adam Pearson
@adam_pearson
Presenter / Actor / Campaigner. Bookings - [email protected]. #ADifferentMan (He/Him).
Ryan Eversley
@ryaneversley
Professional Race Car Driver for @PrecisionRacLA. Co-Creator and Host of the Television show and podcast @DWRshow!
Vanessa L. Merker, PhD
@vlmerker
Health services researcher at @MGHNeurology passionate about #PatientEngagement in research, #RareDisease and the working woman. Trained @BUSPH & @VA_CHOIR.
Jineta Banerjee
@jinetab
Scientist || Tech enthusiast || Data explorer || Reproducible Science
tracy gregorash
@tracygregorash
Thankful for every blessing.🙏 Need coffee before talkie.☕️ Often found in nature with my camera.📸 Wife, mom, teacher, wellness helper, Advocate for NF. 💙💚
ACMG
@theacmg
American College of Medical Genetics and Genomics (ACMG): Translating Genes into Health® @GIMJournal #ACMGMtg25 #ACMGFoundation Site Use bit.ly/2Xgjd6l
Francis Deng, MD
@francisdeng
Neurorad/@headneckrads | Asst Prof @Hopkins_Rad | educator, editor, podcaster interested in diagnostic excellence. Also francisdeng.bsky.social
Danica McKellar
@danicamckellar
Stream #SwingIntoRomance💃 & #TheWinterPalace 💙 on @pureflix! Find me on @gafamilytv 📺🤗 Preorder 📚 *I Love You 100!* 📚 Love God & EVERYONE ❤️
Qui Le
@catofsachse
bsky.app/profile/qui.ooo • @gipnetworks DC Tech • ex-support @Shadow_Official • SysAdmin @ridewithdata • Neurodivergent (AuDHD/NF1💚💙) • #AsianLivesMatter
American Academy of Pain Medicine (AAPM)
@ameracadpainmed
AAPM is committed to advancing & promoting the full spectrum of multidisciplinary pain care to improve life for people in pain.
Neurofibromatosis Network
@nfnetwork
Neurofibromatosis (NF) Network is the national non-profit serving individuals affected by neurofibromatosis. Leading NF Advocacy, Building NF Community.
Magda
@magdaefpia
From science to patients: connecting research & healthcare agendas. Views expressed are my own
Michele Holbrook
@4nfcure
A successful real estate agent, 2023 Children's Tumor Foundation Ambassador and an advocate to raise awareness for substance use disorder/addiction.
Kelly Carpenter
@hockey_nf_mom
Wife, Mom of 3 boys (one with NF), Meteorologist
Mittun Creative
@mittuncreative
Better websites for a better world. ⚡️⚡️
Otology&Neurotology
@oandnonline
Otology & Neurotology publishes original articles relating to both clinical and basic science aspects of otology, neurotology, and cranial base surgery.
Catherine Feore 🇺🇦
@orpheuseu
Vice-President @apibrussels Board member @PressClubBXLEU Views are personal
Jen Underwood
@vandygirl1998
Things I love: Raising Nats Fans. Vandy. The 2019 World Series Champion Washington Nationals. Hugs. Smiles. One Braves fan. Kindness. Looking on the bright side
Shannon Stott
@svploeg
Mechanical engineer that likes to create small things with the hope that they might have a big impact in cancer. Mother of three. She/hers. Opinions are my own.
Carlos Prada
@prada2013
Geneticist, Division Head, Professor and Latino, Tweets/Opinions are my own
Nerve Tumours UK
@nervetumoursuk
Formerly “The Neuro Foundation”. We fight to support those living with conditions that cause nerve tumours. T: 0208 439 1234
Taylor Sundby, MD 🧬
@rtsundby
🎗️Ped-onc @NCI_CCR_PedOnc |#NF1, #cancerpredisposition, #raretumors, #EarlyDetection, #cfDNA & biomarkers|Proud dad|Opinions=own
Nf2UK
@nf2uk
Dog-eared advocates still hoping for a cure ..... general NF2 info: nhs.uk/Conditions/neu…
NFIreland
@nfireland
At NF Ireland we aim to be a voice for NF patients, carers and their families. Reg Charity: CHY 6657
Caroline
@nfoftristate
my.cupids.org/cur/city/Wilmi…
Radhika Dhamija, MD, FACMG, FAAN🧬🧠👶
@neurogenesdr
momX2, Geneticist&pedsneuro @mayoclinic,Med school @aiims_nd
DeepScienceVentures
@deepsciventures
Deep Science Ventures is a venture creator, combining available scientific knowledge and founder-type scientists into high-impact ventures.
RASopathies Network
@rasopathiesnet
A 501c3 organization; Our mission is to advance research of the #RASopathies by bringing stakeholders together. #rarediseases @rasnet.bsky.social
Mass General Brigham Research
@mgbresearchnews
Where #science and #medicine converge to improve patient care. We ❤️🔬
Young SIOP
@youngsiop
Young SIOP aims to help young SIOP members, in the field of paediatric oncology to develop research skills and to create an international network
Patient Worthy
@patientworthy
We're a resource for engaging, informative content and rare patient news, well done.
Dr. Doug Lowy
@ncidrdouglowy
Douglas R. Lowy, MD, Acting Director of @theNCI. This account is inactive, follow Dr. Lowy at @NCIDirector. Privacy: go.usa.gov/xyJZF
Sara Veiga
@sciencysara
Science padawan 👩🔬 Postdoc at @svploeg lab, interested in EVs 🇵🇹🏴🇺🇸 🌍 @SNEVresearch Past President🔬@ISEVorg MaL, Education Committee
Gilbert Family Foundation
@gilbertfamilyfd
The Gilbert Family Foundation exists to grow opportunity and equity in Detroit and our home cities, and to accelerate a cure for neurofibromatosis.
Lindy Zhang, MD PhD
@dr_lindyzhang
Ped Hematology/Oncology Fellow🎗@JohnsHopkins, studying NF1-MPNST || @APAMSA alumnus || forever Go Blue! 〽️
Angela Hirbe
@angelahirbe

Simge Acar, MD
@simgemd
PGY-1 👶 @ComerChildrens @UChicago | Former research fellow @WUSTLmed | @KU_Medicine | 📸🥾🚴♀️👩🍳 | from 🇹🇷🌊
Alexion Pharmaceuticals U.S.
@alexionpharmaus
Alexion, AstraZeneca Rare Disease was created following the 2021 acquisition of Alexion Pharmaceuticals, Inc. U.S. Community guidelines: bit.ly/39x9gqy
Walker Lab at MGH
@walkerlabmgh
Research lab based in the Center for Genomic Medicine at Massachusetts General Hospital working to #EndNF.
Cancer Research Horizons
@cr_horizons
We are @CR_UK’s #innovation arm. We strengthen #academia & #industry collaboration, bridging the gap between research and the market.
UK Focused Ultrasound Foundation
@ukfusfoundation
Improving lives by making focused ultrasound available in the shortest time possible.
Andi McClatchey
@amcclatcheyphd
Believer in the power of studying biology to combat cancer and other diseases. Mom, environmentalist, lover of dogs, nature, hiking, sports, music.
Danielle Carnival Archived
@dcarnival46
This is an archive of a Biden Administration account, maintained by the National Archives and Records Administration.
Laura Fertitta
@laurafertitta
MD, Dermatologist, @CERENEFMondor, @GHUMondor, France
Mekka Garcia
@garciamekka
PGY-5 Child Neuro Resident at NYU. Aspiring Pediatric Neuro-oncologist
Tumour Support Scotland
@tumoursupport
Official twitter account of Tumour Support Scotland (formerly Funny Lumps).
Nf Aware Nigeria
@nfaware_ng
Bringing visibility to neurofibromatosis one post at a time. 💚💙 'If we are not seen, we cannot be heard.'
Zhao Ding
@sznfcc
Father of NF2 rare disease patient; raise awareness and funding for NF2 cure; Volunteer at China Pao Pao Home Neurofibromatosis Care Center
Neurofibromatosis Therapeutic Acceleration Program
@ntapresearch
Accelerating the development of effective therapeutics for plexiform and cutaneous neurofibromas
Catherine Feore - Euractiv
@healthhubeditor
Big Pharma, Little Pharma, communicable disease, non-communicable disease, healthcare news [email protected] [email protected]
Namrata GR Raut (she/her)
@namratagrraut
ResearchFellow @JankowskiLab @CincyChildrens #endNF1 #epigenetics #SEMOalum #TWUalum NeuroscientistInProgress 📍#Nepal🇳🇵to 📍#USA🇺🇸 Views are mine
Jaishri Blakeley
@jblakel3
Marjorie Bloomberg Tiven Professor of Neurofibromatosis; Johns Hopkins University
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Scullaaay!
@scullycoffee4nf
Fan-run fundraiser on Scully's birthday (Feb 23) for the @nfnetwork, inspired by #TheXFiles and #GillianAnderson. #ScullyCoffee4NF
Letta K Lewis FDN
@lettasfight
Join us in the fight for early diagnosis, better treatment, and support for NF families. Together, we can make a difference! #LettsFight #NFAwareness #SupportNF
Chan Zuckerberg Initiative
@chanzuckerberg
We're a new kind of philanthropy that builds tech and partnerships to accelerate progress in science, education and create a thriving California Bay Area.
Jesus G Aranguena
@aranguenajga
Raising awareness about #noonansyndrome and #neurofibromatosis #endNF . Father of daughter affected by both. No al cierre de CEE 💚💚💚
Christine MacKenzie
@ccmackenzie_phd

Global Coalition for Adaptive Research
@gcaresearch
GCAR is a 501(c)(3) nonprofit organization accelerating the discovery and development of treatments for patients with rare and deadly diseases
Abby Rosenberg, MD, MS, MA
@abbyrosenbergmd
Chief, Pediatric Palliative Care @DanaFarber, @BostonChildrens; @harvardmed; clinician, researcher, change-maker. Tweets my own. She/Her/Dr. 🌈