
Chiesi Global Rare Diseases
@chiesigrd
We are making a rare difference.
ID: 1338523872304443401
https://chiesirarediseases.com/ 14-12-2020 16:39:06
854 Tweet
578 Followers
32 Following

John Vandermosten
@vanjohn10
Biotechnology Analyst, CFA. Cancer, Autoimmune and Neurodegenerative Diseases. Audaces fortuna iuvat.
Pramod Allani
@pramallani

angel jose pereira
@angelpereira450

Brian Dawson
@bkdawson1313
Librarian, @TedXOilCityLibrary founder, autodidact. Paramedic, Police Officer in a previous life. Tweets & thoughts are my own.
NoraTelloLittman
@nora1207

Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
stefany
@stefanybaquero
❤️Endocrinologist, MsC Public Health. PhD nutrition .🍏
Lisa Corkum
@lisacorkum
Licensed Health Coach|Facilitator| Achieve lifelong change one step at a time. svc.lisacorkum.com/forget-willpow…
MPS Society UK, here for those with rare diseases
@mpssocietyuk
MPS Society UK is the only registered charity providing professional support to those affected by MPS, Fabry and related diseases.
Vaibhav Mandre
@vaibhavmandre

Jean-François Savard
@savardjf
MSc in computer science with a major in artificial intelligence. 10+ years experience in the technology industry.
IPOPI
@ipopi_info
IPOPI is the association of Primary Immunodeficiency national patient organisations. Improving awareness, access to early diagnosis and optimal treatments.
Rare Patient Voice
@rarepatientvoic
We help clients find rare & non-rare disease patients & caregivers for research studies, & connect patients & caregivers with paid research opportunities.
Denville Partners
@denvillepartner
Executive Search & Organizational Consultancy. We partner with Biotechs, small Pharma & industry related nonprofits. We build mission driven teams.
ThePharmacologist
@thepharmaphd
Atom Smith, Ph.D. Pharmacologist/Neuroscientist/Cancer Survivor. All opinions are my own. #biotech #ducati #cancer #science #pain
Chiesi España & Portugal
@chiesi_es
Nos impulsa el #propósito de mejorar la calidad de vida de las #personas. #SomosBCorp. Consultas sobre seguridad de nuestros medicamentos: bit.ly/3k2jOSN
Cambridge Rare Disease Network (CamRARE)
@camraredisease
making #rarediseases an everyday conversation bsky.app/profile/camrar…
Antonio Ochoa
@afocoa
Hospital Pharmacist. I am still trying to figure out many things, including my views, so take them with a pinch of salt or two; three probably not good for you
Annick Torremans
@annicktorremans
Communication | Healthcare | Pharma | Janssen Benelux | views are my own
Francesco Fuggetta
@fuggettaf
Giornalista Professionista e Addetto Stampa. “So di non sapere, ma un vero giornalista spiega benissimo ciò che non sa” (Socrate & Leo Longanesi)
Effie Parks
@onceuponagene
Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Kushol Gupta
@guptapenn
Research Assistant Professor of Biochemistry and Biophysics | Univ of PA | he/him Find me at @guptapenn.bsky.social
Grande Texan
@grande_texan

S Gregory
@sgregor94958033

McDonalds Official
@mimi59617954

Chiesi Group
@chiesigroup
International pharmaceutical Group certified B Corp.
Álvaro Martín
@alvaromartinmd
Pediatra 🇪🇦 Medical Genetics Fellow 🇺🇲 Enfermedades raras/Genética/Metabolopatías/Sd.Alcohol Fetal #LosNiñosNoSeTocan
Bekah Nicholson
@b__nicholson
she/her | PhD Candidate | Summers Holland Investigational Team | University of Utah | studying ceramides in kidney injury/disease
dustin
@koopsdustin
Nada
EVA Therapeutics, Inc.
@evatherapeutic
EVA Therapeutics, Inc. develops Enteral Ventilation Technology named as EVA for intra-rectal delivery of a liquid form of O2 (oxygen) with perfluorocarbon.
Silvia Brugiapaglia
@silbrugiapaglia
PhD | Tumor Immunology Lab at University of Turin | immunology & pancreatic cancer
Axiom
@theaxiomgroup
AP
Kathleen Frezza
@katfrezza

Meredith Walker
@meredit29962750

Lks
@teamshaeffer

ldldld8
@ldldld811386

Jacqueline Yvonne Gallegos
@jazzeeejaxxx

Cure HSPB8
@curehspb8
The only patient advocacy group focused on HSPB8 Myopathy. On a mission to find treatments and cures, raise awareness and build a strong community.
Fundació Dr. Torrent-Farnell
@jtorrentfarnell

Eamon McCarron
@eamonpmccarron
Doctor. Chemical Pathology/Metabolic Medicine. Inherited Metabolic Disorders & Lipidology. Classical Musician. Alumnus @LivUniMedicine @liu_universitet
MGGA
@ritscher_s29012

Hunter
@hunter140033

Kyrsten Lawless
@kyrstenlawless

Bin Zaki
@binzaki313
🏳️ بس اسلامی نظام 🏳️
EleMessy
@elem3ssy

Rebecca Lo
@rebeccalo56756

escripts
@escriptsuk
Electronic Private Prescriptions Made Easy
Amelia
@maximostan21262

Lady Fabry e Doenças Raras
@ladyfabryeraras
👁️Ativista p/um futuro onde raro é visto 🌎Conscientização sobre Doenças Raras ✍️Escrevo para curar, inspirar e incluir 🧬Doença de Fabry
Leyloysee
@leyloysee8cwoj

Soaslees
@soasleesnhf9x
Don’t wait, no answer is also an answer, and no reply is also a reply
Anne Boyle
@throwinganet
information seeker, work in pharma: collect ideas, insights in medicine & biotechnology; tweets are mine
zizu
@sundream10
there is chance
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
CheckRare
@checkrare
Leading publisher and learning platform focused on rare diseases. Rare Diseases Are Our Focus, Expertise, and Passion.
Elliot Fink
@fink_elliot

Luiz Ricardo Moraes
@luizricardo3000
Exige muito de ti e espera pouco dos outros. Assim, evitarás muitos aborrecimentos.
AllStripes
@_allstripes
Our mission is to unlock new treatments for people affected by rare disease.🚀
MS
@mujahidsufi7

Emma Jones
@emma33653404
Renal Nurse. KESS2 PhD student @BangorUni researching ‘Why do people say “no” to a kidney transplant’ @kidneywales @bcuhb. Trustee @kidneywales
ESPN
@espnsociety
Official account of the European Society for Paediatric Nephrology. Youtube: youtube.com/channel/UCGIWF… YPNN : @espnypnn