Chiesi Global Rare Diseases (@chiesigrd) 's Twitter Profile
Chiesi Global Rare Diseases

@chiesigrd

We are making a rare difference.

ID: 1338523872304443401

linkhttps://chiesirarediseases.com/ calendar_today14-12-2020 16:39:06

854 Tweet

578 Followers

32 Following

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We are pleased to share that data from a Phase 3 study focused on an investigational treatment for #Fabry disease have been published in The Journal of Inherited Metabolic Disease. For details, see our press release: r.chiesi.com/r1kt51y2 #RareDiseases #ChiesiGlobalRareDiseases

We are pleased to share that data from a Phase 3 study focused on an investigational treatment for #Fabry disease have been published in <a href="/JIMD_Editors/">The Journal of Inherited Metabolic Disease</a>. For details, see our press release: r.chiesi.com/r1kt51y2

#RareDiseases #ChiesiGlobalRareDiseases
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During #ECRD2024, we had the privilege of presenting insights from our study evaluating the economic impact of #RareDiseases in France, Germany and Italy. To learn more about our key findings, see Section P26 in the meeting abstract here: r.chiesi.com/m89bono8 OrphanetJournal at BMC

During #ECRD2024, we had the privilege of presenting insights from our study evaluating the economic impact of #RareDiseases in France, Germany and Italy. To learn more about our key findings, see Section P26 in the meeting abstract here: r.chiesi.com/m89bono8 <a href="/ojrarediseases/">OrphanetJournal at BMC</a>
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In this article, Giacomo Chiesi, Executive Vice President of #ChiesiGlobalRareDiseases, highlights our Find For Rare research grant initiative and discusses the important role that partnership plays in driving progress for #RareDisease communities: r.chiesi.com/8gcf9qr8

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Following their personal diagnostic odyssey, Brian and Tia Jones founded #TestingforTots to help advance #NewbornScreening for #Fabry disease and raise awareness of the benefits of early diagnosis. Learn more: r.chiesi.com/5szr4iyb USA TODAY FSIG The Greenville News

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In honor of National Family Health History Day last year, Denver7 News connected with Lori, who lives with Fabry disease, to learn more about #Fabry and highlight ways to approach important conversations about health with family members. Watch here: r.chiesi.com/0fvnud6i

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Applications for the 2025 Chiesi Golden Ticket Competition are officially open! Apply by Friday, March 14, 2025, for a chance to receive one year of fully paid individual bench space and membership at a fully equipped laboratory at any U.S. @BioLabs site: r.chiesi.com/30h7a1lc

Applications for the 2025 Chiesi Golden Ticket Competition are officially open! Apply by Friday, March 14, 2025, for a chance to receive one year of fully paid individual bench space and membership at a fully equipped laboratory at any U.S. @BioLabs site: r.chiesi.com/30h7a1lc
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We look forward to hosting a symposium at the 21st Annual WORLDSymposia where a panel of global clinical experts will share insights on the impact of prompt management strategies in #Fabry disease and #AlphaMannosidosis. #WORLDSymposia

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As part of our second symposium at WORLDSymposia, leading clinicians will discuss the therapeutic landscape for #Fabry disease and review case studies highlighting strategic approaches to monitoring tolerability. To learn more, visit: r.chiesi.com/is9s35cb

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We were honored to attend the 2024 debra of America Benefit gala where we accepted an award recognizing our work to help drive positive change for people living with #EpidermolysisBullosa. We are grateful for this special recognition and the opportunity to serve the EB community.

We were honored to attend the 2024 <a href="/debraOfAmerica/">debra of America</a> Benefit gala where we accepted an award recognizing our work to help drive positive change for people living with #EpidermolysisBullosa. We are grateful for this special recognition and the opportunity to serve the EB community.
Chiesi Global Rare Diseases (@chiesigrd) 's Twitter Profile Photo

#DYK 1 out of every 10 Americans lives with a #RareDisease? As a proud sponsor of this year’s #RareDiseaseDay events organized by NORD, we are honored to stand with advocates in recognizing the resilience of the global rare disease community. r.chiesi.com/qr0aout3 National Organization for Rare Disorders (NORD)

#DYK 1 out of every 10 Americans lives with a #RareDisease? As a proud sponsor of this year’s #RareDiseaseDay events organized by NORD, we are honored to stand with advocates in recognizing the resilience of the global rare disease community. r.chiesi.com/qr0aout3 <a href="/RareDiseases/">National Organization for Rare Disorders (NORD)</a>
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Don’t miss your chance to submit an application for the Chiesi Golden Ticket Competition! Apply by March 14 for a chance to receive one year of fully paid individual bench space and membership at a fully equipped laboratory at any U.S. @BioLabs site: r.chiesi.com/twt53ee9

Don’t miss your chance to submit an application for the Chiesi Golden Ticket Competition! Apply by March 14 for a chance to receive one year of fully paid individual bench space and membership at a fully equipped laboratory at any U.S. @BioLabs site: r.chiesi.com/twt53ee9
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The impact of #RareDiseases is more than you can imagine. On Rare Disease Day, we connect to create change. Amplifying voices and listening to experiences, we work together to drive progress that is meaningful and inclusive. Learn more at r.chiesi.com/oddqwqfn EURORDIS-Rare Diseases Europe

Chiesi Global Rare Diseases (@chiesigrd) 's Twitter Profile Photo

Don’t miss your chance to submit an application for the Chiesi Golden Ticket Competition! Apply by March 14 for a chance to receive one year of fully paid individual bench space and membership at a fully equipped laboratory at any U.S. BioLabs site: r.chiesi.com/twt53ee9

Don’t miss your chance to submit an application for the Chiesi Golden Ticket Competition! Apply by March 14 for a chance to receive one year of fully paid individual bench space and membership at a fully equipped laboratory at any U.S. BioLabs site: r.chiesi.com/twt53ee9
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We are proud to support the Immune Deficiency Foundation’s vital work to build broader awareness of #PrimaryImmunodeficiencies (PIs), including ADA-#SCID. Learn more about how IDF is driving progress for people living with PIs and their families here: r.chiesi.com/bilvdhi3

We are proud to support the Immune Deficiency Foundation’s vital work to build broader awareness of #PrimaryImmunodeficiencies (PIs), including ADA-#SCID. Learn more about how IDF is driving progress for people living with PIs and their families here: r.chiesi.com/bilvdhi3