
Chiesi Global Rare Diseases
@chiesigrd
We are making a rare difference.
ID: 1338523872304443401
https://chiesirarediseases.com/ 14-12-2020 16:39:06
854 Tweet
578 Followers
32 Following

We are pleased to share that data from a Phase 3 study focused on an investigational treatment for #Fabry disease have been published in The Journal of Inherited Metabolic Disease. For details, see our press release: r.chiesi.com/r1kt51y2 #RareDiseases #ChiesiGlobalRareDiseases


During #ECRD2024, we had the privilege of presenting insights from our study evaluating the economic impact of #RareDiseases in France, Germany and Italy. To learn more about our key findings, see Section P26 in the meeting abstract here: r.chiesi.com/m89bono8 OrphanetJournal at BMC




In honor of National Family Health History Day last year, Denver7 News connected with Lori, who lives with Fabry disease, to learn more about #Fabry and highlight ways to approach important conversations about health with family members. Watch here: r.chiesi.com/0fvnud6i


We look forward to hosting a symposium at the 21st Annual WORLDSymposia where a panel of global clinical experts will share insights on the impact of prompt management strategies in #Fabry disease and #AlphaMannosidosis. #WORLDSymposia

As part of our second symposium at WORLDSymposia, leading clinicians will discuss the therapeutic landscape for #Fabry disease and review case studies highlighting strategic approaches to monitoring tolerability. To learn more, visit: r.chiesi.com/is9s35cb

We were honored to attend the 2024 debra of America Benefit gala where we accepted an award recognizing our work to help drive positive change for people living with #EpidermolysisBullosa. We are grateful for this special recognition and the opportunity to serve the EB community.


#DYK 1 out of every 10 Americans lives with a #RareDisease? As a proud sponsor of this yearâs #RareDiseaseDay events organized by NORD, we are honored to stand with advocates in recognizing the resilience of the global rare disease community. r.chiesi.com/qr0aout3 National Organization for Rare Disorders (NORD)



The impact of #RareDiseases is more than you can imagine. On Rare Disease Day, we connect to create change. Amplifying voices and listening to experiences, we work together to drive progress that is meaningful and inclusive. Learn more at r.chiesi.com/oddqwqfn EURORDIS-Rare Diseases Europe

