This weekend kicked off the MDA annual Clinical & Scientific Conference, bringing together the neuromuscular disease community. buff.ly/0RTBMar

Wearable sensor used at home by 26 Charcot-Marie-Tooth patients linked well with formal measure of disease severity taken in the clinic. buff.ly/PVlrJX1

CMTA is funding research projects to boost the development of genetic therapies for Charcot-Marie-Tooth disease types 2A and 4B1. buff.ly/VSPto0W

Columnist Young Lee chats with doctoral student Payton Rule about disability models in the medical world and in society at large. charcot-marie-toothnews.com/columns/look-h…

A U.S. orthopedic surgeon received the 2025 Inherited Neuropathies Fellowship to advance research on foot mobility and intervention in CMT. buff.ly/e0TiR35

The status quo isn't working for the disability community, says columnist Young Lee, who argues for greater accessibility and inclusion. buff.ly/dRl9vxh

Mutations in the GJB1 gene affecting transmembrane regions of the connexin-32 protein are linked to more severe disease in people with CMTX1. buff.ly/88pTuxI

It's important to ponder what we're missing out on when communities aren't accessible, writes columnist Young Lee. buff.ly/tVbuuhf

Cure CMT and Tamarack are joining to expand access to advanced orthotic devices to correct and support bone and muscle for people with CMT buff.ly/Sz2xnM0

The Zeus KAFO brace aims to support mobility in people with lower limb weakness due to conditions such as Charcot-Marie-Tooth disease. charcot-marie-toothnews.com/news/zeus-kafo…

September is CMT Awareness Month, and organizations are working to increase visibility of Charcot-Marie-Tooth (CMT) disease. buff.ly/gkFdUmQ

Two advocacy groups and a pharma company are teaming up for a clinical trial of ELP-02, an experimental gene therapy for CMT4J. buff.ly/SOJxmal

Columnist Young Lee wonders how the impaired mind-muscle communication associated with CMT affects his thoughts and actions. buff.ly/lppzoxC

Columnist Young Lee challenges the idea that there is a dichotomy between mind and body, thoughts and actions. buff.ly/AIXaus2

Surgery to correct ankle and foot deformities enabled adults with CMT to achieve personal goals such as walking barefoot, a study found. buff.ly/3jME45S

A rare splicing mutation in the MPZ gene was behind a woman's unusual CMT symptoms, which included balance issues but not muscle weakness. buff.ly/XwPbg6v

A CMT patient advocate and founder of the Hereditary Neuropathy Foundation will receive an impact award from the MDA for advancing research. buff.ly/H9VNU5a

A new study finds adults with CMT face fatigue, physical barriers, and limited guidance that can make healthy eating more difficult. buff.ly/qaRJ7Tc

Ignaseclant may help improve muscle strength and motor function in people with Charcot-Marie-Tooth disease, according to Phase 2A trial data. buff.ly/9HmO7h9

Columnist Young Lee's physical strength is significantly affected by CMT. He gets introspective about how that shapes his identity. buff.ly/NbaJIO7