Quest For A Cure (@cfquestforcure) 's Twitter Profile
Quest For A Cure

@cfquestforcure

Cystic Fibrosis patients or parents.- fighting for precision medicines to be made available. ultimately the cure!!!

ID: 602686073

linkhttp://www.facebook.com/QuestForCure calendar_today08-06-2012 11:39:49

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Quest For A Cure (@cfquestforcure) 's Twitter Profile Photo
Quest For A Cure
@cfquestforcure

2 years ago

met with Jackie Baillie, & Scot Gov Health to discuss the NICE (& SMC’s collaboration) for appraising Symkevi, Orkambi & Kaftrio. We voiced our community concerns re draft guidance from NICE. Reassuring to have discussion where we were engaged & our concerns taken on board.

met with <a href="/jackiebmsp/">Jackie Baillie</a>, &amp; <a href="/scotgovhealth/">Scot Gov Health</a> to discuss the <a href="/NICEComms/">NICE</a> (&amp; SMC’s collaboration) for appraising Symkevi, Orkambi &amp; Kaftrio. We voiced our community concerns re draft guidance from NICE. Reassuring to have discussion where we were engaged &amp; our concerns taken on board.