
CCHS UK
@cchssupport
CCHS UK offers support to families, in the UK, affected by the extremely rare genetic condition Congenital Central Hypoventilation Syndrome (CCHS).
ID: 2385038113
https://www.cchs.uk/ 12-03-2014 10:17:15
380 Tweet
74 Followers
103 Following

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I am a 3 year old girl with a very rare Congenital Central Hypoventilation Sindrome. But NOTHING will hold me down...
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IVUN
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Int'l Ventilator Users Network links users of home mechanical ventilation, attendants and families with health professionals/companies that provide service.