We are super delighted to share some positive news. One of our ASH1L Warrior families participated in ASH1L Natural History Studies and has contributed towards the ASH1L research at Brown University. Thank You Adella Almazan Seabolt and Raina for your constant support!

On 21 April 2023, we will be hosting our 2nd ASH1L Scientific Conference (virtual) where renowned ASH1L researchers will be presenting about their ongoing ASH1L research progress. We are working on the agenda and will soon announce the details. Stay tuned for all the updates!

Introducing our Speakers for the ASH1L Scientific Conference on 21 April 2023 - Dr. Judy Liu (Brown University), Dr. Sofia Lizarraga (Brown University), Dr. Jin He (Michigan State University), Dr. Carin Papendorp (Brown University) and Ashley Liautaud (NIGMS). Stay tuned!

Here is our AGENDA for the ASH1L Scientific Conference on 21 April 2023. The conference will be recorded. However, to respect and ensure the privacy of confidential data, the presentation by Dr. Judy Liu will NOT be recorded or shared.

Care4ASH1L is hosting it's 2nd Virtual ASH1L Scientific Conference on 21 April 2023. In order to attend this conference, we request you to please register for the event by scanning the QR code from the flyer or by clicking the link - form.jotform.com/230934890223052

ASH1L SCIENTIFIC CONFERENCE (ONLINE WEBINAR) - Register now to attend this conference to learn more about ASH1L and the ongoing research from our expert speakers! REGISTER NOW - form.jotform.com/230934890223052

We are very pleased to announce that Care4ASH1L has been registered provincially in Ontario, Canada. Although, Care4ASH1L has been established as a charity federally since December 2021, this provincial registration enables us to host in-person/on-field fundraising events.

Join us tomorrow 21 April 2023 at 10:30AM EDT for the 2nd ASH1L Scientific Conference (Virtual) and hear from our leading ASH1L researchers about their ongoing ASH1L research. To register - form.jotform.com/230934890223052 Presentation by Dr. Judy Liu WILL NOT be recorded or shared.

Eid Mubarak to everyone celebrating!

Today we celebrate #ASH1LAwarenessDay with our friends at Care4ASH1L! We currently have over 10 people with #ASH1L enrolled in #SimonsSearchlight. You can find educational resources, gene guides and more on the ASH1L webpage: bit.ly/SimonsSearchli…

Happy Independence Day to our Indian ASH1L Warrior Families, supporters and followers!

📢 Support Care4ASH1L at MyGivingCircle.org. By voting, you can help them secure vital grants worth $500,000. Let's create a better world together! 🌍 #VoteForACause #MyGivingCircle mygivingcircle.org/care4ash1l?iv=…

📢 Support Care4ASH1L at MyGivingCircle.org. By voting, you can help them secure vital grants worth $500,000. Let's create a better world together! 🌍 #VoteForACause #MyGivingCircle mygivingcircle.org/care4ash1l?iv=…

🌟 Heartfelt Gratitude to Ella Gauthier & Arthur Stevenson School! 🌟 We are beyond grateful to Ella, a loving sibling to an ASH1L Warrior, and her incredible schoolmates from Arthur Stevenson School for their kindness and initiative. Thank you, Ella, and all the students.

Rare may be isolating. But community is powerful. Care4ASH1L was created with one mission: To bring families together and bridge the gap between lived experience and science. To the scientists, clinicians, nonprofit leaders, and families walking this path with us — thank you

On Rare Disease Day, we honor: ✨ ASH1L Warriors ✨ Parents and caregivers ✨ Adults navigating diagnosis ✨ Researchers committed to discovery ✨ Advocates amplifying rare voices ASH1L may be ultra-rare. But together, we are powerful. Thank you. We are stronger than rare.