We’ve raised £243,000 for UK #Ependymoma research. A wonderful legacy for our Edie. @CCLG_UK uk.virginmoneygiving.com/fund/EdiesButt…

This week's #ResearchFocus is a project funded through EdiesButterflyAppeal focusing on early detection of #ependymoma. Prof Grundy Uni of Nottingham #WeAreUoN is looking to identify biomarkers in patients that can be monitored during treatment and follow up. Read more at cclg.org.uk/CCLG-funded-re…

Pleased to announce we have teamed up with@GivingMachineUK to raise even more in the fight against cancer x.com/givingmachineu…

Visit GivingStreet.co.uk to raise ££££s to beat childhood ependymoma TheGivingMachine @CCLG_UK

Christmas can be a difficult, lonely and emotional time for families facing childhood cancer. Watch our Christmas edition of #BeAChildCancerFriend to see how you can help. Let’s keep the kindness of Christmas alive for those who need it most ❤️ youtu.be/G5NiXBWHXjE

Thnx to all who attended the Christmas pop@up shop. Edie’s BFF Anisa & I raised £389. @CCLG_UK #ependymoma

1 in 500 children in the UK will develop #cancer by the age of 14. Our vision is a world where all children diagnosed with cancer survive and live happy, healthy and independent lives. Read more at cclg.org.uk/strategy #CCLGAdvent

It’s Christmas Jumper Day on Dec 14. Post your pic & make a £2 donation to uk.virginmoneygiving.com/fund/EdiesButt…. @CCLG_UK

We are so thrilled to have supported this vital research and will continue to do so just like Harry wanted. #braintumours #research #cancer

Dotmatics UK Christmas Hamper raffle has raised £337 for Edie’s Butterfly Appeal: Giving Hope Through Research For All Children Fighting Ependymoma – a form of malignant brain tumour in children EdiesButterflyAppeal @CCLG_UK x.com/CCLG_UK/status…

First visit to Ardley United FC this year. A comfortable cup win. Thank you for your continued support of EdiesButterflyAppeal

Well done Richard Bath Half Marathon #ependymoma #childhoodcancer x.com/lechefprive/st…

We are proud to be supporting Paul Winspear by entering a team in his quiznite Bishop’s Stortford Cricket Club to raise funds EdiesButterflyAppeal .Such a wonderful cause, good luck Paul in the #LondonMarathon uk.virginmoneygiving.com/fundraiser-dis…

Five-Year Survival Rate for Selected Cancers Among Children CancerCureNow - cancercure-d.blogspot.com

Paul is running the #LondonMarathon for #teamCCLG this Sunday in memory of Edie EdiesButterflyAppeal, complete with five-foot hot pink butterfly wings! cclg.uk/2PrhMM1

"[We] got kicked out of 'Dumbo,' a movie about an elephant who is ostracized and not accepted because he is different." themighty.com/2019/04/kids-w…

Look out for me running for EdiesButterflyAppeal in the TCS London Marathon. You don’t need to know my number - I’ll be winging it #LondonMarathon #LondonMarathon2019 #pinkbutterflyman #inmemoryofEdie Enable Independent mwfitness StortfordIndependent

Ependymoma Awareness Day, May 5. Be aware 🦋🦋 x.com/cernfoundation…

Remembering Edie a year after she died from Ependymoma brain cancer ❤️ Forever 12. #ependymoma #ChildhoodCancer