Hope for Hasti
@brannigan001
Living in hope of gene therapy treatment for Cornelia de Lange Syndrome #CdLS 🧬 Walked 700 miles barefoot and won a Pride of Britain award #hopeforhasti
ID: 823910821029879809
http://www.justgiving.com/campaign/hopeforhasti 24-01-2017 15:10:22
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Antony Cotton MBE
@antonycotton
@mu_foundation @broughtonhouse & @SSAFA ambassador. @helpforheroes @rmchcharity and @manchesterpride patron. cameo.com/antonycotton
SO2 portaloos - a staff officers story!
@so2portaloos
Just a really ally military guy, trying to make sure the lads and lasses can crap somewhere.
Jennifer Huron
@jenniferhuron
Reader, writer, communications, strategy. Passionate about advocacy @rarediseases. Sports enthusiast. Forget cats, the internet was made for corgis.
Nicky Bassett 🇺🇦 💕🇺🇦💕🇺🇦
@nickyjbassett
After spending much time in the middle-east, I’m now living the dream in Cyprus.
lisawalton
@leelobb
Johnny Mercer
@johnnymerceruk
Father of three; husband of 1. Believer in change.
Lt Col Jules Russell
@co_afc
Commanding Officer of the Army Foundation College. Privileged to lead a team of military and civilian staff dedicated to the British Army’s Junior Soldiers.
Ragnar Hannes 🇮🇸🤾🇪🇺🇺🇦🇬🇪 #NAFO
@ragnarhannes
1984 is not a manual #NAFOfellas
Juliette Stegwee
@steghoeve
lorna luff
@lornaluff
Hi im lorna
Adam McDonald
@adammcdo
Old school gent, full time sailor. Iron Maiden, country music and red wine. Read books all day long when not working or playing with the Whippets
John Sweeney
@johnsweeneyroar
Trump is Putin's bitch Lucy Letby: Was There Ever A Crime podcast series Author: Murder In The Gulag; Killer In The Kremlin: Johnsweeney.co.uk
vanessa cassidy
@vanessacassidy3
Member of the great upside down monkey circus
Lynn Chapman
@lynnchapman10
🤗
@veralally4
Gary
@gishkap
I’m the ocean, I’m the giant undertow Love and Only Love.
Steve Grossman
@stevenjgrossman
Also find me (@)stevegrossman.bsky.social - Interested in #RareDisease, #ADCY5, #outdoors, #soccer
Richard JA Martin
@rjamartin
IT Systems Specialist
Pardeep Kaur MBE British Army Chef
@pardeep19922328
Chef Instructor at Food Service Training Wing @def_Chef_School Views are my own 😊 I am Possible 😍
Gene Therapy Event Series
@_genetherapy
From Promise to Reality: Delivering Transformative Therapies to Patients.
Lee Fox
@foxy2para
Warrant Officer in The Parachute Regiment and terrible darts player 🎯 Advocate of mental health #Talk
Andrew Fox
@mr_andrew_fox
Did some Army stuff, some lecturing, now do research and writing. Bestselling Substack link below. All views my own. Extended bio below.
Joanna Kern
@joannakern6
Mary Asnee
@mary_asnee
I am an entrepreneur with my own restaurant and fashion design studio. I am from Thailand/China and now live in New York.
Virtual Quiz Events for Fundraisers
@virtualquiz
Quiz Events for fundraisers, fully-hosted online quiz events for their supporters to play and fundraise for charities & non-profit organisations.
Joanne Beattie
@joannebeattie8
❤ Family means everything ❤ ❤Daughter & Granddaughter are my world ❤
Gavin Starkey
@gavin78115198
love cooking, playing hockey. Spending time with my friends....love North Scotland Especially Oban. Durham Land of the Prince Bishops. reasonable Archer too 😉
Wolf
@wolf20875722
Rareminds
@raremindsuk
Specialised mental health and wellbeing services for the rare disease community. bit.ly/rarementalheal…
Elledani
@d_writesinparis
🇫🇷 based, globally raised 🇿🇦🇲🇺🇺🇸🇬🇧 I took the road less travelled by. Trying to write books #WritersCommunity, but mostly here to comment & ramble.
J.J.
@jdk2121
Ewan mchugh
@mc_hughe
Aviation specialist🚁
Dead inside
@deadins44033617
Dead inside after 15 years getting fucked around.
GeneForum
@forum_gene
Human Gene Therapy Conference. genetherapyconference.com
raising_rareness (Lyndsey Walsh)
@raisingrareness
Mum of 3 Raising awareness of rare diseases & conditions #2q24.2 Advocating for my daughter & Rare Community 💗 #AAC MA Archaeology UCC Opinions my own
Ry Leahy
@ryscicomms
Science Communications for Advanced Therapies - Cell & Gene Therapy - Rare Patient (EoE) @phacilitate / #cellltherapy #genetherapy #firstgenacademic
Petty Officer Rainbow
@rainbowthebear2
my name is Rainbow and I was picked by the children of @Pathways4all to raise money for disabled children sailor for the Royal navy
Lily
@lily059312442
🇲🇾🇲🇾,Malaysia, 🌺🌺 🥰🥰🖤😍😍
Siaka Jammeh
@jammeh8_siaka
Hello everyone an how are you doing am Siaka Jammeh am from gambia smiling coast Africa am here to make good friends
रूपये बहादुर तिरुआं
@a_tiruwa
मेरो माया तपाइको सुर्खेत नेपाल. 💕💕
Jackie Foster
@hopefordlg4
Exec Director of HOPE for Harvey Foundation. Helping. Overcome. PSD-95. Errors. for the DLG4 Community. Working with researchers to develop a cure!
Kris Scott
@sco50991615kris
Army Veteran Suffering with CPTSD & Sarcoidosis. Just trying to get through each day! Currently recovering from a Broken Ankle.
Megan Peterson
@meganpe59626201
Marymathews
@marymathews246
Program Manager at Conference series
Abaasiku Jimmy
@abaasiku_jimmy
The Maybury Centre
@mayburycentre
Providing facilities for education, health, welfare, advice, social, business and recreation at the heart of #Woking in Surrey. Charity: 1031779.
UN CRPD Disability Rights Advocacy
@inclusion_in_fr
Disability rights are human rights. Turn anger into action. Presume competence, always. Anglo/Franco 🇫🇷🇪🇺🇺🇳
Mr Righton
@mr__righton
A Rare Documentary
@toorare2care
RARE unveils what stands between the families fighting rare disease, hoping for treatments, and the emerging groundbreaking therapies available.
weServed
@weserveduk
The only community providing crucial services & benefits, all in one place, to veterans & their families. Head to the website & sign up today.
Thisayth
@thisayth99190
#22
Feaslee
@feaslee52804
To feel, to love, to suffer, to devote herself will always be the text of the life of a woman.
Thinore
@thinore7w2itj
Jason Boyle
@jason_p_boyle
Lady Fiery#WeAreSoF**ked🇺🇦🌻💙😷🇪🇺⭐🕯#RejoinEU
@firehorsep
I'm a conservationist. Nature, the Arts, Culture, History and Politics, despite how infuriating it is! #FarCentrist #FuckCancer @[email protected]
busybee 💙
@hillsrock2
AllStripes
@_allstripes
Our mission is to unlock new treatments for people affected by rare disease.🚀