Update from The Health Research Authority on their investigation into Spectrum10K based on the Boycott Spectrum10k 30 page complaint via Autistic Advocates, Professionals & Academics: "Next update will be on January 14th" This investigation is now in its THIRD month I'd call that fairly damning

TheAutisticAdvocate The Health Research Authority Spectrum10K Boycott Spectrum10k I honestly cannot believe that the HRA has no other choice but to shut the 'study' down Spectrum10K cannot guarantee anonymity or appropriate consent The whole project should never have been approved, which is also damning for the ethics committee that did approve it

After spending over an hour on the phone to an educational psychologist, giving him information regarding a family I support (essentially spoon feeding them their report). He asked me to give him an example of how Autism affects me because he doesn’t believe I’m Âutistic!

Conversation with an 'autism professional' today AP: You're not Autistic Me: Who is the most prominent 'autism expert' on the planet? AP: Simon Baron-Cohen Me: He diagnosed me AP: Oh... Erm... Me: Also all his theories are trash & harmful, time to train yourself out of the 1990s

Tanya Adkin TheAutisticAdvocate People I swear to go, think of themselves so highly or autistic people so lowly that your autism is there's to give or take depending on how they experience you in short moments. It's the oddest audacity.

Monique Botha is actually they/them 🤷🏻‍♀️ Tanya Adkin Its the flagrant horror, disbelief and i'm sure contempt. "I'm the expert! My training from 2007 based on unproven theories derived between 1940 and 1996 dictates that you sir, are a liar and fraud!"

Pleasure to have been involved with this article discussing patient involvement. A particular focus on #StopSpectrum10k As an update: HRA hope to report the investigation findings into Spectrum10K by end March. The 30 page @BoycottSpectrum10K complaint was received in Sept

Boycott Spectrum10k

A reminder that if you have every taken part in a study or survey at the Autism Research Centre in Cambridge, or any other group affiliated to Spectrum 10k you can contact them, withdraw your consent and ask them to remove all data. They don't deserve it.

#Spectrum10K #StopSpectrum10K

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So, S10K is starting their consultation period with Autistic people a YEAR into their research and only because so many of us raised numerous concerns. I'm low on spoons right now but I have LOTS of things to say Boycott Spectrum10k #StopSpectrum10K #BoycottSpectrum10K

I see #Spectrum10k is back, and now paying autistic people to front a 'consultation'? Oh good grief.

Three reasons why S10K is not acceptable. STILL. emergentdivergence.com/2022/12/29/spe…

Anila Khan (Actually Autistic) 🧞‍♀️ Many of us have concerns about spectrum 10K it’s worth following Boycott Spectrum10k to keep up to date with everything that’s going on. I also wrote about my concerns with Spectrum 10K on my website autistcallysarah.com/spectrum-10k-c…

This pause has now come to and end and.... nothing much has changed. The only thing which is new is a consultation period which is being lead by Autistic people (mostly researchers). There are many issues with this including.... autisticltd.co.uk/2023/01/04/spe…

emergentdivergence.com/2023/01/22/spe…

Having denied that they are involved in eugenics, the ARC have proposed an amniocentesis focus group. This group will discuss the 'pros and cons' of being able to recognise an Autistic person in the womb,... autisticltd.co.uk/2023/01/25/spe…