Bounce Trust (@bouncetrust) 's Twitter Profile
Bounce Trust

@bouncetrust

Bounce has been set up by parents who have children with cystic fibrosis. Our aim is to raise awareness of CF and to fund research. bouncetrust.org

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link calendar_today26-11-2013 13:16:35

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Bounce Trust (@bouncetrust) 's Twitter Profile Photo

Looking forward to hearing more and we make sure due consideration is given to those needing high-calorie diets. x.com/cftrust/status…

Strawfie Challenge (@strawfie) 's Twitter Profile Photo

This video features children who battle #cysticfibrosis. Their lives are filled with daily physiotherapy/nebulisers/drugs & having to avoid risk factors for infection. Please help them gain access to new drug #Orkambi SIGN PETITION petition.parliament.uk/petitions/2094… youtube.com/watch?v=JaibEz…

Kristian Teleki (@kristianteleki) 's Twitter Profile Photo

#CysticFibrosis patients to be treated at home using new smartphone scheme standard.co.uk/news/health/cy… cf/Aware Bounce Trust Strawfie Challenge - saving the NHS money which could be applied to making #Orkambi available and reducing hospital admissions even further!